Welcome to Dementia Talking Point! Find out more and say hello.

Discussion in 'Welcome and how to use Dementia Talking Point' started by SophieD, Sep 16, 2019.

  1. SophieD

    SophieD Administrator
    Staff Member

    Mar 21, 2018
    1,288
    London
    Welcome to Dementia Talking Point :)

    If you have dementia, or care for someone who does, you're very welcome to join our community and get support from others. Find out more about how to join and say hi to our friendly community on this discussion!

    Finding out more

    If you've got questions about how to use Dementia Talking Point click on these links below.
    • You can find answers to frequently asked questions here.
    • Our Help videos will show you how to navigate the different areas of Dementia Talking Point.
    • We also have a Quick Guide explaining how to use Dementia Talking Point including logging in, posting, replying, checking private messages and searching.
    • Also we recommend having a read through our Guidelines which are some useful tips and things to remember when posting.

    Connecting with others

    Head over to our list of forums to find people who are in a similar situation, people at a similar stage of dementia or an information topic that interests you.

    Here are some tips on how to post a reply or start your own discussion...

    1. When you're in a forum, look for the blue "Post New Thread" or "Reply" buttons at the top or bottom of discussions
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    2. To start a discussion, type a title, add your message and choose 'Create Thread'.


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    3. To add a reply just add your message and choose "Reply"

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    Any questions?

    If you have any questions about using Dementia Talking Point, you can email us on talkingpoint@alzheimers.org.uk or Use our Contact Form - we're here to help.

    Saying hello

    This is our welcome thread - the place many members start. Our volunteer hosts and regular members are here to say hello to you and to welcome you to our community.

    Why not tell us a little about your experience and how you'd like Dementia Talking Point to help you?

    Whatever you're facing today, we hope you find our community to be helpful and supportive.

    Sophie :)
     
  2. marbak

    marbak New member

    Sep 30, 2019
    1
    Hi everyone

    My mum was sectioned 8 weeks ago( pyschosis about her neighbours) and diagnosed with moderate Alzheimers - we knew there were dementia traits but the diagnosis always comes as a shock!
    She is in complete denial of everything and feels there has been a conspiracy against her from neighbours and the GP.
    The adult mental unit where she is placed is very good as are the staff and meds are working well.
    However Mum wants to go home and so we are in a process of thinking about home trials knowing full well it will be probably be residential dementia care for her.
    It's just a roller coaster of emotions and utterly exhausting adjusting to visiting her and keeping a conversation going about the future.
    Very sad times but I look forward to the support of the group
     
  3. nae sporran

    nae sporran Volunteer Host

    Oct 29, 2014
    5,901
    Male
    Bristol
    Hullo and welcome to DTP @marbak.
    I don't know much about the problems you are having with residential care, but denial and difficult conversations are something I think we can all relate to and empathise with. You will find the support and advice you are looking for here, so keep posting and update us on your progress or just let off steam in your own thread when you are ready.
     
  4. TracyS

    TracyS New member

    Sep 30, 2019
    4
    hi, I have just joined the group. My mum was diagnosed with Alzheimer's a year ago so I'm hoping to pick up some tips here from those with more experience and to share where I can.
     
  5. nae sporran

    nae sporran Volunteer Host

    Oct 29, 2014
    5,901
    Male
    Bristol
    Welcome to DTP @TracyS. I see you have already posted a couple of times, and you will find both advice and moral support here from many who are going through the same things. It will be nice to see you around, so keep posting.
     
  6. Yunosida

    Yunosida New member

    Sep 29, 2019
    2
    Hello
    Thk you for welcoming me in your group.
     
  7. Yunosida

    Yunosida New member

    Sep 29, 2019
    2
    Hi
    I am new here..
    Wish to find out more of signs and symptons of dementia..
    My husband is 58 this dec...but he is still working and active but his mood changes to be a quiet person.
    I am quite upset seeing his changes
     
  8. karaokePete

    karaokePete Registered User

    Jul 23, 2017
    4,913
    N Ireland
    Hello @Yunosida and welcome to the forum. You have come to the right place for information and support.

    The best thing to do in this situation is have a chat with your GP. Many treatable conditions, such as depression, stress, thyroid problems, vitamin deficiencies etc., can cause dementia like symptoms so it's important to have a check-up. Please don't cause additional stress by jumping to the immediate conclusion that it's dementia. On the other hand, if it is dementia then a diagnosis may open up support for you.

