Hello Am59, Please continue to post on here, as it has been such a help to me. My husband (in his fifties) has been ill for 30 years with Aplastic Anaemia (wonderful haematologist cured and saved his life). He’s had a brain haemorrhage, has epilepsy, Multiple Sclerosis was diagnosed 23 years ago and he’s had a suspected mini-stroke and MS Dementia for 8 years approx. He has Optic Neuritis and Nystagmus. I care for him day and night, although he does visit a wonderful place for music therapy for 4 hours a week. I shower and dry him and care for his catheters etc. He requires constant care and attention and I have to do everything for him. I have pushed him in his wheelchair for many years, (Zimmer frame indoors). Last year I took him on our first cruise, the staff were wonderful. The scenery and fresh air was lovely. However, I now have Osteoarthritis, Carpal Tunnel Syndrome and Cervical Spondylosis affecting my neck and spine, so taking him out now is going to be very limited. He does get very “forgetful” and is constantly asking the same questions over and over again. All I can try and do, as we all do, is to do my very best. It can be lonely, but we have to remain positive. I wish you well.Hi, I'm a new member as my husband was only diagnosed with Parkinson's dementia in October 2019. He's in the mild stage they say but he's been doing odd things for a couple of years and has been diagnosed with Parkinson's for 9 years. I'm 60 and he's 73. When he was diagnosed I felt fear and despair although it wasn't a shock. I know it's selfish but I was resentful. I could see my 60's being one long round of hospital visits, frustration and care. It's like a one way street. I've lost my best friend. He doesn't have much empathy now so if he does something that upsets me he never says sorry. I know he can't help it. I see my friends booking holiday's, going out for meals, sharing good times. We went away for a few days in September and it was such hard work I vowed not to do it again. We sleep in separate rooms. I don't feel like his wife anymore (after 38 years of marriage). I feel like a carer. Sorry for having such a moan but it's like being on a ride that I didn't want to be on.