Do you know no one has ever asked how I am doing, so thank you Sophie, this is the problem, we feel so isolated, its like being in a bubble cut off from the real world, constantly grieving from the time of husbands diagnosis four years ago, I was 58 he was 60 although signs were there much earlier, you grieve for your old life, and accepting this new one is tough, solely we make every decision & take on the responsibility of everything, acceptance is the hardest thing, everyday I am learning on the job, its life, but not one that you ever imagined!
I think in someways "having to do everything" is actually harder than the physical caring. It's no longer an equal partnership & it's difficult to come to terms with the fact that if you don't arrange appointments, sort out workmen for repairs, chop sticks for the fire, get the car to the garage, etc etc, no one else will! I treasure the first 2 or 3 hours in the morning, when I can still go out, or do something around the house, leaving my husband in bed, as he doesn't get up until nearly lunchtime! (in fact, he would probably sleep the majority of the day, if i didn't wake him up)!