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Welcome to Dementia Talking Point! Find out more and say hello.

SophieD

Administrator
Staff member
Mar 21, 2018
3,164
0
London
Welcome to Dementia Talking Point :)

If you have dementia, or care for someone who does, you're very welcome to join our community and get support from others. Find out more about how to join and say hi to our friendly community on this discussion!

Finding out more

If you've got questions about how to use Dementia Talking Point click on these links below.
  • You can find answers to frequently asked questions here.
  • Our Help videos will show you how to navigate the different areas of Dementia Talking Point.
  • We also have a Quick Guide explaining how to use Dementia Talking Point including logging in, posting, replying, checking private messages and searching.
  • Also we recommend having a read through our Guidelines which are some useful tips and things to remember when posting.

Connecting with others

Head over to our list of forums to find people who are in a similar situation, people at a similar stage of dementia or an information topic that interests you.

Here are some tips on how to post a reply or start your own discussion...

1. When you're in a forum, look for the blue "Post New Thread" or "Reply" buttons at the top or bottom of discussions


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2. To start a discussion, type a title, add your message and choose 'Create Thread'.


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3. To add a reply just add your message and choose "Reply"


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Any questions?



If you have any questions about using Dementia Talking Point, you can email us on talkingpoint@alzheimers.org.uk or Use our Contact Form - we're here to help.

Saying hello

This is our welcome thread - the place many members start. Our volunteer hosts and regular members are here to say hello to you and to welcome you to our community.

Why not tell us a little about your experience and how you'd like Dementia Talking Point to help you?

Whatever you're facing today, we hope you find our community to be helpful and supportive.

Sophie :)
 

Paulinemca

New member
Jul 23, 2020
7
0
Hi, I started a discussion and have had some replies but can't seem to respond to them. I get a message saying I need to have 10 posts. I've looked at the guidance and I can't see what I'm doing wrong. Advice would be much appreciated.
 

karaokePete

Registered User
Jul 23, 2017
6,030
0
N Ireland
Hi, I started a discussion and have had some replies but can't seem to respond to them. I get a message saying I need to have 10 posts. I've looked at the guidance and I can't see what I'm doing wrong. Advice would be much appreciated.
Just click the 'reply' box in the bottom RH corner of the post to which you want to reply. A dialogue box will open with the post and a space below in which you can type your comment.

Lastly hit the big blue 'post reply' box in the bottom RH corner and the job is done.
 

Pamsdaughter

New member
Apr 23, 2021
2
0
Hello! Im 51 and live in NW England. My mum is 76 and is experiencing signs of dementia. However she became extremely upset when this was brought up last year. My dad is doing a great job looking after her without explicitly referring to her increasing problems. He doesnt see the point of her getting a diagnosis. Any guidance from you guys very welcome! X
 

Grannie G

Volunteer Moderator
Apr 3, 2006
73,129
0
Kent
Hello @Pamsdaughter Welcome to Dementia Talking Point although I`m sure you would prefer not to be here.

Your dad is doing the right thing in not referring to your mother`s problems. However, there is quite a lot he can do behind the scenes in the best interests of both of them.

If your mum does have dementia, frightening as it may be to face, she will have a progressive illness. Today is as good as it gets.

When I was concerned about my husband I kept a short log, for about two weeks, of all the behaviours which caused me concern. I then made an appointment with our GP to discuss. Obviously, to observe confidentiality he listened but did not comment other than to offer to arrange a check up for my husband.

My husband was diabetic so it was quite acceptable. Your mum could be offered a well woman check up. Of course I`m aware of the restrictions caused by the pandemic but there could be a way round this if necessary.

The point of a diagnosis is to get your mum on record as likely to need help and support for the future. There is also medication which could be prescribed to make the symptoms more manageable.
 

