1. Expert Q&A: Protecting a person with dementia from financial abuse - Weds 26 June, 3:30-4:30 pm

    Financial abuse can have serious consequences for a person with dementia. Find out how to protect a person with dementia from financial abuse.

    Sam, our Knowledge Officer (Legal and Welfare Rights) is our expert on this topic. She will be here to answer your questions on Wednesday 26 June between 3:30 - 4:30 pm.

    You can either post questions >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll answer as many as we can on the day.

  1. Karen Nash

    Karen Nash Registered User

    Mar 13, 2006
    2
    Surrey
    My Dad has just been diagnosed with dementia. At 60 he is quite young although I know it is sadly not uncommon.

    The family feel that now the dagnosis has been made the doctor's etc have just left us to it. I have encouraged both of my parents to get involved in the support groups which they are now doing.

    I have always had the opionion that you should live every day to the fullest but my parents always put their lives on hold to bring up us kids thinking that they could enjoy themselves in their retirement and here they are with a very dim outlook for the coming years, how do you deal with that?

    We have thought about seeking consultation at Harley Street or similar just to be sure that the diagnosios is correct and to see if threre is medication that can help, anyone have any suggestions/comments?

    Would love to hear from anyone.

    Karen
     
  2. anna76

    anna76 Registered User

    Jan 30, 2006
    7
    Hampshire
    You're not alone

    Hi Karen,

    sorry to hear your news, but welcome to TP - we're all here for you.

    I'm also sorry to hear that you feel abandoned by the doctors - there is medical treatment available for your Dad. Did he receive a scan to confirm his diagnosis? Or a referral to a memory clinic or similar specialist team? If not, I feel you should start with asking for such a referral. This will clarify things and allow you to recive the appropriate treatment.

    Support groups are wonderful - and much needed. Have you thought about going aswell?

    "I have always had the opionion that you should live every day to the fullest" - and so you should!! Their lives haven't ended becuase they've been given this label, and there is still much to be enjoyed. Take photos, keep diaries, put together a Life Story book for your Dad, which may come in useful later on for all of you.

    Hope this has been useful. Take care, Karen, hope you post again soon x ;)
     
  3. wendy43uk

    wendy43uk Registered User

    Dec 22, 2005
    64
    sheffield
    karan

    this is a bad time for the famley just now we all cried when john was told and like uou it was hard for us to come to terms with go back to the gp and ask for arecept john took this for 2 years it helped him and a lot of other people its 2years since hohn was dienosed he takes ebixa now wich is helping him john is 60 and its young to have alz hope this helps live each day dont think about next week thats what i was told and it stopped me crying so much
     
  4. connie

    connie Registered User

    Mar 7, 2004
    9,519
    Frinton-on-Sea
    Dear Karen, welcome to TP. It is a blow to all when dementia is diagnosed, so mum and dad must be encouraged to live life to its fullest extent.

    Tomorrow is another day, and whatever will happen cannot be altered, but they still can do today what they did last week, and so it will go on.

    My Lionel was the same age as your dad when he was diagnosed, and we had a fun packed two years (O.K. there were hiccups) before we thought of winding down. Just go with the flow, whilst you can.

    Connie
     
  5. Karen Nash

    Karen Nash Registered User

    Mar 13, 2006
    2
    Surrey
    Thank you...

    ..for your replies and comments/suggestions.

    I feel so much better just knowing that there are prople on the same boat. I am going to encourage my parents, especially my Mum to register as just getting things of your chest really helps.

    I think that the next step for us is to see a decent specialist who can offer some suggestions with regards to medication. Dad did try something to help his memory, but it made him so poorly. Not sure what it was.

    Has anyone found an 'alternative medicine' which helps make the 'bad days' better?

    Best wishes to all.

    Karen
     
  6. Amy

    Amy Registered User

    Jan 4, 2006
    3,453
    Alcohol , friends , and humour!
    Amy ;)
     
  7. connie

    connie Registered User

    Mar 7, 2004
    9,519
    Frinton-on-Sea
    Love the reply Amy, I'll second that.

    Connie
     
  8. Norman

    Norman Registered User

    Oct 9, 2003
    4,348
    Birmingham Hades
    Hi Karen
    I tried every alternate treatment I could think of when my wife was first diagnosed AD.
    None worked.
    There is only one course to take ,start with the GP and then a referal to a consultant.
    The tests, a scan should all drop into place then and hopefully medication will be prescribed to help the condition.
    Have you looked at the fact sheets?
    Try http://www.alzheimers.org.uk/How_is_dementia_diagnosed/Diagnosis_process/info_diagnosis.htm
    and
    http://www.alzheimers.org.uk/After_diagnosis/Getting_support/info_healthprofessionals.htm.
    Hope this is helpful
    Norman
     
  9. dmc

    dmc Registered User

    Mar 13, 2006
    1,157
    hello

    hi
    just wanted to say my mum has just been diagnosed with dementia so i know exactly how your feeling untill i found this site yesterday i was beginning to think we were the only family trying to cope, like your dad my mum is a very young 64 and untill two years ago were enjoying retirement and a life of their own when she suddenly had a heart attack and suffered brain damage due to lack of oxygen they told us she wouldnt live but even to the doctors amazement she recovered even though she had short term memory loss. her health began to go down hill in september and she was diagnosed with a very progressive form of dementia similar to cjd, we have her home now and were finding even the simplest of tasks hard to cope with.
    i just wanted to wish you all the best with whatever you future holds and grab all the help you can if its offered good luck!
     

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