Two years to get this bad. What now?

janicek55

Registered User
Mar 19, 2016
16
0
Enlightening post , as for about a year now my husband who was diagnosed over 2 years ago has been also saying it’s too cold , it tastes funny , it’s too hot ....etc etc
I just chalked it up to him being ornery or picky but hearing your story makes me wonder , maybe it is the disease talking.
 

AL60

Registered User
Oct 14, 2016
509
0
Cheshire
Hi. I haven't posted here for a day or seven, not because I'm losing the will to post or anything remotely like that. It's just that every day is so like the one before I can't think of anything to write. Yet even though every day starts and finishes the same way, the way I cope seems different each day. Most days I just let events wash over me , if I resist and push back it only increases my stress levels. So, what ever madness comes my way just go with the flow. Then something happens one day and I find myself arguing, yes, I know arguing is pointless, I don't need reminding. But come, on six pounds fifty for forty five minutes of, at the third stroke, it will be two o'clock precisely! I suppose I should be grateful she didn't fall asleep listening to it. Anyway, I'm over it now and can see the funny side. It appears that she managed to delete my number from her contacts and replace it with the speaking clock. Never a dull moment eh Regarding other things, life hasn't been too bad just lately, or I'm getting used to things more. I even managed to get an afternoon off recently too, such small pleasures ☺. I didn't know four hours could pass so quickly. I've been dreading the coming of the darker days of winter, now that they're here I've come to realise they're not that different to summer days, just shorter and colder. Well, that's me done for tonight, morning comes all too soon so, goodnight. Al.
 

dancer12

Registered User
Jan 9, 2017
498
0
Mississauga
Hi. I haven't posted here for a day or seven, not because I'm losing the will to post or anything remotely like that. It's just that every day is so like the one before I can't think of anything to write. Yet even though every day starts and finishes the same way, the way I cope seems different each day. Most days I just let events wash over me , if I resist and push back it only increases my stress levels. So, what ever madness comes my way just go with the flow. Then something happens one day and I find myself arguing, yes, I know arguing is pointless, I don't need reminding. But come, on six pounds fifty for forty five minutes of, at the third stroke, it will be two o'clock precisely! I suppose I should be grateful she didn't fall asleep listening to it. Anyway, I'm over it now and can see the funny side. It appears that she managed to delete my number from her contacts and replace it with the speaking clock. Never a dull moment eh Regarding other things, life hasn't been too bad just lately, or I'm getting used to things more. I even managed to get an afternoon off recently too, such small pleasures ☺. I didn't know four hours could pass so quickly. I've been dreading the coming of the darker days of winter, now that they're here I've come to realise they're not that different to summer days, just shorter and colder. Well, that's me done for tonight, morning comes all too soon so, goodnight. Al.

Hi:

Glad to hear you finally have some peace in your life, a few hours to yourself can make a world of difference.:)
 

AL60

Registered User
Oct 14, 2016
509
0
Cheshire
Hi. Well, for every up there has to be a down. And today it's been downhill all the way. One of those days when nothing you do is right and everything you say is wrong, I know it's no point trying to have a rational discussion, aka, argument ☺.so tomorrow morning well spend a couple of hours in the greenhouse planting her newly purchased seeds. You never know, something might grow.
Over the last two months or so I've noticed her pace of walking has become noticeably slower. It seems almost as if every step is thought out and taken very carefully, like she's afraid of falling. Also of late I've found she's afraid of stairs and escalators, initially it was just going down, going up posed less of a problem. But now we try to find a lift, so far we've been lucky. Yesterday evening I actually found her crawling up the stairs at home as she was unable to stand. This is now the latest thing for me to worry about. Honestly, just as you think you're winning something else comes up at you. It's relentless. This thing with stairs and escalators really is a relatively new symptom.
So, it's now eight minutes into Tuesday morning, and time to get to sleep, I'll need all my strength tomorrow for a couple of hours work in the greenhouse. If only I had the heart to say no, or even, No!!!!.☺Al.
 

dancer12

Registered User
Jan 9, 2017
498
0
Mississauga
Hi. Well, for every up there has to be a down. And today it's been downhill all the way. One of those days when nothing you do is right and everything you say is wrong, I know it's no point trying to have a rational discussion, aka, argument ☺.so tomorrow morning well spend a couple of hours in the greenhouse planting her newly purchased seeds. You never know, something might grow.
Over the last two months or so I've noticed her pace of walking has become noticeably slower. It seems almost as if every step is thought out and taken very carefully, like she's afraid of falling. Also of late I've found she's afraid of stairs and escalators, initially it was just going down, going up posed less of a problem. But now we try to find a lift, so far we've been lucky. Yesterday evening I actually found her crawling up the stairs at home as she was unable to stand. This is now the latest thing for me to worry about. Honestly, just as you think you're winning something else comes up at you. It's relentless. This thing with stairs and escalators really is a relatively new symptom.
So, it's now eight minutes into Tuesday morning, and time to get to sleep, I'll need all my strength tomorrow for a co). His reply Yes no problem. )uple of hours work in the greenhouse. If only I had the heart to say no, or even, No!!!!.☺Al.