Countryboy

Registered User
Mar 17, 2005
1,600
0
South West
Hi Sophie D you may remember me I’ve been a TP member since March 2005 and been involved with Alzheimer’s Society on a personal level { hence you have evidence of dementia history }

my question does Talking Point know the Number of members who actually have a dementia diagnoses and log on to T.P themselves I’m { not talking about carers } only those with dementia the reason for asking I use T.P myself and find it fairly easy not always but useable but I’ve been using computers since 1985

obviously if they can use the Computer they living well with the illness { 50% of my friends with No dementia couldn’t including my wife she wouldn’t have a clue }
 

Markt

New member
Apr 29, 2021
1
0
Thank you.

My mum has vascular dementia and lives in the Locks Heath area of Southampton.
I'd like to find memory cafes and other forms of entertainment/socialising around the area so if anyone has any information I'd be very grateful to receive it.

Thank you,

Mark
 

jennifer1967

Registered User
Mar 15, 2020
3,615
0
Southampton
hi @Markt there is an alzheimers dementia navigator locally who might be able to direct you to other services. they are in chandlers ford eastleigh area. need to look it up and they will have local knowledge. its for vascular dementia as well as my husband has vascular dementia. they and this forum have been the best source of information.
 

nitram

Registered User
Apr 6, 2011
22,343
0
North Manchester
You could try a search on your postcode, several services may not be available because of covid.
 

Shedrech

Volunteer Moderator
Dec 15, 2012
10,137
0
Yorkshire
hello @Nan P
a warm welcome to DTP
I hope you'll find reading around the forums helpful
feel free to post with anything that's on your mind, folk here are supportive and knowledgeable .... it helps to share experiences
 

Allie Lou

New member
May 7, 2021
1
0
Hello - I joined this site yesterday after my beautiful mum scored 76/100 on a memory assessment. We're yet to receive the official feedback from the assessment but having looked it up and also being so close to mum and witnessing first-hand the changes, I understand what is happening. I just feel a bit lost and very sad at the moment, but I know I'll pick myself back up soon enough to be able to give mum the support she'll need. Sending lots of love to anyone out there feeling like me or caring for a loved one with this cruel disease xXx
 

northumbrian_k

Registered User
Mar 2, 2017
1,202
0
Newcastle
Hi @Allie Lou Welcome to Dementia Talking Point. I am sorry to hear about your mum. If you have any questions or just need to let off some steam this is a safe place to do it. You'll get lots of support from members with all sorts of experience and knowledge. Have a look around the site and you'll see that there are lots of helpful factsheets and other information too.
 

karaokePete

Registered User
Jul 23, 2017
6,030
0
N Ireland
Hello and welcome from me too @Allie Lou, you are welcome here and I hope you find the forum to be a friendly and supportive place.

I hope you have time to take a good look around the site as it is a goldmine for information. When I first joined I read old threads for information but then found the AS Publications list and the page where a post code search can be done to check for support services in ones own area. If you are interested in these, clicking the following links will take you there

https://www.alzheimers.org.uk/get-support/publications-factsheets-full-list

https://www.alzheimers.org.uk/find-support-near-you

You will see that there are Factsheets that will help with things like getting care needs assessments, deciding the level of care required and sorting out useful things like Wills, Power of Attorney etc., if any of that hasn't already been done. There is also a Dementia Guide in the list.


Now that you have found us I hope you will keep posting as the membership has vast collective knowledge and experience.
 

Agzy

Registered User
Nov 16, 2016
1,966
0
Moreton, Wirral. UK.
Hello and welcome from me too @Allie Lou, you are welcome here and I hope you find the forum to be a friendly and supportive place.

I hope you have time to take a good look around the site as it is a goldmine for information. When I first joined I read old threads for information but then found the AS Publications list and the page where a post code search can be done to check for support services in ones own area. If you are interested in these, clicking the following links will take you there

https://www.alzheimers.org.uk/get-support/publications-factsheets-full-list

https://www.alzheimers.org.uk/find-support-near-you

You will see that there are Factsheets that will help with things like getting care needs assessments, deciding the level of care required and sorting out useful things like Wills, Power of Attorney etc., if any of that hasn't already been done. There is also a Dementia Guide in the list.


Now that you have found us I hope you will keep posting as the membership has vast collective knowledge and experience