Hello, Ive been lurking on these forums for a few years, started off in the Middle stages bit where I told of mum walking endlessly to the shops, food storing and other odd behaviour - through to when she got taken to a care home 3 years ago but now I find myself in the end stage section as I believe this is now where we are heading to.
Since Christmas we have seen a big decline - rapid loss of mobility, severe aggression when personal care has been given and a general loss of interest in food. She appears not to 'see' anything and prefers to stay in bed if she can sleeping and dozing her time away. The aggression meant she had been trialed on a few different drugs and they seem to have found the one that keeps her calm but it also seems to have 'taken everything away'
She barely speaks now, is doubly incontinent, has to have help to stand and shuffle along - she has had 8 admissions to A&E for falls since January. She sleeps an awful lot and needs help and constant prompting to eat and drink although her swallow is still ok. It the emptiness I can't bear - she looks at you but theres nothing in her eyes, nothing at all. When you talk to her you can tell she doesn't understand anything at all and just being in this world seems a struggle to her - she looks so bewildered and alone.
Perversely all I want is her peaceful release. I do hope this isn't going to go on much longer, the visits are becoming so painful and its 9 years now that she's had this dreadful illness. Sorry , this post doesnt make sense but it helps to get it down somewhere.
Since Christmas we have seen a big decline - rapid loss of mobility, severe aggression when personal care has been given and a general loss of interest in food. She appears not to 'see' anything and prefers to stay in bed if she can sleeping and dozing her time away. The aggression meant she had been trialed on a few different drugs and they seem to have found the one that keeps her calm but it also seems to have 'taken everything away'
She barely speaks now, is doubly incontinent, has to have help to stand and shuffle along - she has had 8 admissions to A&E for falls since January. She sleeps an awful lot and needs help and constant prompting to eat and drink although her swallow is still ok. It the emptiness I can't bear - she looks at you but theres nothing in her eyes, nothing at all. When you talk to her you can tell she doesn't understand anything at all and just being in this world seems a struggle to her - she looks so bewildered and alone.
Perversely all I want is her peaceful release. I do hope this isn't going to go on much longer, the visits are becoming so painful and its 9 years now that she's had this dreadful illness. Sorry , this post doesnt make sense but it helps to get it down somewhere.