I am living with dementia. I am married and my wife is my carer. My worry is it will become too much for her.
I am also certified because I know my fate.
I am also certified because I know my fate.
Hi, yes I think you're right this is a very difficult disease to come to terms with and discuss openly from any perspective - perhaps something we need to change as a society. I'm glad you shared your thoughts on this. My Mum has had a rough year with dementia and knowing what is helpful to say is hard, I'm glad she shared some of her feelings with me ?A worry of mine too. My Alzheimer's is at an early stage but even so I have my 'moments'. i have addressed all I can in my poa documents and advance directive statements, plus a DNR. But I still worry. My husbands health is not good and physically I am am the stronger one.
Whilst I have grave concerns for all those in a caring role, there is precious little said about how we (as P'sWD) feel about being aware of losing our personalities and independence as time goes on. We too have a living bereavement as we 'lose' ourselves. I think this is due to many denying there is a problem and getting diagnosed later than would often be useful. A particular bee in my bonnet!