Care home stimulation

Sunshine11!

Registered User
Feb 11, 2022
116
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Mum has finally been moved to a. Care Home of Dad's choice. She seems settled and the staff tell us that she is. Mum is clean, well fed and medicated accordingly - she looks well. I do have concerns however at the level of stimulation that she is getting, as does my Father. My brother was saddened when he visited a few weeks ago, to see Mum sitting in a television room, seemingly more interested in pulling at a loose thread on her clothing!
The home publish an activities list every week. When I visited today she was sitting in the "pleasant" breakfast room, at a table alone. Two members of staff kept drifting in, but I saw no acknowledgement of her really or efforts to engage with her. I asked what Mum would be doing when breakfast was over, and neither of the staff could tell me. I (politely) made it very clear that I would not be happy if Mum was just going to be left somewhere, sitting alone, when I left.
A senior member of staff was then contacted who was very pleasant with Mum and I. She explained that a music activity was going on. I asked if I could see that, made encouraging noises...and the member of staff escorted Mum down to the room. Once there, she sat down and joined in. I joined in for two minutes or so, and then left her seemingly happily, joining in. The member of staff told me that when they asks Mum if she wants to join an activity, she often says no. From past experience however, I know that Mum's "no" does not always mean "no'!
I'm no expert!! I just hate to think that Mum is not getting the stimulation that she deserves. From what I can see, she's exhibiting many Mid stage characteristics of Alzheimers. What should we expect though from the care home?
 

Jaded'n'faded

Registered User
Jan 23, 2019
5,339
0
High Peak
You could ask that the staff tried to cajole her a little more? I'm sure that's what you do but in a care home, staff will ask then accept 'no', which as I'm sure you know is the default answer for many people with dementia!

What you can't expect is for a member of staff to be with her chatting all day long.

Also bear in mind that as things progress, your mum may not want to do much more than sit and fiddle.
 

Sarasa

Volunteer Host
Apr 13, 2018
7,434
0
Nottinghamshire
My mum didn't really want to join in with activities unless I was there. In her first care home I used to make sure I went in at times when we could both do whatever the activity was. If I wasn't there she normally didn't bother. Is there anyway you can go in when there are things.
By the time she moved to a different home she was beyond joining in with anything.
 

Sunshine11!

Registered User
Feb 11, 2022
116
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I certainly wouldn’t expect someone to be chatting with her all day so sorry if it came across like that!

Would be useful to know what I should be expecting
 

Sunshine11!

Registered User
Feb 11, 2022
116
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Also at what point might Mum want to just “sit and fiddle” and what other behaviors could we expect then?
 

Jaded'n'faded

Registered User
Jan 23, 2019
5,339
0
High Peak
Also at what point might Mum want to just “sit and fiddle” and what other behaviors could we expect then?
Crikey, that's a big ask! Everyone with dementia is different.

It sounds like the care home is very good but the staff will take some time to get to know your mum and all her 'little ways'... :)

But from what you said, she was quite happy fiddling with the thread in her trousers. My mum was also a trouser-fiddler! She would either roll up her trouser legs or sped ages arranging the creases around her thighs into perfect even pleats. At that time she was perfectly able to move, read, talk or do whatever but she always chose to stay in her room and wouldn't mix.

I spent ages trying to cajole her into doing something but failed! She'd say, 'All I do in here is read all day.' I would suggest umpteen other things she could do but she'd look at me and say, 'But I just want to stay in here and read my book.' Can't win.

I know what you mean about most people needing a bit of a push and encouragement to get them to do stuff and it's frustrating because we fear without stimulation they'll just decline. Unfortunately they decline anyway, despite all our efforts. I thought I'd cracked it one time with mum when the activities lady gave her some knitting needles and wool, as mum used to do loads of knitting. On my next visit I noticed there was no progress from the previous time. When I cheerfully asked, 'Oh! Have you been doing your knitting? How's it going?' she said, 'No. I can't imagine why I ever liked it.' Nowhere you can go with that.

It's probably more important that your mum is content and doing what she wants to do, even if that is nothing much.
 

Sunshine11!

Registered User
Feb 11, 2022
116
0
Crikey, that's a big ask! Everyone with dementia is different.

