UTIs, seizures and hospital

[DesperateofDevon]

In addition to the seizures OH had yesterday, he had more overnight and today.
The doctors seem rather bemused, but are talking about the UTI.

I have a gut feeling that this is not good

my lovely I’m so sorry , what a worrying time for you.

Are the seizures because your OH dementia has affected a certain part? The mylin sheaths when weakened can cause some people to have increased seizures, a CT might show up some evidence of that, but a MRI would probably be too much for your OH.

I’m hoping you have lots of support my lovely . I wish I could give you a big hug - so virtual squeezing on its way
(((((((((((((((Hugs))))))))))))))

 

[Splashing About]

My sister has epilepsy and I’m sure they have a protocol for when she has more than x amount of fits in 24 hours. Each fit lowers the convulsive threshold for a short time was my impression. They try and break the cycle for her. Obviously they need to establish what the cause is for your OH.

(((((((((((Hugs))))))))

 

[TNJJ]

So sorry to hear your news@canary

 

[Palerider]

In addition to the seizures OH had yesterday, he had more overnight and today.
The doctors seem rather bemused, but are talking about the UTI.

I have a gut feeling that this is not good

I'm sorry to hear this @canary, I hope they get this sorted xx

 

[DesperateofDevon]

Please bare with me ... My son had urinary reflux in utero, & when born went onto trimethoprim for the first 7 years of his life; trimethoprim knocks out folic acid which bacteria needs to grow thus making it harder for infections to thrive!

please ask them if they would try Trimethoprim with an anti biotic ,in conjunction this combination had amazing results for my son.

it’s worth an ask ?

sending love & hugs
Xx

 

[canary]

We dont really know what is happening because OH does not have a diagnosis as nothing shows on an MRI.
The doctors know that he is deteriorating (his symptoms are just like FTD) and he is also developing a host of different physical symptoms, but his official diagnosis is still only MCI.

 

[DesperateofDevon]

Oh lovely , how worrying
I hope that the bacterial tests come back with a conclusion soon as to what’s causing this infection. sending (((((((((((((((((bighugs)))))))))))))))))

 

[canary]

Trimethoprim with an anti biotic

Ill ask about this.
I didnt know infections needed folic acid. OH is actually low on folic acid and has to take a supplement, which I dont think he has been taking whilst in hospital (very puzzled)

 

[Sarasa]

@canary, what a worry. I hope they manage to find out what the cause is pronto. In the meantime {{{{hugs}}}}

 

[DesperateofDevon]

Try & get some rest tonight xx

 

[DesperateofDevon]

Ill ask about this.
I didnt know infections needed folic acid. OH is actually low on folic acid and has to take a supplement, which I dont think he has been taking whilst in hospital (very puzzled)

I only know this about folic acid after years of seeing specialists with son about his kidneys!!
I’m the Trimethoprim advocate, it does go on weight for small people but Mums on prophylactic antibiotic after a long fight to get it prescribed & it’s helped a lot with cognitive decline as no UTI now!!
So please push for a prophylactic when all this is sorted, it’s also helped with the bladder incontinence !
Xx
Ps
Dementia seems to effect the folic acid levels as both of my PWD are low on it but once you stop the folic acid the UTI ‘s stop / decrease to nil! In my experience anyway.
xx

 

[Duggies-girl]

Very sorry @canary Hope things improve and they get him sorted out soon.

 

[DesperateofDevon]

Hope things are improved today- thinking about you & hoping
Xx

 

[DesperateofDevon]

Hi @canary - how was OH today? xx

 

[canary]

I went to see OH yesterday and he was awake, but confused. He knew who I was, but was doing things that concerned me like fiddling with the clasp on his watch repetitively opening and closing it, pulling up the blanket and then smoothing it down again and also showed me the catheter tube asking me what it was.

Daughter and son-in-law arrived while I was at the hospital and OH was asleep. They immediately started quizzing me about exactly what had been said and done and daughter started making notes. She said they wanted to talk to the doctor to "get a time-line". I went home and they stayed there.

When they got back here daughter told me that her dad woke up, recognised them at once (he said "hello you two"), ate his dinner and a couple of biscuits, asked about Brexit and seemed perfectly OK. They had talked to a doctor who was apparently very helpful, but had told them a couple of things that were different to what I had been told.

They have now gone home after staying the night and I realised that she does not believe how poorly her dad has been and thinks that I am making it up. I have decided that I will not tell her any more about how he is and will just say that he is fine.

 

[Jaded'n'faded]

Oh canary, I am so sorry you're having to deal with this lack of understanding on top of everything else.

In the early years of mum's dementia, family and interested 'others' scoffed and at times ridiculed me over my dementia concerns. One even said to me, 'I think you just WANT her to have dementia.' It was incredibly frustrating, hurtful and unhelpful to mum. Eventually of course, there was no question, but did anyone say sorry we didn't listen to you? No. Course they didn't.

But I know only too well how it feels when others don't get it. Even the consultant said, 'There's nothing wrong with your mother! I've been talking to her for the last 10 minutes and she is perfectly lucid.' I probed a little to find out what they discussed - turned out she'd told him a complete load of absolute tosh - none of it true but she'd convinced him totally! He didn't apologise either...

Just hang on tight. I think anyone who has read your threads here over the years knows exactly how ill your husband is - why can't others see it?
J'n'F X

 

[Woo2]

I’m sorry too @canary , maybe it’s a bit of head in the sand . I knew deep down how bad my mum was and I also knew my dad was dying but I didn’t want to give up hope until all hope had gone . It’s good to see she is taking an interest. Doesn’t help you much in terms of support though . Hope you get some clarity as to what is going on soon .

 

[Bunpoots]

I’ve had it all too @canary and I did, in the end, just stop saying how dad was. I just said “He’s okay”... I couldn’t quite bring myself to tell them he was fine when I knew he was far from it.

Have some (((hugs)))

 

[DesperateofDevon]

I went to see OH yesterday and he was awake, but confused. He knew who I was, but was doing things that concerned me like fiddling with the clasp on his watch repetitively opening and closing it, pulling up the blanket and then smoothing it down again and also showed me the catheter tube asking me what it was.

Daughter and son-in-law arrived while I was at the hospital and OH was asleep. They immediately started quizzing me about exactly what had been said and done and daughter started making notes. She said they wanted to talk to the doctor to "get a time-line". I went home and they stayed there.

When they got back here daughter told me that her dad woke up, recognised them at once (he said "hello you two"), ate his dinner and a couple of biscuits, asked about Brexit and seemed perfectly OK. They had talked to a doctor who was apparently very helpful, but had told them a couple of things that were different to what I had been told.

They have now gone home after staying the night and I realised that she does not believe how poorly her dad has been and thinks that I am making it up. I have decided that I will not tell her any more about how he is and will just say that he is fine.

oh my lovely I’m sorry, it’s so hard when others don’t see what you see. I appreciate how PWD put on a show, but sometimes others don’t look to hard as they can’t cope with what they see.

Take care xxxxx((((((((((Hugs)))))))))

 

[Sarasa]

@canary - I can imagine that your husband put on a show for his daughter, or maybe he just felt a bit better after a nap. As for what the doctor said, I imagine there are quite a few around and the one they spoke to might not know as much as the one you saw.
Hope today is a better day.