Two years to get this bad. What now?
- Thread starter AL60
- Start date
Hi Al, you have the right to forget all troubles for a while and be you again.for a few hours I was me again , all troubles forgotten for a while. I know what you're thinking, out again!anyway, what the heck, y'all gotta live a little bit sometimes
Being constantly unhappy and worried is no use for anyone.
Hope you can have more nights out with your friends, because they are moments of relief in an otherwise difficult and sad situation.
Hi. Just an update on that Sunday visit to the home. My eldest daughter wanted to chance a visit to see her mum. OK, I went with her to give moral support. The plan was for me to stay in the background out of sight . My daughters' visit started well then my wife caught sight of me, that was enough, visiting time over. Luckily my daughter took it well, she's certainly old enough to understand and we both went home at least in the knowledge that we had tried. Such anger. I wish they could find a cure so no one else ever has to go through this awful disease .
Enough for tonight , my turn for a hospital appointment in the morning. Whatever happens I'm also off to my not so local local tomorrow night. Then on Thursday I'm off to North Wales again to meet my old mate Billy, what a social whirl life is at the moment. I tell myself it's therapy so it's allowed Goodnight, Al.
Enough for tonight , my turn for a hospital appointment in the morning. Whatever happens I'm also off to my not so local local tomorrow night. Then on Thursday I'm off to North Wales again to meet my old mate Billy, what a social whirl life is at the moment
. I tell myself it's therapy so it's allowed Goodnight, Al.
Then on Thursday I'm off to North Wales again to meet my old mate Billy, what a social whirl life is at the moment
it`s good to keep busy
Hi. Still here, getting on with things. I've been to visit again but the anger is still there, if anything even worse. I'm not letting it get to me but it's hard isn't it. My therapy day in Wales with Billy went extremely well, so we'll we're planning another nearer to home. Look out Chester, here we come. I couldn't do all this socialising for a hobby, way too tiring.
Another family friend has suggested some ideas to make visiting my wife possible. She herself went to visit last week and said she was shocked to see the deterioration. I've a feeling that the only time I'll be able to visit is when she doesn't recognise who I am! I really don't have any answers. So I'll carry on doing the normal stuff with a bit of socialising with friends thrown in and just keep busy. The sun's about to rise and I think I should too, a long day to fill but as I've so much to do I don't think I'll have anyproblems filling it.Al.
Another family friend has suggested some ideas to make visiting my wife possible. She herself went to visit last week and said she was shocked to see the deterioration. I've a feeling that the only time I'll be able to visit is when she doesn't recognise who I am! I really don't have any answers. So I'll carry on doing the normal stuff with a bit of socialising with friends thrown in and just keep busy. The sun's about to rise and I think I should too
, a long day to fill but as I've so much to do I don't think I'll have anyproblems filling it.Al.
Yes you are between the devil (of dementia) and the deep blue sea (of now being alone), and it’s a horrible place to be. I don’t have the anger and shouting or incontinence but otherwise I am torn between wanting him there and wanting him gone and I know I would hate it with him gone, but I hate it with him here with me as he sinks deeper and deeper into dementia. Talk about a schizophrenic life! I feel for your pain.
