We really don't know what stage in Mum's journey we are - every journey seems different - a month on from Mum's hospitalisation - she has been assessed by SALT and her diet put back to puréed food and thickened drinks. Her swallow is not good and she has weak lip, tongue muscles etc, this appears to have worsened in last week - at SALT visit, I was taken out of the room and asked about the future as this damage to swallow, speech etc generally progresses quickly - complete loss of ability to swallow, speak etc and generally at this stage most sufferers are not aware but Mum is - she doesn't understand implications but knows something isn't right and knows because of poor cough reflex she cannot clear chest.
Over last two weeks - at times she looks so vacant, struggles for words etc and her speech becomes very quiet and more slurred than normal, and like I say everyone's journey is different and we take each day as it comes - speech and swallow seem to be part of the later stages but because Mum is aware, still know us etc - none it makes any sense - I'm not posting this for definitive answers but just to see if anyone else's journey is the same as Mums and we can perhaps see where we're heading and how to prepare x
Over last two weeks - at times she looks so vacant, struggles for words etc and her speech becomes very quiet and more slurred than normal, and like I say everyone's journey is different and we take each day as it comes - speech and swallow seem to be part of the later stages but because Mum is aware, still know us etc - none it makes any sense - I'm not posting this for definitive answers but just to see if anyone else's journey is the same as Mums and we can perhaps see where we're heading and how to prepare x