When is it the right time to move Mum into care

Miss Elli

Registered User
Apr 9, 2020
81
0
Just hoping that so many people on this forum would have experience of this and may be able to help.

Mum's Vascular Dementia / Alyzheimers is now very pronounced and as she lives on her own we are becoming increasingly concerned about her health and wellbeing. I am coming around to the thought that Mum may be at a stage where living in a care facility would be better for her on so many levels, it will keep her safe, ensure she eats well, she will be able to socialise which will be so beneficial for her brain function, but I'm concerned about pushing for this too soon, or if we do it and Mum thrives I'll wish that we'd done it much sooner - I feel I'm damned if I do and damned if I don't.

Mum is generally very physically fit but her cognitive function is now very poor and she's recently had a great shock to her daily routine with the loss of her elderly dog, which has created a bit of a crisis, leading to talk of 'wanting to sleep and not wake up' and 'I need locking up in a hospital', lots of red flags being raised. Her appetite seems to be dwindling rapidly and her confusion is increasing, she's wandering in her village looking for either me ( I live 40 mins away) or the dog, phoning us in the middle of the night in a panic as she can't find her dog, knocking on neighbours doors, not dressed appropriately for the weather - you all know how it is.

Her kitchen facilities are down to a kettle, she can't read a book, doesn't put the TV on, won't listen to the radio and it's looking like such a sad, lonely isolated life and I could sit and cry sometimes when I watch her on camera.

Mum unfortunately last year absolutely refused any help from carers, we had to eventually cancel the care package we had in place and Mum is totally reliant on me, but I work full time, have been taking a day off weekly to go over and at the weekends but I'm constantly worrying that we aren't able to give to Mum what she needs.

FYI - we have a new needs assessment booked in with a social worker for next week - do I push to at least start the ball rolling to place Mum into care (she would be self funding with her home), even if it's not an immediate plan but something there for when we make a final decision? Not sure how to approach it with them as all conversations so far are pushing me to try a care package at home again.

Any advice?
 

lemonbalm

Registered User
May 21, 2018
1,799
0
Hello @Miss Elli

It sounds as though it is time to start looking for residential care for your mum. I would suggest you take a look at the link below, where you can search for potential places using various criteria. There is also some very useful information at the bottom of the main page of that website regarding types of care, finding a care home and so on. Perhaps contact a few and have a chat with the managers, even if you are not yet quite ready:

 

canary

Registered User
Feb 25, 2014
25,078
0
South coast
This really does sound like she needs a care home. The things she is doing (wandering, knocking on neighbours doors) are not safe and it sounds like she is neglecting herself as well.

Mum was at a similar level when she moved into her care home.
I would definitely start looking for a care home.
 

silkiest

Registered User
Feb 9, 2017
869
0
Hi @Miss Elli, Social services do usually expect a care package at home to have been tried initially if they may eventually be involved in the finance of residential care. If her money is likely to run out it is wise to have social services on board, but if you are confident her finances will outlast her you can arrange what you consider best. I would remind them what happened before and get a firm plan as to what will happen if she again stops the carers.
 

Miss Elli

Registered User
Apr 9, 2020
81
0
Hello @Miss Elli

It sounds as though it is time to start looking for residential care for your mum. I would suggest you take a look at the link below, where you can search for potential places using various criteria. There is also some very useful information at the bottom of the main page of that website regarding types of care, finding a care home and so on. Perhaps contact a few and have a chat with the managers, even if you are not yet quite ready:

Thank you for the link I'll look read and research, I have been talking to a couple of local homes with a view to Mum being close enough for a daily visit from me (when guidelines allow), unfortunately the one I really liked the sound of had an open door policy which is an absolute no, no.
 

mariannew

New member
Mar 25, 2021
1
0
This is such a tricky decision, but does sound as if you need to look at a care home. We never make this decision quickly enough in my experience, even though it is challenging. Very much appreciate what a big decision it is. I would recommend talking to anyone you know who has experience of moving someone into care, as their insights will be helpful. Another idea to help your mum get used to the idea is to see if she could do a brief respite stay - hopefully you could persuade her that it is more of a holiday than anything else. Respite stays in homes are a bit tricky at the moment because most homes are still requiring people to isolate for a while even if they have been vaccinated, but equally homes are offering the option of relatives becoming "essential care givers" which allows you to come in each day and spend time with her. Don't feel you have to be pushed into the care at home option, it sounds like you have the funding in place to go straight for residential care - the care home should carry out a financial assessment so you could ask for that to get comfort on that point.
 

