We're short, we're sharp but we're out there
- Thread starter kindred
- Start date
OK, any newsagent will have it, but here is what I said:
Care in the Home
Sir, Rachel Sylvester's proposals for healthcare are to be applauded. One thing though is never raised. Yes, patients are on the whole better cared for at home. But this ignores the plight of those caring for loved ones with dementia. Sharing a home with a family member with severe dementia is like sharing a cell with a person who is unpredictable and often violent. Ask the police and ambulance services how often they are called out. Carers are treated as of secondary or no importance and their suffering is immense. I know - I was the sole carer for my husband, who has dementia and is now in a nursing home, for four years.
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C
Congratulations it’s a wonderful letter. Pithy and not a word wasted. And thanks so much @marionq for requesting the text. I tried to access the letter online and couldn’t so this means a lot to me.
Congratulations it’s a wonderful letter. Pithy and not a word wasted. And thanks so much @marionq for requesting the text. I tried to access the letter online and couldn’t so this means a lot to me.
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Thank YOU!! Thank you. It's the most hard-hitting thing I've seen about us carers. Needed to b said, and thank you. xx
Many thanks. I really wanted to break through the usual invisibility of us carers.
Because they know how much it would cost and no-one can afford it - so sweep it all under the carpet and pretend its not happening
Of course. But the human suffering is immense. I wish there was something else I could do.
Thank you. It is a marker in the sand, that's the important thing and when the green paper comes out, it can be referred to. It's creating a precedent of saying it like it is for carers. Thank you.
Hello Geraldine,
Thank you, it's a great letter and if anyone in power had any soul they should follow up on it, but of course they won't. It only becomes a problem when you acknowledge it. I think they see carers as expendable, we don't walk away, we just carry on and carry on because what else can you do.
It just makes me so mad, lip service is all you get but no constructive help, thank goodness we have TP to vent our feelings and at least you know how many of us are glad you got it out there.
Best Wishes
Kathy xxx
Thank you, it's a great letter and if anyone in power had any soul they should follow up on it, but of course they won't. It only becomes a problem when you acknowledge it. I think they see carers as expendable, we don't walk away, we just carry on and carry on because what else can you do.
It just makes me so mad, lip service is all you get but no constructive help, thank goodness we have TP to vent our feelings and at least you know how many of us are glad you got it out there.
Best Wishes
Kathy xxx
Thank you so much, Kathy and it's great to hear from you. I wanted to make a start in speaking about this as it is, not minimising it. No, I do agree, no constructive help. So very good to hear from you.
Gxx
