This will probably sound like a selfish post, but its the truth.
I am married to a PWD.
I am younger, 60, they are 70.
They are still mobile, but incontinent, not motivated, etc. etc.
I used to have a relationship that was:
-Emotional
-Intellectual
-Social
-Physical
All that has gone.
I am still young enough to have the potential for a fulfilling life, but my liberty is restricted due to caring for my PWD.
What do I do?
Stay at home and care for my PWD for however many years before they need a home, all the time resenting and not accepting my loss of liberty.
Family have suggested getting in more home care, but that only supports my PWD. It has to be arranged and timetabled, there is no spontaneity, and so what if someone comes in for 3 hours on a Saturday afternoon, my life needs more than that to be fulfilling.
I can see that my PWD is not yet at the crisis stage that requires a residential or care home.
But does the criteria for a home have to be based solely on the PWD?
I am at crisis, my mental and physical health is deteriorating.
Should the question about when to put a person in a home take a holistic view of the how the PWD+the Carer+the family, and not just focus on the PWD? I would say yes.
Sorry, this seems a bit of a rant.
Thank you.
I am married to a PWD.
I am younger, 60, they are 70.
They are still mobile, but incontinent, not motivated, etc. etc.
I used to have a relationship that was:
-Emotional
-Intellectual
-Social
-Physical
All that has gone.
I am still young enough to have the potential for a fulfilling life, but my liberty is restricted due to caring for my PWD.
What do I do?
Stay at home and care for my PWD for however many years before they need a home, all the time resenting and not accepting my loss of liberty.
Family have suggested getting in more home care, but that only supports my PWD. It has to be arranged and timetabled, there is no spontaneity, and so what if someone comes in for 3 hours on a Saturday afternoon, my life needs more than that to be fulfilling.
I can see that my PWD is not yet at the crisis stage that requires a residential or care home.
But does the criteria for a home have to be based solely on the PWD?
I am at crisis, my mental and physical health is deteriorating.
Should the question about when to put a person in a home take a holistic view of the how the PWD+the Carer+the family, and not just focus on the PWD? I would say yes.
Sorry, this seems a bit of a rant.
Thank you.