Oh @canary, I’m so sorry to read your update. I wish you strength.

 

Thinking of you canary. Hope things improve when the meds kick in. How things change so quickly .

 

@canary, I hope there is some improvement today. Weekends are a rubbish time to get any input from doctors, but I hope you can speak to a senior doctor about this tomorrow. Certainly it sounds like he can't come home without a proper package in place.
Thinking of you, and remember to take care of yourself {{{hugs}}}

 

@canary ...I’m sorry to hear this.... hoping you see some improvement in OH this morning .

Thinking of you A x

 

I’m sorry to read this.Sending ((hugs))I hope there is an improvement today in OH..

 

((((Hugs)))) @canary

sending strength

 

Sorry to hear this @canary , stay strong let us know how things are

 

@cannary - I was wondering how things were, I'm glad you've posted an update.

Hopefully the antibiotics will work and OH will bounce back, as he did before, and you'll get an OT that understands host mode this time round, as hopefully you will get reenablement again.

 

I wonder if these doctors see something we don`t canary. It is a bit thoughtless to ask about DNR in a phone call. Do you know if there was any indication things were really bad before you arrived?

I do hope things are not as bad as they sound. It`s a really difficult waiting game for you.

 

So sorry to hear this. It all sounds alarming and distressing. Hope there is some improvement today and that you get some answers from the medical staff.

 

I'm so sorry to hear this Canary. As others have said, things change so quickly and you can't predict what will happen. I visited my mother a week ago and she was in fine form, up and dancing in the music session. The following morning a carer rang to say she was very poorly and slumped in a chair with no interest in her surroundings. But 24 hours later she was cheerful and eating breakfast. You don't know what will happen from one day to the next. I hope your husband improves now he is being treated for the infection.

 

I'm sorry to hear about this canary. If it helps at all my OH was in hospital for 12 weeks, he had a nasty infection that turned to sepsis and every time it cleared he got another. I thought, looking at him, it was basically the end of any independance. He came home immobile, couldn't hold a cup or feed himelf. He was 'out of it' most of the time a slept for 20hrs per day.
Now having been home for 7 mths he is a different person, can do all sorts of things for himself and has regained much of his previous interests. He has learnt to walk again with a frame tho' only with OT guidance at the moment. It took ages to get the ABs out of his system but slowly day by day he has made wonderful progress.

Wishing you all the best.

 

Are you able to talk to someone about the DNR conversation being held on the phone. I think that is inexcusable.

So sorry you’ve had such a horrible experience. This sounds very familiar to my experience of being told someone doesn’t need the level of care you (as the person who knows them) believe they need and then having a horrible shock when their apparent health is much worse after all. It’s a rollercoaster of emotions

 

Sorry to hear your news, Canary, but pleased that there was a little improvement today. Hopefully things will continue to get better and you will have your OH home with the appropriate care package xx

 

Very sorry to hear this @canary
The seizures being a result of the UTI ( has happened to my DH)
combined with the anti eleptic drugs makes them very lethargic.
Takes a long time to recover from.
Hope he is discharged with the proper care package.
When my Mum was admitted to hospital, the Dr asked me about a DNR order. I was quite shocked, and being Mums EPOA, I didnt have an answer. My siblings were too upset as it was to discuss.
Its still now one of those things that has yet to be discussed.
To ask you over the phone though is heartless

 

I hope things improve for you both canary. When Mum was in hospital (on a dementia ward) there was a lady who was taken out of bed and put in a chair and she constantly cried to go back to bed, she never had visitors and I still can't understand why she wasn't allowed to stay in bed, I know the risk of pressure sores, but sometimes things have to have a balance, so good for you for getting your OH back into bed when he obviously needed to.

I wouldn't be very happy about the DNR situation either. When mum went into the home we spoke to them about arranging to get one put on Mum, only to be told there was one already on - a doctor had done it when she was in hospital and we hadn't been told.

 

So sorry he's back in hospital Canary.....such a rollercoaster! Hope the hospital can properly clear the infection this time and he is soon on the mend. Take care x