Hi:

I feel like I've been twisted inside out & upside down while being torn apart and being twirled around 1 million times. Today my husband had another assessment and a transformation took place in front of my eyes. The lady asked him can you cook by yourself (breakfast/lunch). This
after me making his lunch for over 2 years. After she left I told him to make his own lunch in the future. He quickly shouted, Fine I'll make mine but you have to make yours. If I waited for him to make me lunch I'd fade away to nothingness BUT I might lose weight. There's always a bonus somewhere.:)
 

Sammie234

Registered User
Oct 7, 2016
219
0
Shropshire
Makes you wonder if any of these assessors actually know about Alzheimer’s ask them to spend a week in your shoes and they would find out !
 

AL60

Registered User
Oct 14, 2016
509
0
Cheshire
Hi. So many similarities. So many frayed nerves. Sometimes it feels like she's falling from a height and she holds my ankle and won't let go threatening to take me over the edge too. Another anger filled day today, I honestly don't know where it comes from. She goes on and on, all I can do is sit and listen, I've tried to calm her and get her on a different subject but she just won't listen. I should be used to it by now but all it does is wear you down. I thought I might have had a spell in the greenhouse this morning but I think that was forgotten about, though she did mention it just as it was going dark. That's one advantage of the shorter days I suppose ☺. Dr's appointment tomorrow morning, I made a double appointment so we can both go. I'm not going to say anything until it's time to go otherwise I'll have a fight on my hands, you wouldn't believe how stubborn she can be. Whatever happens though I can't not go. Her balance and coordination problems can't be ignored any longer. Yesterday evening she had a fall, I picked her up, dusted her down and no harm done,,,,,this time. But this morning I noticed some bruising on her face and around her nose, not good. So, an early night tonight for me, note to self, book a later Dr's appointment next time, after a lifetime of early rising it's not taken long to forget how to set the alarm☺Al.
 

dancer12

Registered User
Jan 9, 2017
498
0
Mississauga
Hi. So many similarities. So many frayed nerves. Sometimes it feels like she's falling from a height and she holds my ankle and won't let go threatening to take me over the edge too. Another anger filled day today, I honestly don't know where it comes from. She goes on and on, all I can do is sit and listen, I've tried to calm her and get her on a different subject but she just won't listen. I should be used to it by now but all it does is wear you down. I thought I might have had a spell in the greenhouse this morning but I think that was forgotten about, though she did mention it just as it was going dark. That's one advantage of the shorter days I suppose ☺. Dr's appointment tomorrow morning, I made a double appointment so we can both go. I'm not going to say anything until it's time to go otherwise I'll have a fight on my hands, you wouldn't believe how stubborn she can be. Whatever happens though I can't not go. Her balance and coordination problems can't be ignored any longer. Yesterday evening she had a fall, I picked her up, dusted her down and no harm done,,,,,this time. But this morning I noticed some bruising on her face and around her nose, not good. So, an early night tonight for me, note to self, book a later Dr's appointment next time, after a lifetime of early rising it's not taken long to forget how to set the alarm☺Al.

Hi:

We went on a bus trip with friends to the casino (just for fun). He had fun all day laughing &b giggling with our friends. We got home at @ 5:30pm and everything changed, he started yelling at me that I rushed him this morning, I took all his money, I made him wear pants that didn't fit him well enough and the list goes on & on. My son was eating his dinner and I'm sure his stress level went threw the roof.. He doesn't need this nonsense, I don't need this. I know it's the illness but this boggles my mind. I've heard about being stuck between a rock & a hard place, but I never knew what it meant. Now I do. Hope things are better tomorrow or I'll have to replenish my wine supply.

