Just venting I guess....My husband was diagnosed a few years back after he got lost going home by himself, after taking me to the airport. Since then he declined rapidly and now this 70 year old man, walks around the house all day long, with not much to say. I believe he knows he is not making much sense when he does talk so he does not say much now. It is hard for me to understand what he is trying to say at times, so I understand and since I work from home all day, it does not bother me in the least that he does not talk to me all day.
He was eating really good for a while, although would not eat what I cooked anymore. We had to go out to eat for the last 6 months or so, and I think too it was to get out of the house a little. This meant I got out too as he would not let me out of his sight for the past year. I felt trapped and overwhelmed there for a long time, but this past week, not eating much, and very paranoid. Does not want to go out of the house, and when he does I can see he is on edge. This means that I can get out a little without him which has really helped me emotionally quite a bit. That is all I wanted was to have some me time. I never leave him alone though for more then an hour at a time, mostly 1/2 hour.
He is finally sleeping through the night, as the last 6 months I felt like I was going out of my mind, as he was waking me every hour on the hour. If he was awake I had to be too. I tried so hard to be patient but since I am still working there were times that I flipped and screamed at him to stop. Needless to say it did not and the next day I felt like **** for yelling at him, although he did not recall what happened in the night anyway.
He has not been comfortable in our townhouse either for some time. Afraid to go upstairs to bed. I had to convince him each night that nobody is up there and it is part of our home. I see he has trouble finding spoons etc.. just no longer familiar with our house now that we lived in for 37 years.
He won't take his pills for me anymore as he don't trust me. I leave them out and when he is good and ready he may or may not take them. He keeps telling me he is not going to the doctors and last Friday I went alone even though he was suppose to join me. Next time I will have to trick him into going by not telling him where I am going and once there say it is just for me. He is just keeping me company.
I am not sure what to expect as I have never experienced this before with any other friends or family, but in reading I am very concerned obviously.
I plan on keeping him home as long as I can, and maybe even bring in a visiting nurse or help when the time comes that I can no longer handle things on my own. That's my plan anyway but I see that every day is different. He is like Dr. Jekyll and Mr. Hyde. Some days nice and just quiet, other days wakes up and is just miserable and nasty.
Today I have to convince him to let me help him take a shower, shave and brush his teeth as the last FEW days he would not allow it.
Keeping it together in Sunrise. Thanks for listening and for all you caregivers out there, my heart goes out to you.
He was eating really good for a while, although would not eat what I cooked anymore. We had to go out to eat for the last 6 months or so, and I think too it was to get out of the house a little. This meant I got out too as he would not let me out of his sight for the past year. I felt trapped and overwhelmed there for a long time, but this past week, not eating much, and very paranoid. Does not want to go out of the house, and when he does I can see he is on edge. This means that I can get out a little without him which has really helped me emotionally quite a bit. That is all I wanted was to have some me time. I never leave him alone though for more then an hour at a time, mostly 1/2 hour.
He is finally sleeping through the night, as the last 6 months I felt like I was going out of my mind, as he was waking me every hour on the hour. If he was awake I had to be too. I tried so hard to be patient but since I am still working there were times that I flipped and screamed at him to stop. Needless to say it did not and the next day I felt like **** for yelling at him, although he did not recall what happened in the night anyway.
He has not been comfortable in our townhouse either for some time. Afraid to go upstairs to bed. I had to convince him each night that nobody is up there and it is part of our home. I see he has trouble finding spoons etc.. just no longer familiar with our house now that we lived in for 37 years.
He won't take his pills for me anymore as he don't trust me. I leave them out and when he is good and ready he may or may not take them. He keeps telling me he is not going to the doctors and last Friday I went alone even though he was suppose to join me. Next time I will have to trick him into going by not telling him where I am going and once there say it is just for me. He is just keeping me company.
I am not sure what to expect as I have never experienced this before with any other friends or family, but in reading I am very concerned obviously.
I plan on keeping him home as long as I can, and maybe even bring in a visiting nurse or help when the time comes that I can no longer handle things on my own. That's my plan anyway but I see that every day is different. He is like Dr. Jekyll and Mr. Hyde. Some days nice and just quiet, other days wakes up and is just miserable and nasty.
Today I have to convince him to let me help him take a shower, shave and brush his teeth as the last FEW days he would not allow it.
Keeping it together in Sunrise. Thanks for listening and for all you caregivers out there, my heart goes out to you.
