Hi there. My wife, Evie, is 61 and was diagnosed 5 years ago. Recently she went down hill dramatically and now needs 24 hour care because she doesnt sleep through the night and can't stand on her own. I am paying for private carers during the day 9 - 6pm as I am still working (the mortgage has another 8 years to go). They are 4 lovely ladies who live locally, love Evie dearly and work half a day at a time. But now we need night care (9pm-7pm)to keep an eye on her during the night to stop her falling out of bed and keep her comfotable as I haven't slept for two nights! I was wondering how other people cope in similar situations and how you arrange cover that allows you to work and care for your loved one at home? Unfortunately I have a job that demands variable hours so bridging the 6pm - 9pm gap can sometimes be difficult especially if I have to travel abroad. I'm about to get direct payments for some of the care time, but not all. We are waiting for Evie's case to be put before the social services panel to determine the level of care she requires or that they are prepared to provide. If anyone's got any good ideas or experience that might help I'd be very pleased to hear about them. Desperation sets in around 4am of a long night. Sorry if this all sounds a bit business like - but when you get to this stage that's exactly what it's like and that's why I hate the disease even more.