Miss Elli

Registered User
Apr 9, 2020
81
0
This really does sound like she needs a care home. The things she is doing (wandering, knocking on neighbours doors) are not safe and it sounds like she is neglecting herself as well.

Mum was at a similar level when she moved into her care home.
I would definitely start looking for a care home.
Thank you, it's good to hear other people thinking that may be the time is right. I just wish someone would make the decision for me - her GP assessed her 3 wks ago and asked me what my plan was, my answer was I don't know, help me, tell me what to do and of course they can't.
 

Miss Elli

Registered User
Apr 9, 2020
81
0
Hi @Miss Elli, Social services do usually expect a care package at home to have been tried initially if they may eventually be involved in the finance of residential care. If her money is likely to run out it is wise to have social services on board, but if you are confident her finances will outlast her you can arrange what you consider best. I would remind them what happened before and get a firm plan as to what will happen if she again stops the carers.
In the conversations I've had so far I have made a point of reminding them of what happened before and frankly even if Mum had been OK with the carers the level of interaction from some of them was little to none, which was really upsetting to watch (on camera) - unfortunately the some of the carers seems to have little or no understanding of dementia, or even the basics of dealing with the elderly. Adult Social Care are pushing me to decide on employing our own carer, but I tried that last time when it was clear the package wasn't working and I found a self employed carer but because they didn't tick certain boxes I was told I couldn't transfer the package funds - I found the whole process really frustrating, annoying, worrying and upsetting. Though Mum owns her own home I'm guessing with the cost of care homes at some point the funds will run out as Mum is actually very fit for 85 other than the obvious brain function struggle.
 

Weasell

Registered User
Oct 21, 2019
1,778
0
I think she needs a care home.
Is she safe at night?
what if she wanders at night?
As carers we all suffer from guilt, you don’t need that one !
carehome.co. uk is good.
Also I have a ‘joy for life cat’ for mum.
They do dogs too
Have a look on eBay or Amazon
 

Miss Elli

Registered User
Apr 9, 2020
81
0
I think she needs a care home.
Is she safe at night?
what if she wanders at night?
As carers we all suffer from guilt, you don’t need that one !
carehome.co. uk is good.
Also I have a ‘joy for life cat’ for mum.
They do dogs too
Have a look on eBay or Amazon
The worry of her wandering at night is always there, the Ring doorbell has caught her opening her front door @ 4am, luckily she hasn't left the house during the night yet, of course no care package in the home is going to protect her from that unless it was a live in and that's just not affordable to us. I've had a little look at the battery powered dogs and did wonder if it was worth a try, it may give Mum some comfort.
 

Miss Elli

Registered User
Apr 9, 2020
81
0
This is such a tricky decision, but does sound as if you need to look at a care home. We never make this decision quickly enough in my experience, even though it is challenging. Very much appreciate what a big decision it is. I would recommend talking to anyone you know who has experience of moving someone into care, as their insights will be helpful. Another idea to help your mum get used to the idea is to see if she could do a brief respite stay - hopefully you could persuade her that it is more of a holiday than anything else. Respite stays in homes are a bit tricky at the moment because most homes are still requiring people to isolate for a while even if they have been vaccinated, but equally homes are offering the option of relatives becoming "essential care givers" which allows you to come in each day and spend time with her. Don't feel you have to be pushed into the care at home option, it sounds like you have the funding in place to go straight for residential care - the care home should carry out a financial assessment so you could ask for that to get comfort on that point.
Didn't know about essential care givers - I'll look into that, thank you. Moving Mum while the present guidelines are in place is a huge concern because of the isolation guidelines for homes, that would be such a struggle and so confusing for someone with dementia, I was told even with both vaccines and a neg covid test isolation would still be required ... I was hoping if we go down the care home route we can delay until restrictions are lifted even more. In the meantime we can only hope she stays safe as I wouldn't want it to be an emergency decision.
 

