1. Expert Q&A: Protecting a person with dementia from financial abuse - Weds 26 June, 3:30-4:30 pm

    Financial abuse can have serious consequences for a person with dementia. Find out how to protect a person with dementia from financial abuse.

    Sam, our Knowledge Officer (Legal and Welfare Rights) is our expert on this topic. She will be here to answer your questions on Wednesday 26 June between 3:30 - 4:30 pm.

    You can either post questions >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll answer as many as we can on the day.

  1. rummy

    rummy Registered User

    Jul 15, 2005
    700
    Oklahoma,USA
    Hi everyone,
    My Mom fractured her hip two days ago. It just gave way and she fell. Mom is advanced AD, down to 80lbs and extremely frail. We made the decision to not put her through surgery because most believe she wouldn't survive it or if she did, the anesthesia would most likely cause worse brain damage. They also said that she would be unable to participate in physical therapy after surgery(because of her advanced AD) and if she can't, no meaningful recovery would be possible. So we have moved her to a private room and are making her as comfortable as possible. She isn't in pain and is sleeping most of the time. When she does awaken, she smiles.
    There is no way to know where this is going from here but most believe she isn't going to survive long. But you never know because we have seen my Mom bounce back from bad situations before.
    The most important thing I had to ask myself was, " What are we trying to accomplish, do anything to bring her back and to what?"
    If by some chance this could be repaired are we doing it only to bring her back to furthur decline into the vegetative stage of AD?" I just can't do it to her. If it is her time, I will let her go.
    Now it is in God's hands and we are just going to make each day as good as it can be.
    Take care,
    Debbie
     
  2. Skye

    Skye Registered User

    Aug 29, 2006
    17,000
    SW Scotland
    Dear Debbie

    So sorry to hear your news about your poor mum.

    I think you've made the right decision. There is no point in putting her through an operation if it's not going to give her her mobility back.

    As long as she can be kept pain-free, peace and loving care are what she needs now.

    Love,
     
  3. Brucie

    Brucie Registered User

    Jan 31, 2004
    12,413
    near London
    Hi Debbie

    I'm absolutely with you on this. Totally.

    It doesn't make it any easier of course, but you have balanced risks, added love and - in my opinion - you have done the right thing.

    Please let us know how you all get along.

    You have been a member for ages and I am so pleased you return to keep us updated when you can.
     
  4. rummy

    rummy Registered User

    Jul 15, 2005
    700
    Oklahoma,USA
    hi bruce

    Oh gosh, I love that Brucie !

    I thank you and Hazel so much for your support. I haven't had anyone say "are you sure?" or suggest it was the wrong thing to do. It is just hard to make those life altering decisions! I will keep you all posted. You are so very important to me and the source for my keeping my sanity the last few years!!

    Love, Debbie
     
  5. gigi

    gigi Registered User

    Nov 16, 2007
    7,788
    East Midlands
    Debbie..I also believe you've made the right decision here..there comes a time when "enough is enough"

    Hope your mum will be comfortable and cared for..I'm sure she is aware when you're there..and of your love..

    Thinking about you..

    Love Gigi xx
     
  6. sheilarees53

    sheilarees53 Registered User

    Apr 11, 2006
    37
    Beckenham Kent
    Hi Debbie,

    I also think you are doing the right thing for your mum. Comfort and love are the most important things now.

    I lost my mum three weeks ago, but I know that the time I spent with her, just holding her hand and telling her that I loved her was so important.

    Quality of life, in my opinion, doesn't come into it when someone we love is in the latter stage of dementia.

    My thoughts and love are with you. Take care. Sheila x
     
  7. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    68,668
    Kent
    Dear Debbie, I can`t imagine anyone saying `are you sure?` about the care of your mother. Surgery in her state would probably cause her discomfort, rather than ease it.

    She sounds so fragile, I wish the best for her and for you.

