Hi @Rencat it seems like you have a lot more complications than most people have to deal with. I'm not in a position to give any advice but you mention a care home for your wife - is that something you would like to happen? Would that make your life easier or would you miss her to much - it's a difficult decision. Are Social Services providing any help for you? Someone posted on the site about independent social workers - maybe something to check on, also Admiral Nurses, if there is one in your area. You'll get it sorted - just so stressful that it all takes so much time and energy. Take care of yourself.Hi, I’ve been on the waiting list for counselling now for eleven months, all thanks to the cutbacks and I’ve already asked for a carers assessment, at the moment she’s down as my carer so that will need to change. I’m seeing my social worker this afternoon so will bring everything up then. I just can’t believe that they only gave me 15 hours a week for her, and one of those days she likes to go visit her 94 year old mum who lives in Doncaster so that takes up seven hours, I only just recently got a new social worker who was from a caring environment and she’s battled to get those hours increased.
One thing now is she’s started to soil herself and just not understanding where it’s come from even stating that someone’s put it there. I’m worried that because of the stroke I’ve had, I’ve only got the use of one arm so there’s no way I’ll be able to change a pad so that’s worrying me also, do you think that they’ll say she has to go into a home earlier because of it? Oh I just don’t know. I’m in a wheelchair having had to have my leg amputated in 2009 it was exactly a year later I had my stroke, both were avoidable and both I sued the hospital trust over. They admitted 38 counts of negligence the day before the court case @nd I was awarded considerable damages to make sure I’m cared for the rest of my life. That’s what makes the whole situation so heartbreaking she’s getting carers allowance for me when it’s I that should be getting it for her. I’ll also speak to my social worker today regarding respite care for me but I’ll have to take my carer along as there’s things physically that I just cannot do.