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Don't we all. So tragic to watch. Feel for you and know what it is like. GwynethMy Dad was diagnosed 4 years ago.
He is 75 and as healthy as a horse.
Very active his entire life and has been the light of my son's life since he's been form.
But the past few months I have noticed his train of thought is always interrupted, he cannot find the words for common items etc.
I wonder what he feels.
Is he mad at the world, scared, does he know what is to come?
Should I ask him and talk to him about the disease or would that be like rubbing salt into the wound?
I am so mad at this dreadful degrading disease.
To take a healthy active man and turn him into a dependant aging person is just so unfair and so difficult to watch happen.
You would think at this day and age there would be a cure or at least better meds available to stop the progression better than there are now.
Sorry I need to vent. I am just so angry.
That's the same with my John , thank you for sharingFor me there are good days and bad days. The most difficult thing for those around me is that at the time I don't know I'm having a bad spell; then the fog in my mind clears and it all becomes so clear to me.
Thanks for sharing with us.For me, I feel shattered. At first when I could not remember my address, I was scared. Then, when I would say "good morning" to the same people (they get annoyed and tell me I've already said 'good morning), I would feel ashamed.
When I wear my clothes the wrong way, I fill humiliated. When I can't connect "if and then logic" scenarios I feel alarmed. When I look at my students faces and can not remember their names, I feel inept. When I am home alone in my bed, I feel at peace and safe but worry about next year and the next year and how long I can work and live in my apartment. When I am at the store I feel like it's too big and I am too small (and there is nothing small about me).
When I try to watch tv or movies, I lose track and interest. When I cook, I have to sit because it takes too long now.
I feel happy when I get responses on TP.
You make crystal clear sense to me, Chewtor. You are a comfort for me. My relief is immense when I can read these words of yours and say, "I understand that".in a very clear moment while out enjoying a walk yesterday, I came up with words that seem to me to sum up what some of the frustration may be. I look out of my eyes and see what I perceive as being the old me, the real me, the capable me. others see the me now, older, with dementia and often struggling. because I cannot accept there is a different me,I get really angry that I cannot do what I think/know I should be able to do. blaming some invisible disease is not an option inside me.waynenow that I see this jumble of words today, I wish that I could have back the clear moment from yesterday when I am sure it made better sense. maybe yesterday was the illusion and non of it ever makes any sense
Hi Creative Sarah. Thank you so much for sharing. it is so helpful for everyone. I hope it helps you too. Sometimes my Mum says, I feel like I'm losing my life (which makes me want to cry!) We never talk about alzheimers though- only 'memory problems'.Some days I feel as though things are slowly slipping out of my grasp
other days I feel fairly OK
Some days my head feels as though I am wading through liquid concrete
other days like strolling through ready brek!
I read the book Still Alice and found that really helpful I felt less frightened
Also Elizabeth is missing is a great insight too
No 2 dementia sufferers are alike.
You could try asking him how it feels I didnt mind being asked but he may or maynot be pleased!