Hope things go well at doctors appointments tomorrow. Sorry about whining on & on , it's not like me and that's the biggest problem. :)
 

Amethyst59

Registered User
Jul 3, 2017
5,776
0
Kent
Hi. So many similarities. So many frayed nerves. Sometimes it feels like she's falling from a height and she holds my ankle and won't let go threatening to take me over the edge too. Another anger filled day today, I honestly don't know where it comes from. She goes on and on, all I can do is sit and listen, I've tried to calm her and get her on a different subject but she just won't listen. I should be used to it by now but all it does is wear you down. I thought I might have had a spell in the greenhouse this morning but I think that was forgotten about, though she did mention it just as it was going dark. That's one advantage of the shorter days I suppose ☺. Dr's appointment tomorrow morning, I made a double appointment so we can both go. I'm not going to say anything until it's time to go otherwise I'll have a fight on my hands, you wouldn't believe how stubborn she can be. Whatever happens though I can't not go. Her balance and coordination problems can't be ignored any longer. Yesterday evening she had a fall, I picked her up, dusted her down and no harm done,,,,,this time. But this morning I noticed some bruising on her face and around her nose, not good. So, an early night tonight for me, note to self, book a later Dr's appointment next time, after a lifetime of early rising it's not taken long to forget how to set the alarm☺Al.
I hope the drs appointment was helpful. It was so cold today, I expect you went straight home afterwards? Not a day for lingering!
 

AL60

Registered User
Oct 14, 2016
509
0
Cheshire
Hi. When does late become early? A question I asked myself many times on those nights shifts. How I hated them, they sometimes seemed to go on forever. Yet how I would love to go back to those times, I've forgotten how much 'fun' I had at work.. But now the fun has gone out of everything, I've given up trying to explain about the Christmas tree going up too soon, it wouldn't matter but the carpet fitter is due next Tuesday morning so I'm going to have fun of a different kind moving it out of the way. The Dr's appointment was something of a failure, she refused point blank, no way was she going to go. I suspect that she was worried and embarrassed about the bruising around her eyes sustained in a fall two days before. Anyway I went to explain the latest developments. The dr suggested a home visit might be in order next time but after a mild scolding later that same day from the nurse she's agreed to let me make another appointment. Watch this space. . Its been some time since I've been unable to sleep at this hour. It may be an effect of the sedation I received yesterday for some of those facet joint injections. Hopefully that'll sort one pain in the neck for a couple of months . Well, I guess I'd best try to get some sleep, it'll soon be time to start another day. Listening to the rain and wind at the bedroom window is quite therapeutic, makes me wish I was out at work living my old life. But then, it does sound rather wild out there so, pull up the duvet and rethink that past life . Now it really is very late, or is it very early.Al.
 

dancer12

Registered User
Jan 9, 2017
498
0
Mississauga
Hi. When does late become early? A question I asked myself many times on those nights shifts. How I hated them, they sometimes seemed to go on forever. Yet how I would love to go back to those times, I've forgotten how much 'fun' I had at work.. But now the fun has gone out of everything, I've given up trying to explain about the Christmas tree going up too soon, it wouldn't matter but the carpet fitter is due next Tuesday morning so I'm going to have fun of a different kind moving it out of the way. The Dr's appointment was something of a failure, she refused point blank, no way was she going to go. I suspect that she was worried and embarrassed about the bruising around her eyes sustained in a fall two days before. Anyway I went to explain the latest developments. The dr suggested a home visit might be in order next time but after a mild scolding later that same day from the nurse she's agreed to let me make another appointment. Watch this space. . Its been some time since I've been unable to sleep at this hour. It may be an effect of the sedation I received yesterday for some of those facet joint injections. Hopefully that'll sort one pain in the neck for a couple of months . Well, I guess I'd best try to get some sleep, it'll soon be time to start another day. Listening to the rain and wind at the bedroom window is quite therapeutic, makes me wish I was out at work living my old life. But then, it does sound rather wild out there so, pull up the duvet and rethink that past life . Now it really is very late, or is it very early.Al.

Hi:

A small tree in her room might help (if she has room). She can decorate with sparkly things, She'd see every morning and it might put her in a non yelling mood and she'd see it every night which might mean dreams instead of nightmares. it might take her mind off the big one. Bonus - then you'd have 2 trees instead of just one.:)
 

AL60

Registered User
Oct 14, 2016
509
0
Cheshire
Hi:

