1. Expert Q&A: Benefits - Weds 23 October, 3-4pm

    Our next expert Q&A will be on the topic of benefits. It will be hosted by Lauren from our Knowledge Services team. She'll be answering your questions on Wednesday 23 October between 3-4pm.

    You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.

  1. lford1953

    lford1953 Registered User

    Jan 18, 2015
    Her problem started last summer. She still does normal household activities well, and her memory isn't much worse than a normal 64 year old. The problem is she see's extra dogs that magically appear & disappear. And her deceased Mom & Dad visit all the time. That's it. We went to her Gp she did a CT scan & a couple of blood tests. She referred us to a Neauroglist. He talked to her for just 10 minutes and ordered a battery of test including an MRI saying the ct scan was useless. Why can't doctors try meds instead of wasting time & money on useless tests?
  2. Onlyme

    Onlyme Registered User

    Apr 5, 2010
    Hello and welcome to talking point.

    The trouble is that some drugs can do more harm than good if given to someone with another variant of dementia. The Dr have to scan and see exactly what they are dealing with to get the medication right.
  3. jenniferpa

    jenniferpa Volunteer Moderator

    Jun 27, 2006
    I do agree with Onlyme: many of the drugs used to ameliorate the symptoms of one type of dementia can be actively harmful for a person with another type. I understand that you want speed in this situation, but it does sound as if you are fortunate to have been referred to a specialist who is prepared to take the time and run the tests to ensure that, as much as possible, there is an accurate diagnosis before prescribing.

    And I'm moving your post and my and Onlyme's responses to your own thread as I think you will get more responses that way.
  4. LYN T

    LYN T Registered User

    Aug 30, 2012
    Brixham Devon
    Welcome to TP Iford.

    I agree with the others; a specialist needs to examine all of the physical and mental health problems before a diagnosis can be made. When my Husband first became ill he was given a quick diagnosis of anxiety:eek: He was given a cocktail of meds which probably didn't help him. I imagine that you feel things are not going quickly enough but the fact the Neurologist has asked for a MRI scan is a step in the right direction.

    Take care

    Lyn T
  5. stanleypj

    stanleypj Registered User

    Dec 8, 2011
    North West
    I agree with the other responses. There are many different conditions that could be responsible for the symptoms your wife has. The investigations she is having are preferable to the snap judgements, unsupported by much evidence, that are sometimes reported on TP. My wife's diagnosis took 12 years and I'm still not totally convinced that the medics really know what has caused her problems. Life goes on, whatever they decide, by the way.

    If I were you I would be investigating the drugs you are talking about. You'll find that, even if she is eventually prescribed drugs, they may not help at all and the side-effects can be significant.

    As you continue to read about other people's experiences on TP I'm sure you will find many suggestions about how you can help your wife to continue to cope with the problems she has.
  6. lford1953

    lford1953 Registered User

    Jan 18, 2015
    We decided to go ahead with the test. She had the MRi & is going to the neurologist next week for the other tests.
  7. truth24

    truth24 Registered User

    Oct 13, 2013
    North Somerset
    Will be thinking of you Iford.

    Sent from my GT-N5110
  8. Scarlett123

    Scarlett123 Registered User

    Apr 30, 2013
    Hoping you get some positive news. :)
  9. WIFE

    WIFE Registered User

    May 23, 2014
    Wishing you both well with the tests for your wife. Thinking of you.
  10. lford1953

    lford1953 Registered User

    Jan 18, 2015
    We have now had 2MRI's, blood tests, Aeeg, and blood flow test in the office. Thank god for medicare, under insurance I would have been out +$10,000. No results, the new neurologist is simple baffled? This week we are going in for a spinal tap. The doctor put her on SEROquel 25MG TABLET. Soon he doubled it, seems to help, but still tragic at times. And yes when I work late I'll come home to her having packed clothes,shoes, money, medicine, etc. I call it ground hog day.
    Has anyone found anything to help this?

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