hi all
thank you for your good luck messages.
well we got there and in the meeting was..
2 dr's
ward sister
care manager
OT trainee
mum was a bit overwhelmed. luckily i have experience of these meetings due to work (mental health support worker) so i put on my "proffesional cloak" to get through the meeting.
they asked mum how she felt about dads progress and future care, and altho we had a long chat on saturday about what she would and wouldnt like to happen she clammed up and answered - i dont know -
i was so pleased i was there and could be her voice. i expressed my concerns for dads safety in regard to the set up of the house ie a huge window at bottom of the stairs...many steps outside of the house plus a main rd at the end of their rd.
i also expressed concern that he hadnt be prescribed and medication for the parkingsons, altho i also made them aware that i know that medication for parkingsons can make the lewy body symptoms worse, and vice versa.....
they now have a parkingsons specialist coming to see dad tomorrow or monday.
with the help of the CM they are keeping dad for further assessments
the lady dr also agreed that the last 17 weeks rapid decline altho typical of lewy body, is indeed speedy and unfortunatly the decline will continue to be rapid.
the nurses on the ward are fantastic, very caring and considerate, dad is always clean and tidy and in fresh clothes as well as being freshly shaven, this helps mum to accept what is happening knowing he is being cared for well
anyway he is now having difficulty remembering how to eat.....use the toilet.....he is making lots of hand actions as tho he is doing something altho what we dont know..
he is in his own reality
thank you again for your support
love Jane xx
thank you for your good luck messages.
well we got there and in the meeting was..
2 dr's
ward sister
care manager
OT trainee
mum was a bit overwhelmed. luckily i have experience of these meetings due to work (mental health support worker) so i put on my "proffesional cloak" to get through the meeting.
they asked mum how she felt about dads progress and future care, and altho we had a long chat on saturday about what she would and wouldnt like to happen she clammed up and answered - i dont know -
i was so pleased i was there and could be her voice. i expressed my concerns for dads safety in regard to the set up of the house ie a huge window at bottom of the stairs...many steps outside of the house plus a main rd at the end of their rd.
i also expressed concern that he hadnt be prescribed and medication for the parkingsons, altho i also made them aware that i know that medication for parkingsons can make the lewy body symptoms worse, and vice versa.....
they now have a parkingsons specialist coming to see dad tomorrow or monday.
with the help of the CM they are keeping dad for further assessments
the lady dr also agreed that the last 17 weeks rapid decline altho typical of lewy body, is indeed speedy and unfortunatly the decline will continue to be rapid.
the nurses on the ward are fantastic, very caring and considerate, dad is always clean and tidy and in fresh clothes as well as being freshly shaven, this helps mum to accept what is happening knowing he is being cared for well
anyway he is now having difficulty remembering how to eat.....use the toilet.....he is making lots of hand actions as tho he is doing something altho what we dont know..
he is in his own reality
thank you again for your support
love Jane xx