Today is exactly one year since Peter's diagnosis with FTD. At that time, his behaviour was considered increasingly strange and his concentration was severely reduced. Other than that, the diagnosis came out of the blue and wasn't quite believable.
Earlier today I had a 6 month review with his key worker at the day centre he attends one day a week. We talked at length about all aspects of his behaviour and abilities and it is so, so obvious to me what a huge decline there has been in just 12 months.
He is now verbally - and occassionaly physically - aggressive. He doesn't interact with anybody, can't hold a conversation, doesn't watch TV, read a book or do anything to entertain himself. He has no interest in us as a family, ignores the children, but demands attention like a child. He paces all day and goes out walking for miles every evening until collapsing into bed.
His medications have been altered many times so i feel as if he is just a guinea pig being told to "try this one for a few weeks" or "lets see how this helps". I agreed at todays review that Peter really needs re assessing. The care worker thinks he is a ticking bomb waiting to explode and I agree with that. People would probably take notice then!! She is going to talk to our CPN on my behalf to stress just how difficult he is to live with now. All this because she had time to sit with me for 2 hours and let ME talk about how it is in reality. There is talk of possibly sectioning him if he won't agree willingly to re assessment.
I just feel so down today and don't know how we've got to this state in such a short time.
On top of all this, I'm trying to look at and choose a secondary school for my daughter. Such an important time in her life and absolutely no interest at all from her Dad.
No responses needed - I just needed to get this off my chest to someone and I know you will all understand. Got to put on my 'cheerful' face now as Peter due back from Day Centre in half hour. I really wish he was staying there for a week.
Mary-Ann
Earlier today I had a 6 month review with his key worker at the day centre he attends one day a week. We talked at length about all aspects of his behaviour and abilities and it is so, so obvious to me what a huge decline there has been in just 12 months.
He is now verbally - and occassionaly physically - aggressive. He doesn't interact with anybody, can't hold a conversation, doesn't watch TV, read a book or do anything to entertain himself. He has no interest in us as a family, ignores the children, but demands attention like a child. He paces all day and goes out walking for miles every evening until collapsing into bed.
His medications have been altered many times so i feel as if he is just a guinea pig being told to "try this one for a few weeks" or "lets see how this helps". I agreed at todays review that Peter really needs re assessing. The care worker thinks he is a ticking bomb waiting to explode and I agree with that. People would probably take notice then!! She is going to talk to our CPN on my behalf to stress just how difficult he is to live with now. All this because she had time to sit with me for 2 hours and let ME talk about how it is in reality. There is talk of possibly sectioning him if he won't agree willingly to re assessment.
I just feel so down today and don't know how we've got to this state in such a short time.
On top of all this, I'm trying to look at and choose a secondary school for my daughter. Such an important time in her life and absolutely no interest at all from her Dad.
No responses needed - I just needed to get this off my chest to someone and I know you will all understand. Got to put on my 'cheerful' face now as Peter due back from Day Centre in half hour. I really wish he was staying there for a week.
Mary-Ann