Washable or disposable sheets for incontinence?

[Lindy50]

Hi all

Since her fall last week, mum is indisputably incontinent of both urine and faeces. She seems unaware of this and will just sit in wet / dirty clothes.
The carers will now ensure she wears a pad during the day, but nights are a problem, as mum doesn't see the need for them......

The DN service no longer provides kylie sheets in this area, so I'm looking to buy some. Can I ask some of you with long experience of this......Which are best, washable or disposable kylies? Mum has a double bed which she would hate to lose.

Hope you can help

Lindy xx

 

[Beate]

I got washable Kylie sheets from the Complete Care Shop. They are expensive but thick and high quality and should last a long time. They take a day or so to dry so I bought a few extras and rotate them. While we were on holiday, someone suggested what looked like disposable Kylies. I found them very thin and for what they were quite expensive. Also, one ended up bunched on the floor. I'll stick to the washables. Make sure you've got a waterproof mattress cover and pillow/duvet covers as well.

 

[Tin]

I got washable Kylie sheets from the Complete Care Shop. They are expensive but thick and high quality and should last a long time. They take a day or so to dry so I bought a few extras and rotate them. While we were on holiday, someone suggested what looked like disposable Kylies. I found them very thin and for what they were quite expensive. Also, one ended up bunched on the floor. I'll stick to the washables. Make sure you've got a waterproof mattress cover and pillow/duvet covers as well.

I'm going to have to take notes from your reply, think we are heading the same. I know mum isn't actually wetting her bed through the night, but definitely in the morning when she gets up, sits on the side of her bed, something happens and I am finding huge puddles before she can get to the commode. She does wear pull ups but sometimes removes them and thats when the problem starts. I am amazed at how much liquid comes out of her, she doesn't drink that much during the day!

 

[Lindy50]

Thanks Beate and Tin

So, I think I'll order the washable kylies, and for today see if I can get a pack of disposables to tide us over.
Like you, Tin, I am amazed at the volume of mum's wee......I wonder whether it's partly because she's eating so little, and is losing weight ..

Complete Care, here I come

Thanks again x

 

[Ann Mac]

Have a look on line for washable Kylies, Lindy - you may find them cheaper than those bought in a shop.

The disposable ones are no where near as good as the washables, and they can work out so expensive - disposing of them, unless your council provide a service for 'hazardous waste' is also a problem - they fill up bins very quickly, and with fortnightly collection in most areas, it can be difficult.

The issue I have with using kylies is that My Mil will wake wet in the night, and strip any waterproof covering off, to get a dry patch to sleep on! I've had to get an 'encased' mattress cover, that she can't remove in order to combat this

 

[Lindy50]

Washables ordered

No, the council doesn't provide a hazardous waste collection.....what does anyone provide any more?? No, don't answer that ....... x

 

[Tin]

Having Dementia isn't exactly environment friendly is it and the expense!!!! If my mum knew all about this she would be so shocked as a woman all her life she cared about the impact we have on this precious planet!!and did her very best to make her 'foot print' as little as possible!!!

 

[Lindy50]

Having Dementia isn't exactly environment friendly is it and the expense!!!! If my mum knew all about this she would be so shocked as a woman all her life she cared about the impact we have on this precious planet!!and did her very best to make her 'foot print' as little as possible!!!

Mine too You could write a book about the things I simply don't mention to her any more Needs must, but she wouldn't be happy about so many things.....x

 

[Summerheather]

I'm just shocked how expensive everything is with incontinence, some of the costs are just shocking

 

[tryingmybest]

Im new to all this as my Mum only moved in a few weeks ago. She uses Tena pads in the day although hardly ever wets them. Nightimes have been a bit of a learning curve for me as she was regularly wetting the bed at night through the pads, nighty, sheet and often as she got up would wet the polished wooden floorboards. Like many of you have said I am amazed how much comes out of her at times!! Eventually through trial and error Ive now sorted the problem - well for now anyway, until things change as they may well do. Someone on here when I first joined said about the Tena pullups all in one pants/pads but said to ensure you do get the correct size as if you don't they can leak. Mum is tiny so wears the small ones at night Oh and don't be tempted to use another cheaper make as I've found them to be rubbish!! I have a waterproof mattress on, then two square waterproof sheets under the cotton sheet and two on top. I now get up at midnight and again around 5.30-6am when I more often than not have to change her pullups but shes never wet through anymore so no more wet nighties or sheets. Works for me!1 Good luck. xx

