younger children under the age of 18 who have a parent with dementia

Discussion in 'Researchers, students and professionals' started by Margarita, Jul 18, 2007.

?

do you have young children under 18

  1. Do you have a child under the age of 18

    4 vote(s)
    80.0%
  2. are you under 18 and careing for someone

    0 vote(s)
    0.0%
  3. what inpact does it have on your children

    1 vote(s)
    20.0%
  1. Margarita

    Margarita Registered User

    Feb 17, 2006
    10,824
    london
    #1 Margarita, Jul 18, 2007
    Last edited: Jul 18, 2007
    My daughter is doing a dissertation

    She like to do research with younger children under the age of 18 who have a parent with dementia or care for someone with dementia and the person under 18

    Of course she have to get the parents permission , as she would have to interview them . she needs 10 people . I could also ask our local AZ as I think they run a younger dementia group

    I would like to start a poll of how many people have have children under 18 on TP , and they are the carer of a husband or wife Or Just under 18 and are caring for someone who has dementia .
     
  2. jackie1

    jackie1 Registered User

    Jun 6, 2007
    238
    Cheshire
    Hi Margarita,

    My husband as AZ and our children are 9 and 7. Although they are aware their dad isn't well and find some of the things he does and his actions strange I do really try to keep everything as normal as possible. I'm also finding as this illness has been building up for so long, with them being so young, they have adjusted well. The older one is obvioulsy more affected that the younger one.

    I think that your daughter would probably get more useful information from older children. If you/your daughter would like any further information please just ask.

    Jackie
     
  3. Brucie

    Brucie Registered User

    Jan 31, 2004
    12,413
    near London
    Hi Margarita

    firstly - well done for getting the poll sorted.

    just to give a tip if you do another one some time - your first two questions are fine, someone can select one or other to indicate which applies to them, and they are mutually exclusive so you are potentially picking up two kinds of person.

    The third question, "what inpact does it have on your children" is not something that can get a good response in a poll.

    You could have phrased it in a couple or more questions: "does it have a very negative effect on your children" and "does it have no effect on your children" [or other options].

    However, if someone says 'yes' to "what inpact does it have on your children", then it actually doesn't mean anything. :(

    Please bear in mind one of the key things we try to ensure in Talking Point is that researchers do not regard the forum as a rich hunting ground for information from the members. For that, we point them to the Alzheimer's Society itself for information. So we have to be careful that we don't open the forum up to something we might regret later.

    I suggest the best way forward is for anyone who might wish to help your daughter in her project to contact you by PM.

    Should you or your daughter wish to use any replies, you should contact anyone who responds to this thread and gain their permission before any of the content is used in any way.

    Your idea of contacting the local AS branch is a good one!

    Sorry if the message above seems unhelpful, but I'm trying to keep the forum a safe place to post.
     
  4. Margarita

    Margarita Registered User

    Feb 17, 2006
    10,824
    london
    #4 Margarita, Jul 18, 2007
    Last edited: Jul 18, 2007
    Any information that anyone replies back is not being used for any research. My daughter just wanted to know if there is anyone who may fit the specified poll. And only if the respondents want to take part in any further information being gathered, with their FULL consent-will any information be used as research.

    I do understand your concerns , and thank you for your help in how I should of worded the poll ( I should of had my daughter next to me when I done it:rolleyes: she worded the above in this post 4 :) )
     
  5. Lila13

    Lila13 Registered User

    Feb 24, 2006
    1,342
    They may not be the children of the person with dementia, but children of other relations living in the same household would also be affected. (I'm remembering among others the neighbour whose auntie with dementia lived with the family for 23 years, had a huge impact on the 3 children, as their mother always put auntie first.)
     
  6. Margarita

    Margarita Registered User

    Feb 17, 2006
    10,824
    london
    #6 Margarita, Jul 19, 2007
    Last edited: Jul 19, 2007
    I phone my local day-center and they say they do not run a group for younger people with dementia , they was one 2 years ago , but the social worker left and they did not replace her and it be very rear that she find someone that has children under 18 in are area ( hammersmith / fulham ) out of the 141 people she knows in are area , but the are under 61 so they children will be older .


