Oh I do agree. As I've mentioned before, I feel we are the Forgotten Sufferers and there seems to be a total lack of understanding about what we go through. The toll it takes on us is unbearable at times isn't it? Here's hoping for some much needed education about carers of our loved ones.
I fostered a lovely lad, James, we got him when he was 4 months old - he had cerebral palsy. As he got older he took a lot of 'getting ready' in the mornings - and I had 3 other children of my own including a baby. The Transport people from County wanted to send James' taxi for him at something stupid o'clock - about 7am I think it was, instead of 7.30am. ( we lived 30 miles from his school)
I argued with them and in the end spoke with the head manager - I extended a welcome to him of an overnight stay in my home, and for him to try to do what I had to do each morning, to get the family sorted for the day - I told him that if he was able to do it all and have James ready for 7.00am, I would gladly agree to the change of time.
He stepped back and the old time was kept !!!!!!
and I do not think that Carers today will ever get a better deal until some of these high flying politicians have to do what we do.
The only one I can think of was Angela Browning MP for Tiverton - I met her a few times - her son had autism - in the end she gave up her seat in the House of Commons to care for him.