A small tree in her room might help (if she has room). She can decorate with sparkly things, She'd see every morning and it might put her in a non yelling mood and she'd see it every night which might mean dreams instead of nightmares. it might take her mind off the big one. Bonus - then you'd have 2 trees instead of just one.:)
Hi. I don't know if a small tree or any tree in her room would be a good idea, although it's a thought. Anyway, the new carpet is now down and the tree is back in the room so now she's quite content again. For now. We went to the Manchester Christmas market last Sunday afternoon. To my surprise she thoroughly enjoyed it . It was a cold afternoon and very crowded, two of the things that she doesn't like yet, after three hours it was me who had had enough and wanted to make our way back home. Honestly, her behaviour seems to be getting more and more childlike, the things she wants to buy are getting more and more unusual. I never say no though, not always anyway. But a cuckoo clock! I told her we wouldn't get one there but research them on line if she really wanted one. We are now the proud owner of a Disney type cuckoo clock which instead of a cuckoo has a tinkerbell on the hour. As I said before, more childlike choices. But as long as she's happy, then so am I. ☺Al.
 

AL60

Registered User
Oct 14, 2016
509
0
Cheshire
Hi. It's now just over three years since I first noticed something wrong with my wife and just two weeks short of the 'anniversary ' of that vascular dementia? diagnosis. It's been a bit of a bumpy ride to say the least. But, we're still here and still going strong(ish). I sometimes wonder what another year will bring but then I just think why, just live for the now , this is as good as it's ever going to be. I try not to worry about what might happen next. Easier said than done but I don't think it's healthy to worry over something that only might happen. Yet here i am again, one thirty in the morning unable to sleep for worrying about the future. I said it was easier said than done didn't I. Al.
 

Amethyst59

Registered User
Jul 3, 2017
5,776
0
Kent
Hi. It's now just over three years since I first noticed something wrong with my wife and just two weeks short of the 'anniversary ' of that vascular dementia? diagnosis. It's been a bit of a bumpy ride to say the least. But, we're still here and still going strong(ish). I sometimes wonder what another year will bring but then I just think why, just live for the now , this is as good as it's ever going to be. I try not to worry about what might happen next. Easier said than done but I don't think it's healthy to worry over something that only might happen. Yet here i am again, one thirty in the morning unable to sleep for worrying about the future. I said it was easier said than done didn't I. Al.
Ha! Yes, it is definitely easier to say than to do! If only we could cope with the here and now, and ignore the ‘maybe’ then life would be a lot easier! But here I am...at three thirty, reading your post and worrying about Thursday...instead of sleeping. Wise. Not!
But at least I don’t have Tinkerbell waking me on the hour! It does sound pretty, actually!
 

margherita

Registered User
May 30, 2017
3,280
0
Italy, Milan and Acqui Terme
Hi,@AL60,
I am worried about the future, too, but what distresses me most, is that I can't even imagine what things will be like even in a not too far future.
I know we have power ( if any) only on the here and now, but this uncertainty is something hard do accept
 

AL60

Registered User
Oct 14, 2016
509
0
Cheshire
Ha! Yes, it is definitely easier to say than to do! If only we could cope with the here and now, and ignore the ‘maybe’ then life would be a lot easier! But here I am...at three thirty, reading your post and worrying about Thursday...instead of sleeping. Wise. Not!
But at least I don’t have Tinkerbell waking me on the hour! It does sound pretty, actually!
Hi, I know it sounds cruel but tinkerbell can be silenced. Or at least turned down. ☺. Al.
 

AL60

Registered User
Oct 14, 2016
509
0
Cheshire
Hi. Here we go again, another sleepless night and nothing to post home about. Another busy week coming to a close, and here I lie, in the darkness of the bedroom, completely frazzled and wide awake. Looking back it really has been a funny old week. On Monday my daughter came home from work feeling, 'out of sorts', on Tuesday her dr sent her to hospital A&E to properly assess what was wrong. Gastroenteritis, great, is it catching thought I , all heart aren't I . Anyway, one of my other daughters invited her to go and stay at hers up in the lakes for a bit of respite. Is it just me or am I not quite getting something right here. Please don't hesitate to tell me if I'm sounding a little selfish. I must admit, if I'm out and about and meet someone I know they ask the question, how are you, how are you coping, it's almost as if I'm programmed to answer , fine, no problems we can manage who am I kidding, say one thing and mean something totally different. I guess that the rest of the family think we're coping ok, in many ways I think we really are doing alright. But deep down I'm in turmoil, that's the real reason I'm posting here at daft o'clock when I should really be asleep, if anyone needs a beauty sleep it's me☺So, what will Saturday bring? I suppose I'll just have to wait and see. Right, sleep time, just lie down, close eyes, think of nothing in particular and drift away. Still hereAl.
 

Staff online

Forum statistics

Threads
138,115
Messages
1,993,113
Members
89,779
Latest member
peanutbrain