    Here is a link to a Society Fact sheet about the diagnosis issue. Just click the second line to read or print the document

    Assessment and diagnosis (426)
    PDF printable version
     
  9. karaokePete

    karaokePete Registered User

    Jul 23, 2017
    4,913
    N Ireland
    Hello @TracyS and welcome from me too

    I wonder if you may find any local support services like a memory café to be of some use. You can do a post code check to see what's available to you by following this link https://www.alzheimers.org.uk/find-support-near-you

    The full list of the very informative Factsheets can be found with this link https://www.alzheimers.org.uk/get-support/publications-factsheets-full-list

    If communicating becomes an issue, a few handy tips can be picked from the useful thread that can be reached with this link https://forum.alzheimers.org.uk/threads/compassionate-communication-with-the-memory-impaired.30801/
     
  10. karaokePete

    karaokePete Registered User

    Jul 23, 2017
    4,913
    N Ireland
    Hello @marbak and welcome from me too

    I wonder if you may find the list of the very informative Factsheets useful. It can be found with this link https://www.alzheimers.org.uk/get-support/publications-factsheets-full-list
    You will see that there are Factsheets that will help with things like getting care needs assessments, seeking residential care, deciding the level of care required and sorting out useful things like Wills, Power of Attorney etc., if any of that hasn't already been done. There is also a Dementia Guide in the list.

    If communicating becomes an issue, a few handy tips can be picked from the useful thread that can be reached with this link https://forum.alzheimers.org.uk/threads/compassionate-communication-with-the-memory-impaired.30801/

    Now that you have found us I hope you will keep posting as the membership has vast collective knowledge and experience.
     
  11. Nadger

    Nadger New member

    Oct 3, 2019
    3
    Hello and thank you for the welcome into this wonderful group. I live with my partner, Alison of 27 years, and her parents. We have lived together as a unit for 23 of those years. My partner's nan passed away from Alzheimer's in 1996 and I helped nurse her to her passing. I moved in with them just after her passing. It is fair to say that I am no stranger to Dementia. The sad thing is that now, Alison's father has been diagnosed with Fronto Temporal Dementia. That was at the beginning of 2019. Looking back and understanding the traits of the disease, we think this has been about for at least 3 years, maybe 4. With the family's permission, I have joined the forum because we believe we can contribute, hopefully helping others along the way. We realise there is possibly a long way to go yet, but every person is different. Father-in-law ( I am not married to Alison, but am always referred to as the son-in-law ) is 81 years old and I believe it is unusual to be diagnosed at this age.

    I look forward to reading posts and adding help where I can and possibly asking for advice as well along the way.
     
  12. canary

    canary Registered User

    Feb 25, 2014
    10,524
    Female
    South coast
    Hello @Nadger and welcome to DTP.
    Im sorry to hear about your partners nan and it must be hard for her to see her dad progressing too. FTD is actually not that unusual at your FILs age, its just that if you are talking about early onset, its the most common type of dementia at that age. FTD can be a bit of a challenge if you are used to Alzheimers, as the early stages can be quite different, predominantly behaviour related.

    Do have a mooch around and feel free to join in the conversations, or start a new thread if you want to ask a question, or talk about something specific.
     
  13. Nadger

    Nadger New member

    Oct 3, 2019
    3
    Thank you Canary. We are lucky in that, he has not developed the behaviour related problems. Look forward to joining in.
     
  14. Summers Day

    Summers Day New member

    Wednesday
    5
    Hi i am caring for my husband who has just been diagnosed with dementia probably Alzheimer’s - he is being prescribed donepezil and I was wondering if anyone has experience of side effects of this drug
    Thanks
     
  15. Bunpoots

    Bunpoots Registered User

    Apr 1, 2016
    2,993
    Nottinghamshire
    Hi @Summers Day welcome to the forum.

    Lots of people here have loved ones on Donepezil and the side effects vary from person to person. I think if anything unwanted happens it tends to happen fairly quickly and side effects (if any) disappear as soon as the drug is stopped so just see how it goes. Most people have good results and nothing unexpected but it's good to be aware of potential problems.
     
  16. Summers Day

    Summers Day New member

    Wednesday
    5
    Hi @Bunpoots - thank you for that reassurance - will be starting it next week so will see how it goes
     
  17. Bunpoots

    Bunpoots Registered User

    Apr 1, 2016
    2,993
    Nottinghamshire
    Hopefully all will be well. Let us know how you get on.
     

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