Welcome to Talking Point! Find out more and say hello...

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karaokePete

Registered User
Jul 23, 2017
6,568
0
N Ireland
Hello you are welcome here and I hope you find the forum to be a friendly and supportive place.

I hope you have time to take a good look around the site as it is a goldmine for information. When I first joined I read old threads for information but then found the AS Publications list and the page where a post code search can be done to check for support services in ones own area. If you are interested in these, clicking the following links will take you there

https://www.alzheimers.org.uk/get-support/publications-factsheets-full-list

https://www.alzheimers.org.uk/find-support-near-you

You will see that there are Factsheets that will help with things like getting care needs assessments, deciding the level of care required and sorting out useful things like Wills, Power of Attorney etc., if any of that hasn't already been done.

Now that you have found us I hope you will keep posting as the membership has vast collective knowledge and experience.
 

Darra

New member
Mar 15, 2019
2
0
Hi my husband is 66 and has been totally blind since 2004. He now also has dementia which is starting to have a big impact. He has forgotten how to read braille, forgotten the alphabet and how to write and sign his name etc. He is very active, fit and healthy and doing things that seniors or elderly people do with dementia are not acceptable and frustrating to him. Any suggestions on how to get him to be able to continue to function as well as possible without visual clues would be extremely helpful especially in remembering how to use the toaster or microwave or other things would be great. Any hlep would be appreciated.
 

Labgirl

New member
Mar 16, 2019
1
0
Hi everyone!
My best friend is showing concerning signs of some sort of dementia.....I am trying to be helpful and we still have a lot of good times....my biggest issue right now is her confusion about times....we have a plan and I drive to get her to go and she is often not there.....this is despite checking in previous to leaving
How not to become frustrated??
 

nae sporran

Registered User
Oct 29, 2014
9,213
0
Bristol
Hi everyone!
My best friend is showing concerning signs of some sort of dementia.....I am trying to be helpful and we still have a lot of good times....my biggest issue right now is her confusion about times....we have a plan and I drive to get her to go and she is often not there.....this is despite checking in previous to leaving
How not to become frustrated??

Welcome to Talking Point Labgirl. I'm sorry your friend is having so many problems. There are other possible causes of memory loss and confusion, such as stress and vitamin B12 deficiency, so it's worth getting her to a GP for tests. https://www.alzheimers.org.uk/about-dementia/symptoms-and-diagnosis/worried-about-memory-problems and the subsequent link https://www.alzheimers.org.uk/about...concerned-about-someone-elses-memory-problems should help guide you and your friend. Good luck and keep in touch.
 

nellbelles

Volunteer Host
Nov 6, 2008
9,842
0
leicester
Hello @Labgirl a warm welcome from me as well
I agree there could be many reasons for the memory problems but I would think a visit to her GP should be your first port of call.
I hope now you have found us you will continue to post
 

peejay9

New member
Mar 11, 2019
3
0
So long as someone has POA you all should be fine, it just ensures people will talk to you..
Hope all goes well!
Thank you for the advice on POA.
If we require POA for mum now, is there advice available on how to obtain this given she has been diagnosed with vascular dementia with Alzheimer’s? Or it too late? Sorry if this is not correct platform for this type of question...
 

Louise7

Volunteer Host
Mar 25, 2016
4,785
0
A diagnosis of dementia doesn't mean that it is too late for a POA. The important thing is that the person has mental capacity, so that they understand what they are agreeing to / signing. You can explain in simple terms that the form is to ensure that someone can help them with finances or speak up for them in hospital. I would recommend getting both financial and health & welfare POA at the same time. Here's a factsheet that you might find useful: https://www.alzheimers.org.uk/get-support/legal-financial/lasting-power-attorney
 

Bueller

New member
Mar 19, 2019
1
0
Hi
I’m new here. My father in law has vascular dementia. His dementia has taken a grip of him very quickly since January and he makes absolutely no sense at all. He’s been in hospital and is now in an intermediate care unit currently being assessed to go into a care home. I’m finding the whole experience extremely distressing and hard to handle. He’s obviously unwell and it’s a real shame. Looking to find out more about how to cope here since I’m generally wanting to run for the hills rather than visit him. Thank you
 

canary

Registered User
Feb 25, 2014
25,049
0
South coast
Hello @Bueller and welcome to Talking Point.
Im sorry your FIL is so unwell, things can change rapidly with vascular dementia and he may also have some delerium. I hope the transfer to a care home goes smoothly. You may well find that the symptoms improve once he is settled in a care home.