It sounds like the care home is very good but the staff will take some time to get to know your mum and all her 'little ways'... :)

But from what you said, she was quite happy fiddling with the thread in her trousers. My mum was also a trouser-fiddler! She would either roll up her trouser legs or sped ages arranging the creases around her thighs into perfect even pleats. At that time she was perfectly able to move, read, talk or do whatever but she always chose to stay in her room and wouldn't mix.

I spent ages trying to cajole her into doing something but failed! She'd say, 'All I do in here is read all day.' I would suggest umpteen other things she could do but she'd look at me and say, 'But I just want to stay in here and read my book.' Can't win.

I know what you mean about most people needing a bit of a push and encouragement to get them to do stuff and it's frustrating because we fear without stimulation they'll just decline. Unfortunately they decline anyway, despite all our efforts. I thought I'd cracked it one time with mum when the activities lady gave her some knitting needles and wool, as mum used to do loads of knitting. On my next visit I noticed there was no progress from the previous time. When I cheerfully asked, 'Oh! Have you been doing your knitting? How's it going?' she said, 'No. I can't imagine why I ever liked it.' Nowhere you can go with that.

It's probably more important that your mum is content and doing what she wants to do, even if that is nothing much.
That’s helpful, thanks
 

Chaplin

Registered User
May 24, 2015
354
0
Bristol
I certainly wouldn’t expect someone to be chatting with her all day so sorry if it came across like that!

Would be useful to know what I should be expecting
I think you should have a conversation with one of the senior carers or the manager. Ask if staff could try to encourage your mum to take part. My mum used to say no to everything but the staff used to say, ‘well just come along and watch then….’ Before you knew it she was joining in and boccia is her particular favourite, even bringing out her competitive nature. Sometimes staff need ‘permission’ to encourage or cajole someone. If your mum is quite mild mannered then I’m sure the staff would be happy to at least try a different tack.

If there is a weekly activity sheet, try and tell the staff which are most likely to appeal to your mum. Does she like to chat with others? If so, rather than say they will be doing painting or singing, just say we’re all going to have a cuppa and a chat. Honestly it’s not rocket science and the staff will quickly see what she likes and doesn’t like.

My mum is living with the very advanced stage of her dementia in a lovely nursing home. She barely eats, cannot stand unsupported and needs help with everything, but she can still do a 200 piece jigsaw (large pieces for people with dementia) with a little bit of assistance. Mum don’t watch TV anymore as she cannot follow the story. It’s been said many times, when you’ve met one person with dementia, you’ve met one person with dementia! Everyone experiences dementia in their own unique way, so just stay with the Forum, keep asking questions and use as many of the resources as you can.

It’s so good to know your mum is settled, that’s the biggest challenge for most people so do take some comfort from that.
 

Rosettastone57

Registered User
Oct 27, 2016
1,891
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My mother in law was always complaining about the care staff ignoring her and never including her in activities. The home had a Facebook page and there she was on one of the uploaded photos laughing,smiling and taking part in the activities. After that my husband ignored her complaints.
 

Banjomansmate

Registered User
Jan 13, 2019
5,674
0
Dorset
The Banjoman was lucky that in his care home not only did they have an activities co-ordinator who spent time with the residents who stayed in their rooms, but also a Dementia visitor, a lovely gentleman who, having experienced time in a Care home after a brain injury, then spent a couple of days each week talking with and helping the residents. He would join The Banjoman in his room and talk with him, (as much as that was possible) especially while he was having lunch, when, towards the end he needed some assistance.
He came to the funeral and thoroughly enjoyed the Bluegrass session in the pub afterwards. I have often wondered what happened to him and hoped he didn’t succumb to Covid which started a couple of months after The Banjoman died.
The Care Home was closed down a year into the pandemic after a resident returned from a session in hospital and brought Covid back with them. The staff went down like ninepins and CQC closed it down as they didn’t have enough staff to keep it running safely.
 

Daughterjules

New member
Sep 8, 2022
1
0
Crikey, that's a big ask! Everyone with dementia is different.

It sounds like the care home is very good but the staff will take some time to get to know your mum and all her 'little ways'... :)

But from what you said, she was quite happy fiddling with the thread in her trousers. My mum was also a trouser-fiddler! She would either roll up her trouser legs or sped ages arranging the creases around her thighs into perfect even pleats. At that time she was perfectly able to move, read, talk or do whatever but she always chose to stay in her room and wouldn't mix.

