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If you are caring for someone you are entitled to an assessment by law.I wanted more equipment for dad so I contacted SS and they asked me if I had had one.Mine was done over the phone by a Carer Support Worker.She goes through things with you and then they decide how much you are awarded.Mine is a one off payment for the year.You can decide how to spend it.They don’t ask for receipts.Mine is going on meeting friends and going to the gym.You can phone and ask Adult Social Services about it.I also get carers allowance.What’s a Carers Assessment?
No problem.There are people on here that know more than me So they will probably be able to help.I also found out there is a handyman service .You have to pay for this but it is reduced if you are on certain benefits.Im giving them a ring tomorrow on behalf of dad to fix a garage door.Wow! I will do, anything that helps. Today I woke up with shingles - again, and have spent the day on my phone to mums bank, the local council to arrange to have two urine soaked sofas removed, and the Cinnamon Trust, trying to get help with mums dog. I didn’t realise you got anything for being a Carer. Except exhausted of course . Thanks for the info.
Shush, don't say that they may withdraw it, still made me laugh too. I was promise a direct payment last autumn, still waiting it would be quicker too produce a child! In my eighties so could probably retire on the proceeds of selling my story!
Oh how stressful for you. The GP is the lynchpin in the care of your Mum. Capacity seems to be a woolly areaIm glad i found this 'thread'.
SS came to assess mums capacity today, the gp refused to do this and said the practice doesnt offer this any more.
After a two hour visit SS just said to adjust the times the carers visit! She then said mum has no insight into her care needs and is unaware of anything being wrong, therefore lacking capacity. But because mum said she doesnt want to go into a care home, apparently she also has capacity! I feel like shes an accident waiting to happen.
She is self funding, so SS said that they cant offer anything else!
I mean.... for gods sake. I feel mum really needs to be in care, i have joint POA with my brother, who disagrees. He rarely visits and just talks about saving money. Im at my absolute wits end, emotionally and physically drained. I also care for my husband who has multiple sclerosis. I really dont know which way to turn.... aaarrrgggghhh!
When Mum was in hospital for 5 plus weeks she thrived on the constant company etc. Now she’s back at home & yes Groundhog Day!I have set this up as a new thread in the hope that it will help show the sheer number of people who are at their wits end as carer's of PWD.
We all care "too much" and are hamstrung by the law which correctly allows people to make decisions about their health and well being, but does not really allow for as a previous post said "fluctuating capacity" . This dreadful disease leaves our loved ones to appear "normal" in short spurts (although I have noted that this is exhausting for PWD), whilst being anything but "normal" .
MIL presses her emergency call button constantly, OPMH have said they can't medicate her anxiety anymore, SS won't step in as she is self funding and has carer's 4 times a day but won't consent to an assessment for safety at home, the emergency call providers have just given us 2 weeks notice that they will remove the equipment as it is "being abused" and taking their call staff away from genuine calls, SS have asked the GP to carry out a capacity assessment. She has only been MIL's GP for a couple of months following the retirement of her previous GP who had known for at least 20 years and could see through her, but the GP only works part time so I have just had to leave a message with the surgery asking for the assessment to be done as a priority, but probably won't be looked at now until lunchtime tomorrow, so that will be a day and half gone of the 2 weeks. As the emergency button is MIL's only means of contacting the outside world as she can't use the phone to phone out (macular degeneration) she will be distraught and even more anxious, if that is possible.
She has refused constantly over the last 4.5 years that we have cared for her to engage in any sort of outside activity that would leave her less isolated - Age Concern, RNIB, her Care Providers, GP Surgery Memory Café etc.
Not looking for advice, just relieved to have been able to vent in an environment where others will understand. She really would be better in a home, better care, not isolated, better food, quicker intervention for medical issues, no worries about stairs, clean clothes and hopefully clean in herself, but as she is still deemed to have capacity and will not even tolerate discussion of moving out of her home we are stuck in this groundhog day situation.