Stanley, I'm also glad that your Sue is less tormented.
Thanks Lyn.
Stanley, I'm also glad that your Sue is less tormented.
My Dad was diagnosed 4 years ago.
He is 75 and as healthy as a horse.
Very active his entire life and has been the light of my son's life since he's been form.
But the past few months I have noticed his train of thought is always interrupted, he cannot find the words for common items etc.
I wonder what he feels.
Is he mad at the world, scared, does he know what is to come?
Should I ask him and talk to him about the disease or would that be like rubbing salt into the wound?
I am so mad at this dreadful degrading disease.
To take a healthy active man and turn him into a dependant aging person is just so unfair and so difficult to watch happen.
You would think at this day and age there would be a cure or at least better meds available to stop the progression better than there are now.
Sorry I need to vent. I am just so angry.
For me there are good days and bad days. The most difficult thing for those around me is that at the time I don't know I'm having a bad spell; then the fog in my mind clears and it all becomes so clear to me.
John
For me, I feel shattered. At first when I could not remember my address, I was scared. Then, when I would say "good morning" to the same people (they get annoyed and tell me I've already said 'good morning), I would feel ashamed.
When I wear my clothes the wrong way, I fill humiliated. When I can't connect "if and then logic" scenarios I feel alarmed. When I look at my students faces and can not remember their names, I feel inept. When I am home alone in my bed, I feel at peace and safe but worry about next year and the next year and how long I can work and live in my apartment. When I am at the store I feel like it's too big and I am too small (and there is nothing small about me).
When I try to watch tv or movies, I lose track and interest. When I cook, I have to sit because it takes too long now.
I feel happy when I get responses on TP.
in a very clear moment while out enjoying a walk yesterday, I came up with words that seem to me to sum up what some of the frustration may be. I look out of my eyes and see what I perceive as being the old me, the real me, the capable me. others see the me now, older, with dementia and often struggling. because I cannot accept there is a different me,I get really angry that I cannot do what I think/know I should be able to do. blaming some invisible disease is not an option inside me.
now that I see this jumble of words today, I wish that I could have back the clear moment from yesterday when I am sure it made better sense. maybe yesterday was the illusion and non of it ever makes any sense
wayne
Some days I feel as though things are slowly slipping out of my grasp
other days I feel fairly OK
Some days my head feels as though I am wading through liquid concrete
other days like strolling through ready brek!
I read the book Still Alice and found that really helpful I felt less frightened
Also Elizabeth is missing is a great insight too
No 2 dementia sufferers are alike.
You could try asking him how it feels I didnt mind being asked but he may or maynot be pleased!