• Expert Q&A: Rare dementias - Tues 3 March, 3-4pm

    Our next expert Q&A will be on the topic of rare dementias. It will be hosted by Nikki and Seb from Rare Dementia Support. If you have any questions about rare dementias, they will be here to answer them on Tuesday 3 March between 3-4pm.

    You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.

understanding the process

scooby

Registered User
Dec 7, 2004
6
My Sister is 57 years old, she has had alzheimers disease for 10 years now, well that is as far back as we can remember the symptoms starting.
her syptoms for this is now she has trouble with her speach hard for dressing herself she cannot do anything for herself really.
she still remembers us and our names but anybody she hasnt seen for a long time she forgets
she had an assessment 2 weeks ago and they have said that she is in the 2nd and going into the 3rd stage and she could go rapidly and be in a home between 6 months to 2 years.
afyer reading papers about it i still cannot see the 3rd stage.
is this because i dont want to see it or what.
i still feel it hard to understand all the process of AD
 

Norman

Registered User
Oct 9, 2003
4,348
Birmingham Hades
Scooby
I don't think there is a process or progress the same for everyone.
the only certainty is that we end at the same destination,unless some other disease intervenes.
I am sure that someone with a sufferer of a similar age will give you more infomation.
Keep posting you will find lots of help on this site.
Norman
 

Brucie

Registered User
Jan 31, 2004
12,413
near London
Hi Scooby

I agree with Norman, I don't think there is any single course for Alzheimer's - or indeed for any of the dementias.

Because the damage is to random parts of the brain, different faculties will be affected at different times for different people. Some people won't be affected in some areas, but will be more affected elsewhere.

The internal strength of the person concerned also is part of the equation. Some fight it more; some go quite quickly.

My wife, who is now 64, was 50 when things started to go wrong. As far as stages are concerned, we went approximately through this series of stages:

Stage 1 1990 - 1997

initial symptoms [memory, fainting]. Unable to get a diagnosis. Exploring what might be wrong by visiting many different consultants and paying for their holidays [had medical insurance through my employer]. Early medication for depression. life could still continue, more or less normally. I figured out what the problem was, early on, but the medics would not agree - she was 'too young' for dementia.

Stage 2 1997 - 2000

symptoms increase. Finally a diagnosis of Alzheimer's [later vascular was added]and assessment. Inability to write name. behavioural problems - sundowning. increase in medication. trying to handle it from home with no help from anyone. Arrange EPA. Still just able to care for her.

Stage 3 2000 - 2001

symptoms worsen. starts not to know me. agitation. aggression. severe sundowning. have to care for her 24/7 no help available from SS or elsewhere

Stage 4 2001

on 3rd assessment the hospital lets my wife fall, fracturing her pelvis. this made her incontinent for the first time, something that has continued since. She has also never walked since. Care needs thereafter too severe to enable her to come home. EPA activated.

Stage 5 2001 - [present] could be 1 week more, or 10 years +

in care home as permanent resident. loses sight, speech, most faculties. can still crawl and eats well. Strong as an ox. Brave as brave can be. Still beautiful.

I'd expect no-one to have the same process, but that's what it has been like for us.

Don't expect any or all of the above. Enjoy each day. Manage problems day by day.