Sarasa

Volunteer Host
Apr 13, 2018
7,278
0
Nottinghamshire
Hi @Miss Elli your mother sounds rather like mine. Mum was in her late eighties when things really began to unravel. I'd tried a few times to get her to agree to having carers in, but she flatly refused. She too was extremely fit and went out at least once a day for a walk and coffee and scone at her local Marks and Spencer café. I lived two trains and a bus away and went over twice a week. By the end she was either forgetting I was coming over even though I phoned before I set off, or thought I'd forgotten as she'd lost all sense of time and would go out. I would be rushing up and down her high street tracking her down. The final straw, after various incidents when she called the police as she thought the neighbours were stealing from her, was her going to the local pub to drink with random men and bringing at least one of them back.
I moved mum to a care home near me, I had to use subterfuge to get her there, and to say she was unhappy at first was an understatement. However I knew she was safe and well cared for. When looking for homes you are going to need ones with a dementia unit that is secure. I felt horrible about doing that to mum, but she really didn't have the sense to go out on her own anymore. The site @Weasell mentioned is www.carehomes.co.uk. It's a useful place to start to look for a suitable home.
 

Banjomansmate

Registered User
Jan 13, 2019
5,463
0
Dorset
The longer you leave it the more chance there is of a crisis happening, with your Mum possibly ending up in hospital. I think you need to take the bull by the horns ( also known as pulling your big girl pants on ;)) and start looking seriously for a care home for your Mum. You are one of several people posting here who say they will wait until Covid precautions are lessening before thinking of organising residential care for their loved one. I suspect care homes will be extra cautious for a long time yet and also that there are hundreds more relatives out there who are thinking the same way, so that’s another reason to get things under way a.s.a.p. Your Mum is not going to improve if you wait any longer.
 

Weasell

Registered User
Oct 21, 2019
1,778
0
Hi @Miss Elli your mother sounds rather like mine. Mum was in her late eighties when things really began to unravel. I'd tried a few times to get her to agree to having carers in, but she flatly refused. She too was extremely fit and went out at least once a day for a walk and coffee and scone at her local Marks and Spencer café. I lived two trains and a bus away and went over twice a week. By the end she was either forgetting I was coming over even though I phoned before I set off, or thought I'd forgotten as she'd lost all sense of time and would go out. I would be rushing up and down her high street tracking her down. The final straw, after various incidents when she called the police as she thought the neighbours were stealing from her, was her going to the local pub to drink with random men and bringing at least one of them back.
I moved mum to a care home near me, I had to use subterfuge to get her there, and to say she was unhappy at first was an understatement. However I knew she was safe and well cared for. When looking for homes you are going to need ones with a dementia unit that is secure. I felt horrible about doing that to mum, but she really didn't have the sense to go out on her own anymore. The site @Weasell mentioned is www.carehomes.co.uk. It's a useful place to start to look for a suitable home.
Thank you!
one day I will get the link right !
 

Miss Elli

Registered User
Apr 9, 2020
81
0
The longer you leave it the more chance there is of a crisis happening, with your Mum possibly ending up in hospital. I think you need to take the bull by the horns ( also known as pulling your big girl pants on ;)) and start looking seriously for a care home for your Mum. You are one of several people posting here who say they will wait until Covid precautions are lessening before thinking of organising residential care for their loved one. I suspect care homes will be extra cautious for a long time yet and also that there are hundreds more relatives out there who are thinking the same way, so that’s another reason to get things under way a.s.a.p. Your Mum is not going to improve if you wait any longer.
Thank you, very fair points raised there. Looking for my big girl pants now.