 

[Beate]

Have you been to see the Continence Nurse? They could give you Tena pads for free, though in our case we don't get more than two pull-ups a day. Still, it helps.

 

[Lindy50]

Have you been to see the Continence Nurse? They could give you Tena pads for free, though in our case we don't get more than two pull-ups a day. Still, it helps.

No, actually I haven't, Beate. It's a full time job keeping on top of everything, isn't it? I've only contacted the district nurse and they just do 'normal' pads in different sizes, not pull-ups or kylies. I could ask about the Continence Service, though, thanks, I hope that will help

Lindy xx

 

[tryingmybest]

My Mum has an appointment next Friday to see the nurse at the Incontinence Clinic. I requested this when I last went to see Mums doctor. I understand they don't allow you to have very many pads or pullups but anything will help. I also understand from the pharmacist theclinic may be able to give my Mum tablets so she doesnt wet herself at night. Does anyone know about these??xx

 

[Ann Mac]

I've had a few moans about the cost of incontinence products - I've been really shocked by just how expensive they are, particularly in shops/stores that specialise in 'disability aides' That's why I suggested, Lindy, that you look on the internet - waterproof pillow cases, which I have to use for Mil as she will use pillows to 'cover' the wet patch, were £10.99 EACH - on the internet, nearly identical product was £12.99 for 2.

I found the continence clinic really helpful, in a lot of respects - the only issue is the time factor. Incontinence can either start or worsen literally overnight, waiting up to 6/8 weeks for an intial appointment is pretty frustrating, and even if the clinic will provide some pads/pull ups, or even waterproof bedding, waiting weeks for them just isn't possible and I would imagine the majority would end up doing as I did and buying the products long before the first appointment.

I don't know what the system is elsewhere, but here Mil has been getting the day time pads advised by the clinic delivered every 3 months. When she started with night time incontinence, it took me several weeks to get her to accept pull ups and I waited to speak to the clinic about her being supplied them until she had accepted them (didn't see the point till I knew she would use them) only to find that as she had just taken a delivery of the day time pads, she would now have to wait 3 months before they could add pull ups to her supply.

My Mum has an appointment next Friday to see the nurse at the Incontinence Clinic. I requested this when I last went to see Mums doctor. I understand they don't allow you to have very many pads or pullups but anything will help. I also understand from the pharmacist theclinic may be able to give my Mum tablets so she doesnt wet herself at night. Does anyone know about these??xx

Had to comment on this one - Mil was prescribed Tolterodine by GP to help with the day time stress incontinence, later changed to Neditol. They work by causing the bladder muscles to relax while urinating, so that the bladder empties completely when the person goes for a wee, making leakage and accidents less likely. I've forgotten to mention this elsewhere, but after her seeing her consultant last month, a few days ago I got a phone call from her GP, saying that this type of medication was being stopped for her as it apparently carries the side effect of sometimes causing/making worse hallucinations, confusion and delusions! My Mil suffers badly with delusions and we all know all about the confusion with dementia. Its possible that they haven't impacted on Mil - seen no difference since they have been stopped, don't remember her getting any worse when she started with them - but even the GP wasn't aware of this potential side effect until the consultant spoke to him, so I wanted to give people a heads up xxx

 

[Izzy]

Bill takes Mirabegron and Alfusosin. The latter is for men who have an overactive prostrate gland. Mirabegron is for an overactive bladder.

http://www.nlm.nih.gov/medlineplus/druginfo/meds/a612038.html

Just reminding people that you don't have to pay VAT if you buy continence products on line. Most companies have an easy process for this.