I spent ages trying to cajole her into doing something but failed! She'd say, 'All I do in here is read all day.' I would suggest umpteen other things she could do but she'd look at me and say, 'But I just want to stay in here and read my book.' Can't win.

I know what you mean about most people needing a bit of a push and encouragement to get them to do stuff and it's frustrating because we fear without stimulation they'll just decline. Unfortunately they decline anyway, despite all our efforts. I thought I'd cracked it one time with mum when the activities lady gave her some knitting needles and wool, as mum used to do loads of knitting. On my next visit I noticed there was no progress from the previous time. When I cheerfully asked, 'Oh! Have you been doing your knitting? How's it going?' she said, 'No. I can't imagine why I ever liked it.' Nowhere you can go with that.

It's probably more important that your mum is content and doing what she wants to do, even if that is nothing much.
Why why why do they ask rather than suggest there is something that they’d enjoy and offer to take them. My dad will often say No when he means I’m unsure what’s happening
 

Sunshine11!

Registered User
Feb 11, 2022
116
0
I’m so glad someone else has said that Daughterjules. I’ve found exactly the same and have politely pointed out to the home that Mum’s no does not always mean no. We’ve reached a compromise that staff may say “we’re going to …now”. Fingers crossed as I just know that some of the art activities she’s missing she would love? But maybe I’m wrong. I was on the edge when I visited the other day and the woman in reception was wonderful.
 

sdmhred

Registered User
Jan 26, 2022
2,529
0
Surrey
The Banjoman was lucky that in his care home not only did they have an activities co-ordinator who spent time with the residents who stayed in their rooms, but also a Dementia visitor, a lovely gentleman who, having experienced time in a Care home after a brain injury, then spent a couple of days each week talking with and helping the residents. He would join The Banjoman in his room and talk with him, (as much as that was possible) especially while he was having lunch, when, towards the end he needed some assistance.
He came to the funeral and thoroughly enjoyed the Bluegrass session in the pub afterwards. I have often wondered what happened to him and hoped he didn’t succumb to Covid which started a couple of months after The Banjoman died.
The Care Home was closed down a year into the pandemic after a resident returned from a session in hospital and brought Covid back with them. The staff went down like ninepins and CQC closed it down as they didn’t have enough staff to keep it running safely.
Oh @Banjomansmate - was this the one on the cliff by the sea??? I was there staying with mum and dad at the time and remember it all over the local FB. So many residents died 😭😭
 

Louise7

Volunteer Host
Mar 25, 2016
4,969
0
Hello @Sunshine11! it's good that you've reached a compromise and that staff will now put a bit more thought into encouraging your mum to join in with the activities. My mum is now at the stage where she isn't able to actively participate in a lot of the activities but she likes to watch others and be around other people and the activities staff at her home have got to know what stimulates her and what doesn't. It's still early days with your mum but hopefully as the staff get to know her more, and your mum gets to know others in the home better, things will improve.
 

sdmhred

Registered User
Jan 26, 2022
2,529
0
Surrey
Yes, it must have been awful. I think that would have finished me off! So many families must be left with post traumatic stress following that time.

mum was in respite end of 2021 but the essential care giver scheme was in place by then so I was ok to go in with regular testing.

the building was still for sale when I was there in September…
 

Ali1234

Registered User
Oct 19, 2023
44
0
My mum has just moved into a care home and says she doesn't want to join in with anything. I was unable to persuade her to even go in the main room with me as she got so distressed. The staff do offer and they have asked what she likes but it is hard to answer that anymore.
 

SarahWG

New member
Nov 18, 2023
1
0
This is such a helpful chat thread, thank you for starting it. My step dad moved into a care home last week following the unexpected death of my mum. I know it’s early days, but we feel as though he’s not interacted with at all at the home he’s in so are potentially looking at an alternative for when the initial four week contract is up. Our naivety is huge when it comes to homes but have people got experience of smaller homes being more engaging? Thanks!
 

Sarasa

Volunteer Host
Apr 13, 2018
7,434
0
Nottinghamshire
Welcome to Dementia Support Forum @SarahWG. If you are happy with the care your stepdad is getting in the care home I think I’d leave him there. It’s early days and as he settles he might engage more with things. I chose the first home my was in because they had an amazing award winning activities programme. Mum wasn’t interested in any of it unless I was there to do things with her.
IlThis is a very friendly and supportive place so I’m sure others will be along soon with their suggestions.