Hi again. It's been a while since I stared at a blank screen thinking how to start the next post . I suppose I could start by talking about the recent weather, I know that not everyone had any snow but for a few days at least my garden looked just like everyone else's. A crisp white covering of white icing. I love that kind of weather. My wife on the other hand was quite indifferent to it, not exactly hating it but at the same time not understanding why I love it . I went to see her today. Some friends of ours went to see her earlier in the week. Their visit went extremely well, also the staff there had said how quiet she'd been, a massive improvement and she was eating and drinking better than for some time. Well, it's been three weeks now since the meds had started. So, it's worth a try, perhaps the meds really had started to calm her down . I can't never visit, I have to try, I can't give up on her, I made that promise forty three years ago! I'm sad to say that my visit was a massive fail. When we arrived the nurse informed us, my daughter was with me, that they were going to take her to the toilet , sit on that settee and see what happens when we walk her past. For less than two seconds there was a brief recognition and a smile , before I could say hello her mood had changed , that was it, visit over, nothing has changed . So after dropping my daughter off at her house I went home. I sat down and promptly fell fast asleep.After waking up I went out for a walk, just walking , nowhere in particular just literally following my nose, three hours and eight miles later, here I am, One last post before an attempt at sleep. So, in anticipation of the imminent arrival of the sandman I'll say goodnight. Al
. I went to see her today. Some friends of ours went to see her earlier in the week. Their visit went extremely well, also the staff there had said how quiet she'd been, a massive improvement and she was eating and drinking better than for some time. Well, it's been three weeks now since the meds had started. So, it's worth a try, perhaps the meds really had started to calm her down . I can't never visit, I have to try, I can't give up on her, I made that promise forty three years ago! I'm sad to say that my visit was a massive fail. When we arrived the nurse informed us, my daughter was with me, that they were going to take her to the toilet , sit on that settee and see what happens when we walk her past. For less than two seconds there was a brief recognition and a smile , before I could say hello her mood had changed , that was it, visit over, nothing has changed . So after dropping my daughter off at her house I went home. I sat down and promptly fell fast asleep.After waking up I went out for a walk, just walking , nowhere in particular just literally following my nose, three hours and eight miles later, here I am, One last post before an attempt at sleep. So, in anticipation of the imminent arrival of the sandman I'll say goodnight. Al
Sorry to hear you are feeling so it must be so heart breaking. My brother has just been diagnosed on boxing day and it has been heartbreaking. My thoughts and feelings are with you. Teresa15month
Hi. Yes, we certainly do. Things look better this morning, the daylight helps. Roll on summer. Al.
Hi, good morning. I'm always at my lowest in the evenings, must be the dark nights. But with the dawning of a new day I feel so much brighter. I'm sorry to read about your brother . Reading many of the posts on this site I can imagine you worry about what's to come. All I can say is, although the dementia journey always ends at the same destination, not all journeys take the same path. I consider the journey my wife is on is particularly rocky, especially at the moment. Not all are the same. Enough of that, look forward to every new day and live every one like it was your last. I'm sure if today was my last day the last thing I would be doing is cleaning the windows , yet that is my plan for today., but not starting just yet, with any luck it might rain. Any excuse
. Al.
Your wonderful sense of humour really tickles me and that must be what sees you through. Evenings are always bad and a new morning brightens my spirits too.Hi, good morning. I'm always at my lowest in the evenings, must be the dark nights. But with the dawning of a new day I feel so much brighter. I'm sorry to read about your brother . Reading many of the posts on this site I can imagine you worry about what's to come. All I can say is, although the dementia journey always ends at the same destination, not all journeys take the same path. I consider the journey my wife is on is particularly rocky, especially at the moment. Not all are the same. Enough of that, look forward to every new day and live every one like it was your last. I'm sure if today was my last day the last thing I would be doing is cleaning the windows , yet that is my plan for today., but not starting just yet, with any luck it might rain. Any excuse
Hi. Everyone needs a sense of humour, no matter how dark it gets there's almost always a brighter side, I must stress, almost always . Speaking of bright sides, I've just cleaned "A" window, I can now see blue skies, I can also see cat paw prints all over the inside, funny how one job leads to another. Oh well, I'll clean the paw prints off after I finish this cup of tea.
Al.My Mum, in a care home, also started to spit out tablets, so we arranged with the care home, "covert" administration - where she is given liquid forms of the medicines where available and if this fails, I gave authorisation for the meds to be put into her food. Sounds a bit overkill, but she takes her medications better now.
Hi. That's exactly what we started to do in the new year . The staff at the home have said there has been a definite improvement . I'll just have to wait and see . Al.