Thought you might like an update on our situation. My daughter now has a fifth social worker (not counting two temps) An assessment is in the process of being done,and a departmental meeting is being arranged. I am sure all this is happening because of the petition. and the awareness campaign! Will let you know of any further events . Here is my petition again if anyone would like to support it.http://petitions.number10.gov.uk/uk-ead-ld/ I have up til the 12th of April to get as many signatures as possible. You would be doing a great service (in my opinion) to the many people with Leaning disabilities out there who do not have care and treatment for this terrible disease.