frontotemporal dementia

Had an awful day with OH with FTD. i got accused of trying to give him a heart attack with all the stress I put him through! He wanted to be taken to this place I’ve never heard of to get his money, Turns out years ago there was some sort of gathering in the pub where they held raffles and he...

My OH is 73, has fronto-temporal dementia, 5 years in now and getting worse re memory, functioning etc, and mobility issues associated with this. He wears max absob pull up Tenna pants day and night - no issues through the day at the mo, he goes to the loo Ok and no leakages into pants. But at...

Hi, does anyone have any info on frontotemporal dementia, and does it differ a lot from the other dementias? Ive been told it’s one of the rarer types. Having lived with my husband for 55yrs the changes are so strange where one day seemingly normal and others so different. Is this similar to...

It’s two and a half years since my husband was diagnosed with FTD (non behavioural variant). Early on a friend advised me to “look for pearls along the way” and we have and try to journey with thanksgiving. We both have a strong Christian faith and a very supportive Church family, as well as...

Recently got FTD diagnosis. Don’t realize much of any change except tired all the time and sleep 14 plus hours a day. Is this a symptom?

Hi My name is Dorothy and My husband was diagnosed with frontal temporal dementia and PPA last September. I recently retired from work in 2021 after 30 year career in The law enforcement field. Our plans were to travel and enjoy our retirement together. I started to notice changes in my husband...

Hi all, I’m posting on behalf of my mother who isn’t on the forum, Dad, 76, FTD, late stages now due to infections last year. He now needs full time care, day to day he is “okay” but the issue with have is he is a fall risk due to losing the ability to safely walk in hospital. He can get...

My name is Elizabeth and my husband has frontal temporal dementia since 2005 he is now in a hospital bed unable to walk or do anything for himself. My health is not good and I am struggling

Hi my name is Jane and my husband has dementia he was diagnosed with young onset dementia and also frontal temporal dementia In 2019. during this time his condition has deteriorated and has great trouble with communication and understanding on the whole we are coping with daily living but just...

Title inspired by another post on here but for me it's poo that's the enemy! My OH has frontotemporal dementia and thinks he's OK pee not too bad but had fetal incontinence on and off. GP says no underying health cause just lack of awareness due to dementia. I ve got him to wear disposable...

Hi, I am not very good at this so please bear with me. My wife (of 30+ years) suffers from Frontal Temporal Dementia which was diagnosed around 5 years ago. We moved from Devon to the Midlands to be nearer our daughters, as I am disabled and in a wheelchair. My wifes condition started to really...

Well we've reached a new low these last few days, my OH with bFTD has started to pooh his pants in the evening. No obvious link to different foods etc He wears pull up pants at night for urine leakage but the last 3 days when we've undressed for bed his pants were really soiled and I had to make...

First of all, I know many of you are dealing with much greater challenges, so please forgive me for raising this, but it is worrying me. My OH has frontotemporal dementia, and is also physically frail: in fact, it is the physical frailty that seems to be worsening most rapidly at the moment...

Hi I've just joined, I'm scared, and not sure if it's natural to be this way, my hubby has decided not to educate himself on FTD as he, at this moment doesn't want to know what's going to happen to him, I'm definitely educating myself as I need to be ready for what's inevitable, is it normal to...

Hi - my Oh has FTD and has phases of urinary incontinence, and he also struggles to get his trousers open quickly enough when he goes sometimes (functional incontinence I believe its called). This is due to his arthritis, and also he has peripheral neuropathy in his hands which makes it hard for...

My husband has frontotemporal dementia (probably). His memory isn't the main problem, but his cognition. He simply can't do anything. He can no longer draw and paint or do all the jobs he used to do. He can't get himself anything to eat and drink. He can't shower or wash his hands or dress...

I seem to have run out of options, I am looking after my husband who has FTD and the last year he has become really bad, in fact he has started to escape from the property, this has become bad since going into respite against my better judgement, he was neglected there, got out over a wall and...

Hello. This forum has been recommended to me by one of the Alzheimer’s nurses. My 77 Mum has frontotemporal dementia. She is under section 3 and currently on a psychiatric ward. She has had a very distressing time. She started in march with some strange behaviour and we took her to a&e worrying...

Hi everybody, I am wondering if anyone has any experience of your partner having both dementia and Motor Neurone disease...seems like its more likely to happen if you have Fronto Temporal Dementia (FTD)...may partner was diagnosed with FTD in October last year, and then last week she was also...

I am currently full time, live in carer for both my parents that have dementia (Dad has mixed alzheimers and vascular, Mum has FTD) and getting to GP appointments is becoming extremely difficult and really stressing me out. Dad is much further along and suffers from aggressive outbursts, so the...