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Discussion in 'Welcome and how to use Dementia Talking Point' started by KatherineW, Jul 22, 2013.
Thank you - I'm glad I found this place.
Hi everyone, thanks for the add.
I am a carer to my father and hope to learn more over time with your support.
Evening Corriegirl, a warm welcome to Talking Point much support here as well as understanding, even smiles or a hug if needed.
Hi. I am a new member and am keen to increase my knowledge within the subject and learn from the experiences of others
I am a carer for my MIL along with my DH,BIL and my Mum!
MIL suffered a severe stroke last year which left her unable to really move anything apart from her right arm
She has since had severe memory problems/hallucinations which are getting worse and so I thought I would google support groups and have already found some great posts just by dipping in the forum here!
So here I will settle trying to see the wood for the trees through this awful minefield
Welcome to TP CrystalWand. You have come to a very supportive place.
Welcome to TP
Good to talk
Hello to you all. I have recently become a Carer for my partner's mum. She is 90 and has recently been diagnosed with Dementia and I am awaiting a full diagnosis. I am scared. A lovely independant woman is disappearing. Thank goodness you are all here to talk to. Thank you xxx
A year ago I moved in with my mum in her housing association home in Bicester to care for her as she has dementia. A brain scan was inconclusive but it could be Alzheimer's or vascular or a combination and she sees a specialist.
I will ask for more information on the appropriate forum.
Thanks to all of you for being here.
Welcome to TP Forester. You will get great support here. I doubt whether there's a TP member who has not been scared at some times during the journey.
Welcome to TP wachowt. You can be sure of a wealth of support and information on TP.
I Forgot that I Had signed into this site.
I had forgotten that I had already signed in here and didn't think of it now because I have a neuro appointment tomorrow and wanted to see what I needed to bring up tomorrow.
I thank all the people who responded to my original post and I never got back to. I can only say I forgot and I thank all of you so much.
I think it's been about 4 months since my last appointment and things are slowly getting away from me.
I am losing my short term memory and it's very difficult to follow anybody else's conversation.
My spelling is really awful and I couldn't remember how to spell whose or who's? Not sure.
I'm becoming more isolated and want to stay home every day with my husband who understands me.
The grocery store still remains my biggest hurdle and I don't know why.
On the phone, I sound like an idiot. I'm so lost when trying to set appointments up, that I finally just say I had a small stroke. It's easier than any other excuse.
I was never the best housekeeper, but not it's just horrible. I can't believe that I don't work and I still can't even clean up my own home.
Anyway, I will post tomorrow and I hope there's some good news. Maybe a clinical trial?
All my best to all of you,
Good luck with your appointment Tovah
Mum diagnosed with alzheimers/vascular dementia recently...
She is planning a Med cruise with one of her friends next year and another whopping 3 month cruise the following year - I don't know how well she will be or how able to manage the holidays. Her friend is disabled and has a carer so won't be able to look out for her too much. Is this all realistic? Also, does anyone have any travel insurance recommendations.
Welcome to TP
How is your mum dealing with different places now?
I guess she is OK when she is inside - just out and about she gets disorientated and worried about getting lost.
Then unfortunately it's likely she'll struggle on holiday.
Could you pay for a carer to accompany your mum? Or could you tell a love lie & say nobody will insure her?
I recently signed up for the NHS online newsletter about dementia, used the link for carer support & *ta-daaa* ...here I am
I'd been concerned about Mum's memory for a couple of years but no-one did anything until last year, & we had her Alzheimer's diagnosis in January.
Obviously, I'd heard the more popular bits & pieces about how Dementia affects people in so many ways (I have an interest in medical matters, but no connection..unless you count First Aid training ) but I have to admit that I was & still am, totally unprepared for attempting to cope with the reality.
It's like I've never moved away from home! I get the blame for all manner of things from moving her clothes to a different drawer to telling her it was Sunday because I didn't want to take her out, or that the lady sitting in her lounge was "someone from the council" when the truth was, a very dear friend I have known since my schooldays.
I look forward to getting to know you all & picking your brains for ways to keep hold of my sanity, while doing the very best I can for Mum.
I look forward to getting to know you all & picking your brains for ways to keep hold of my sanity, while doing the very best I can for Mum.[/QUOTE]
haha my ma blamed me for everything to the end!! She used to say to the carer "shhhhhhhh has SHE gone now" meaning me!!!! Drove me bonkers in the nicest possible way!
Great site here so welcome and there is a good starter with the compassionate communication link which is really helpful - even though i found it difficult!!
Here is an excellent article about compassionate communication:
I am new here but have been reading the forums for quite a while. Both my parents suffer from AD, and I am the sole carer. Mum is in an advanced stage, and dad in the very beginning. I probably won't contribute much here; everything I want to say usually has already been said much more elaborate, more concise, and wittier by someone else. Besides that, I am from Germany; many things around the professional services run a bit different here (and then, my English is not good, so please bear with me).
But I wanted to take the chance to thank everybody for their open and informative accounts and the countless good suggestions and advice. I take a lot of strength from reading all your reports especially in times of crisis – which seem to increase exponentially these days. Well.
Take care, Lin