Hi Clare. Iam so sorry to hear about your mum...I know exactly what you are going through. My mum is up and down and last week I thought her life was ending. She has picked up this week...but I hate to say this...Ive seen her do this before...and then she gets yet another infection. Iam now just taking each day at a time with her.. its all I can do. In January I lost my aunt who was my mums closest sister. The way you describe what you are going through...its exactly what happened to her. And like you I was going up the hospital some days for hours...and then when I could. I think all in all we were called back to the hospital 3 times..but she picked up for a little while (maybe for a day) then deterioriated again. This waiting for her to die is a really awful experience in my opinion...but like others have said I have heard people saying 'strange and uplifting' stories when they were waiting for a loved one to pass away. Please be strong Clare. My thoughts are with you... and I will say a prayer for you. ...remember soon your lovely mum will be at peace...with all her loved ones...and free from this awful disease. God bless....Love PP xx