    (What I am finding out for myself is they really is a lack of services for younger people with dementia )

    anyway
    if they is other people in are area from the last 2 years with young children she does not know of them .

    she said that she be better doing it with grandparents . as they children may be more willing to do it . ( shall tell my daughter about that later when she in )

    Seem if I am reading the poll right they is 1-percent of people on TP with young children under 18 and they parents have dementia , I am surprised

    I also phone the help line & they told me to come in hear Younger people with dementia) to see what services are availably and if anyone would want to take part .
     
  7. annesharlie

    annesharlie Registered User

    My youngest was 17 when Ron was diagnosed, he's just turned 18. PM me if you want more details - we are based in Canada - maybe you only want UK participants?

    A
     
  8. Margarita

    Margarita Registered User

    Feb 17, 2006
    10,824
    london
    Thanks annesharlie & jackie

    annesharlie don't see why not , shall ask her
     
  9. Margarita

    Margarita Registered User

    Feb 17, 2006
    10,824
    london
    Just read this
    If a moderator could move this thread to the Researchers, students and professionals' section, for me please sorry , really sorry just notice the rule in the Younger people with dementia section .
     
  10. Brucie

    Brucie Registered User

    Jan 31, 2004
    12,413
    near London
    Hi Margarita

    just shifted this as requested. :)
     
  11. Margarita

    Margarita Registered User

    Feb 17, 2006
    10,824
    london
  12. Westie

    Westie Registered User

    Margarita,

    My children are 10 & 14 and we care for my husband (52). Feel free to PM for more details if we can help.

    You are so right about the lack of support for young carers who have children. We live in another London Borough and I haven't come across anyone else in our situation. Just fitting in Peter's appointments around the children during school holidays is difficult - do I bring them (not very suitable) or leave them alone? Crossroads Carers won't come when the children are at home so I get no help with caring perhaps when I need it most. Babysitters are out of the question as they can't/won't deal with Peter as well. My time is constantly used up juggling increasing demands of my husband and the needs of my children. They are the ones to miss out - I can never make it to parent's assemblies, sports days etc.

    I could go on at length, but as said before send me a PM for anything specific.

    Good luck to your daughter.
     
  13. Margarita

    Margarita Registered User

    Feb 17, 2006
    10,824
    london
    #13 Margarita, Jul 19, 2007
    Last edited: Jul 19, 2007
    Thank-you for your help , you have highlighted really good issue

    sure she know more about it then I , in what she needs
     
  14. Lila13

    Lila13 Registered User

    Feb 24, 2006
    1,342
    #14 Lila13, Jul 19, 2007
    Last edited: Jul 20, 2007
    More on young carers

    http://www.carersuk.org/Newsandcampaigns/News/1178805136

    Of course many wouldn't be identified as such, either by themselves or by others, it would just seem normal to help parents or grandparents (not wanting loved ones to be taken away, and not wanting to be put into care as they would be if there were no suitable adults around) and they may only be able to say much later at what point it became really too much.

    http://www.nch.org.uk/information/index.php?i=245

    You'd need parents'/guardians' consent to interview children, wouldn't you? and if the family were exploiting children they might not consent, or children might be afraid to tell the whole story until much later. (Using 'you' in the general sense, no-one in particular.)
     
  15. Margarita

    Margarita Registered User

    Feb 17, 2006
    10,824
    london
    #15 Margarita, Jul 20, 2007
    Last edited: Jul 20, 2007
    Yes lila
    Also can't remember what it call , but you have to get a police check ( the person doing the interview and they have ID )

    Thanks for those links .

    Hopeful its not that drastic , that a child could not tell how they feel and hold it in till they older .

    really the purpose of it all is to see what areas is lacking in servers for the children, carer / parent and that the LA can open up in help .

    as like Westie says
     
  16. Lila13

    Lila13 Registered User

    Feb 24, 2006
    1,342
    I think it probably happens more than we realise at the time, the full impact is only seen much later.




     
  17. Wits End

    Wits End Registered User

    May 9, 2007
    3
    North Yorkshire
    Hello Margarita,

    My daughter is 17 (18 Nov) and we care for my husband who is 57, life is very difficult at times as I need to juggle my time between my husband and my daughter, consequently my daughter gets very frustrated and angry and spends as much time away from home as she possibly can and I dont blame her.

    I will ask my daughter if she would be interested in taking part and let you know.

    With regards :)
     

Share This Page

  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.
  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.