Update. Had meeting earlier with Consultant at Dad's nursing home. (Dad getting discharged today, literally waiting for ambulance back to NH as i write!) She asked our thoughts if the aspiration pneumonia happened again what would we want and said that she had her opinion. I was very very very shocked to find that her opinion was the same as ours. Not to be sent the hospital again and not to have Iv fluids or antibiotics. She also said that if his lungs fill with fluid again she said that they can give medication to help with breathing. I asked was this to start of end of life and she no not initially but if it doesn't help then those drugs will be prescribed 'just in case' . I just can't believe we're here. So unbelievably sad. It's my parents 50th anniversary 20/8 and i wonder if they will get there. Weirdly Mum said that he won't die till November, don't know why.
I feel guilty. It is the outcome I hoped for and it's a shell of the former man, not my Dad, he died in November 2015 when he was sectioned. I know that this is for the best, but still feel rubbish. I have a 3 year old and 22 month old they keep you busy but you just can't switch off. Funny saying that, a Pwd has done just that.
Hoping he is back at the home later when kids in bed, but I have no doubt that he will be completely distressed or asleep from being distressed. But just being able to see him and seeing him comfortable makes me feel OK, and I won't have that soon. Its just awful.