Have a mooch around and if you have any specific questions, do feel free to start a new topic. There is a lot of wisdom and support on this forum.
 

nae sporran

Registered User
Oct 29, 2014
9,213
0
Bristol
Hello, I'm Katie. My husband has dementia and I'm very scared.

Welcome to TP Katie. You will find support and advice here, we all know how scary it can be and are going through similar battles. You don't say what form of dementia, but https://www.alzheimers.org.uk/about-dementia/types-dementia will give you some information if you need it. https://www.alzheimers.org.uk/find-support-near-you, if you put your postcode in the box will take you to local memory cafes, advocacy services and the like as will http://carers.org where you may find support groups run by carers in your area.
Sorry to bombard you with information, I hope you will keep posting and start your own thread once you've settled in.
 

Morriswife

New member
Mar 19, 2019
9
0
Hi, thanks for the add. It's great to feel as if me and my husband are in the same boat as other people. He is an only child who's mother lives 250 miles away. She has dementia but won't accept it and refuses any form of support. She has no comprehension of how vulnerable she is and has recently moved her 79 yr old boyfriend in!! They seem besotted with each other and he takes good care of her. We have power of attorney in place for finances, health and welfare and he insists on paying for everything so we have no worries on that score. If he wasn't there I doubt she would eat very much at all and getting her to drink is very difficult never mind take any form of medication. Sorry to go on but it does feel like an impossible situation that I'm sure many can relate to xx
 

Shedrech

Registered User
Dec 15, 2012
12,649
0
UK
hello @Morriswife
a warm welcome to TP
you are definitely amongst friends here, who all, sadly, understand and will offer support and suggestions anytime you want to post
 

Buteo

Registered User
Mar 20, 2019
83
0
Hello,
I've been looking at Talking Point for some time and have finally got round to joining.
My wife was diagnosed with early onset Alzheimer's disease in the summer of 2016. I've been her full time carer since before then as she had a long period of decline before diagnosis, a lot of it masked by her engaging and attractive personality. Despite being robust and healthy she needs a lot of support and can't be left on her own for more than a few minutes. Mostly I'm proud to look after my wife, but sometimes it feels like a life sentence, and I've always felt like I'm playing catchup with the disease.
 

karaokePete

Registered User
Jul 23, 2017
6,568
0
N Ireland
Hello @Buteo, welcome to TP. I hope you find the forum to be a friendly, informative and supportive place.

I understand your feelings as my wife was also diagnosed with early onset 2-3 years ago.

I hope you have time to take a good look around the site as it is a goldmine for information. When I first joined I read old threads for information but then found the AS Publications list and the page where a post code search can be done to check for support services in ones own area. If you are interested in these, clicking the following links will take you there

https://www.alzheimers.org.uk/get-support/publications-factsheets-full-list

https://www.alzheimers.org.uk/find-support-near-you

You will see that there are Factsheets that will help with things like getting care needs assessments, deciding the level of care required and sorting out useful things like Wills, Power of Attorney etc., if any of that hasn't already been done.

Now that you have found us I hope you will keep posting as the membership has vast collective knowledge and experience.
 

blu

Registered User
Mar 21, 2019
13
0
Hi. I'm new. My 93 year old grandma lives with me and my parents. I'm Grandma's primary caregiver and we suspect she has dementia that is worsening. So I'm here to learn more about it and get help on new problems that arise.
 

karaokePete

Registered User
Jul 23, 2017
6,568
0
N Ireland
Hello @blu, welcome to TP. I hope you find the forum to be a friendly, informative and supportive place.

If you wish to read up on the subject of dementia and dementia care you may find old threads informative and then look through the publications list that you can find with this link https://www.alzheimers.org.uk/get-support/publications-factsheets-full-list

If you are interested, you can do a post code search for local support services with the following link
https://www.alzheimers.org.uk/find-support-near-you

Now that you have found us I hope you will keep posting as the membership has vast collective knowledge and experience
 
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