Thanks Grannie G .I do appreciate it.Am at long last suddenly hearing something that might help us.but am so shocked that I had to go to so much trouble to find it. The previous lady (Rowengarth) gave me some very useful information,which I have acted on .Will let everyone know the out come. Am so glad I did the awareness/petition but if I hadnt ..wouldnt have heard anything!!!How would anyone know there was a serious situation out there? No Carer should have to go to extremes to get help/information.