update on todays app and thank you!

Discussion in 'ARCHIVE FORUM: Support discussions' started by noodle31, Aug 18, 2005.

  1. noodle31

    noodle31 Registered User

    May 1, 2005
    81
    kent
    hi all

    thank you for your good luck messages.

    well we got there and in the meeting was..

    2 dr's
    ward sister
    care manager
    OT trainee

    mum was a bit overwhelmed. luckily i have experience of these meetings due to work (mental health support worker) so i put on my "proffesional cloak" to get through the meeting.

    they asked mum how she felt about dads progress and future care, and altho we had a long chat on saturday about what she would and wouldnt like to happen she clammed up and answered - i dont know -

    i was so pleased i was there and could be her voice. i expressed my concerns for dads safety in regard to the set up of the house ie a huge window at bottom of the stairs...many steps outside of the house plus a main rd at the end of their rd.

    i also expressed concern that he hadnt be prescribed and medication for the parkingsons, altho i also made them aware that i know that medication for parkingsons can make the lewy body symptoms worse, and vice versa.....

    they now have a parkingsons specialist coming to see dad tomorrow or monday.

    with the help of the CM they are keeping dad for further assessments

    the lady dr also agreed that the last 17 weeks rapid decline altho typical of lewy body, is indeed speedy and unfortunatly the decline will continue to be rapid.

    the nurses on the ward are fantastic, very caring and considerate, dad is always clean and tidy and in fresh clothes as well as being freshly shaven, this helps mum to accept what is happening knowing he is being cared for well

    anyway he is now having difficulty remembering how to eat.....use the toilet.....he is making lots of hand actions as tho he is doing something altho what we dont know..

    he is in his own reality

    thank you again for your support

    love Jane xx
     
  2. Sheila

    Sheila Registered User

    Oct 23, 2003
    2,259
    West Sussex
    Dear Jane, your Mum is indeed lucky to have you there for them at this time. I am glad the meeting has proved productive and that you voiced the worries for your Mum. It is so sad to hear of this rapid decline in your Dad, I do hope the specialist tomorrow will be able to help. Thinking of you, love She. XX
     
  3. Norman

    Norman Registered User

    Oct 9, 2003
    4,348
    Birmingham Hades
    Hi Jane
    glad that you got such a good result,great that were able to speak up for your mum.
    What always worries me is how do the poor souls without anyone to support them manage?
    Norman
     
  4. Sheila

    Sheila Registered User

    Oct 23, 2003
    2,259
    West Sussex
    Yes Norm, that worries me too. The patients liason support worker (PALS) can arrange to accompany anyone who needs support according to their leaflets. They can now be found in most hospitals. Any one needing them should ask at reception or look on the notice boards for more information and a contact number for their local representatives. Love She. XX
     
  5. noodle31

    noodle31 Registered User

    May 1, 2005
    81
    kent
    Hi Norm and She

    Yes this is a worry i have...

    working in mental health the majority of our clients have no one to speak for them, which is where we come into play.

    There are voluntary advocacy workers which we as staff can introduce.

    BUT people like my mum, well they wouldnt ask for help. i know my mum wouldnt.

    so what about them? the people stuck at home muddling through, not asking for help and not being offered it either, altho again even if help is offered it isnt always accepted however desperatly wanted.......

    in many situations accepting the help the people feel they have failed or feel guilty, which is why they turn it down

    my mum only accepted help finally because she came to a point she knew she couldnt cope......and that is with a supportive family,

    it saddens me to think there are many people suffering because of guilt, pride or even ignorance :(

    for me, my support is being able to come on here, so thank you again

    love Jane xx
     

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