I am always being asked why I allow my life to be exposed to the public as a person with Dementia. It may seem Strange enough to many, but I now have a reason to fight for those less fortunate than myself.
I was lucky enough to be diagnosed with early onset Dementia.
I was then very lucky to have been offered the medication which many have now been refused.
After this I met and got involved with the Alzheimer's Society at Branch and then National Level.
I meet many influential people, members of the royal family, Medical Professors. Members of Parliament, the general public, and last but not least I meet members of Talking Point at events, and that is a wonderful experience.
I spend countless hours in the press radio, tv and the newspress, covering most topics where Dementia is concerned.
But the real reason I do all this is because I was fired up in the first instance, that I was lucky to be given the medication that others were refused and I was diagnosed early on. I feel that many are not being given there rightful chance, and in this society I think it is wrong.
But since my medication kicked in and my life came back, I have had a reason to get out of bed and fight, not just for me but for everyone else with this illness. The Society was good enough to give me a role in and it was here that I came across Talking Point. This role gives me the will power and the reason at present to get out of bed and fight this illness, and all that goes with it, and if there is one thing I really like seeing, it is when others realise that there can be a life with dementia, if they are lucky enough to be able to do it like me.
I have a wonderful wife who has a lot to put up with, especially when I am having a bad day, but she is always there for me and goes around on my travels with me as support.
Occassionally I get it in the neck because I am always on Talking Point or using the computer and she can not get anywhere near to the computer. But through both the Society and Talking Point we have been able to do many things that would have been unthinkable with out all the support and kindness we have had on our journeys.
It gives me a lot of pride talking about these two groups of people, many of whom are having torrid times looking after loved ones.
Yes it is hard being in the public domain at times, but this is the real reason why I and many others around the country get involved like this. We have to raise the profile of those with dementia, remove the stigma and help others as much as we can while we can.
One day I will have to give all this up and someone else who has been lucky will follow me, and thats all we can hope for.
Best Wishes
Ken
I was lucky enough to be diagnosed with early onset Dementia.
I was then very lucky to have been offered the medication which many have now been refused.
After this I met and got involved with the Alzheimer's Society at Branch and then National Level.
I meet many influential people, members of the royal family, Medical Professors. Members of Parliament, the general public, and last but not least I meet members of Talking Point at events, and that is a wonderful experience.
I spend countless hours in the press radio, tv and the newspress, covering most topics where Dementia is concerned.
But the real reason I do all this is because I was fired up in the first instance, that I was lucky to be given the medication that others were refused and I was diagnosed early on. I feel that many are not being given there rightful chance, and in this society I think it is wrong.
But since my medication kicked in and my life came back, I have had a reason to get out of bed and fight, not just for me but for everyone else with this illness. The Society was good enough to give me a role in and it was here that I came across Talking Point. This role gives me the will power and the reason at present to get out of bed and fight this illness, and all that goes with it, and if there is one thing I really like seeing, it is when others realise that there can be a life with dementia, if they are lucky enough to be able to do it like me.
I have a wonderful wife who has a lot to put up with, especially when I am having a bad day, but she is always there for me and goes around on my travels with me as support.
Occassionally I get it in the neck because I am always on Talking Point or using the computer and she can not get anywhere near to the computer. But through both the Society and Talking Point we have been able to do many things that would have been unthinkable with out all the support and kindness we have had on our journeys.
It gives me a lot of pride talking about these two groups of people, many of whom are having torrid times looking after loved ones.
Yes it is hard being in the public domain at times, but this is the real reason why I and many others around the country get involved like this. We have to raise the profile of those with dementia, remove the stigma and help others as much as we can while we can.
One day I will have to give all this up and someone else who has been lucky will follow me, and thats all we can hope for.
Best Wishes
Ken
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