    Love xx
     
  8. fiona4

    fiona4 Registered User

    Feb 6, 2008
    7
    Southampton
    Hi Debbie

    You are doing the best thing so well done for being brave enough to do it. My Mother is similar and also fell and fractured her hip recently, luckily she didn't need an operation but I know for sure she wouldn't have coped with it if she had had one. I was lucky enough not to have to make that decision but she has since had two infections for which she has received antibiotics. We have decided that if she becomes ill we don't want her to be taken to hospital but to receive treatment in the lovely nursing home she is in at the moment. It is all a balancing act really trying to do our best for her.
    Thinking of you
    Fiona
     
  9. jenniferpa

    jenniferpa Volunteer Moderator

    Jun 27, 2006
    39,417
    Dear Debbie

    Not a lot to say really, except that the choice you have made would have been the one I would have made in that situation.

    Love
     
  10. christine_batch

    christine_batch Registered User

    Jul 31, 2007
    3,388
    Buckinghamshire
    Dear Debbie,
    Although it is a very tough decision to make, there does come a time when it is ot of love and compassion that we no longer want to see them suffer any more and are at peace from this terrible illness.
    I know what you are going through as Peter is in the last stage and I have been told it is just a matter of time, so each time the phone goes I dread answering it.
    My thoughts are with you and your Mum.
    Very best wishes
    Christine
     
  11. Taffy

    Taffy Registered User

    Apr 15, 2007
    1,314
    Dear Debbie,

    Decisions like this are always tough ones and I admire your choice... one that is all about your mum.

    I hope that if I'm faced with this situation that I also will have the courage to make the same choice...it must be about them and not us and our loss.

    Caring Thoughts, Taffy.
     
  12. rummy

    rummy Registered User

    Jul 15, 2005
    700
    Oklahoma,USA
    I saw Mom yesterday afternoon and she is receiving wonderful care and attention. Nurses aids are coming in on their lunch breaks just to check on her and it warms my heart to see how many people Mom has touched. The hospice chaplain was there yesterday too.
    Mom was more disoriented and restless. It is hard for her to just lie there as she has always been so active. She doesn't understand and I can tell it is causing her to be confused. I put family pictures in a collage next to her and I can't tell if it has brought her any comfort or not. She frowned at some of them!
    My biggest fear is that she will linger and decline so slowly and be so miserable. But that is one of those things we have no control over so I'm trying not to think about it and appreciate each day.
    Thank you all for your words of support and comfort. I always know I can come to TP and unload!
    Much Love, Debbie
     
  13. Nell

    Nell Registered User

    Aug 9, 2005
    1,170
    Australia
    It doesn't make it any easier of course, but you have balanced risks, added love and - in my opinion - you have done the right thing.

    I totally agree with Bruce's comment above.

    This is a very difficult time for you but please know you are in our thoughts and so is your dear mother.

    May the next little while be as positive as possible for all of you.
     
  14. snooky

    snooky Registered User

    May 12, 2007
    104
    devon
    Dear Debbie,
    Just wanted to say that I am sorry to hear about your mum, but as others have said, truly believe that the right thing has been done. You sound a very caring daughter and my caring 'vibes' go out to you. Look after yourself and your mum.
    Love
    Snooky xx
     
  15. connie

    connie Registered User

    Mar 7, 2004
    9,519
    Frinton-on-Sea
    Debbie dear, so sorry to read this latest thread, but thank you for updating us.

    Your comments:
    speak volumes. I am sure what you are doing is so right.
    Thinking about you, love n'hugs,
     
  16. rummy

    rummy Registered User

    Jul 15, 2005
    700
    Oklahoma,USA
    Yesterday I found Mom in alot of pain. She couldn't really tell me what was wrong so I grabbed a nurse and a physical therapy aid to take a look. Seems a trainee in trying to prevent bed sores, turned her onto her fractured side, sigh. Did correct it and after some meds, she settled down. She is sleeping alot more and hard to awaken. Hospice tells me that any trauma to the body will accelerate AD and the sleeping is part of that. They also say that she will get less and less responsive and may experience more pain which they will increase her meds for.
    She isn't eatting so much either. They say she can last a couple of weeks or many weeks like this. I am astounded by how much the human body can endure.
    I have a friend that lost her MIL this week. She was in her 90's, healthy, had her mind. She simply took a deep breath and died. One day I will ask God why it is one person can just check out with a deep breath and another takes a slow decline to go. Just one of those mystery of life, perplexing things.
    On the up side, Mom still knows me and smiles. That is a gift.
    I so appreciate all of your kind words and thoughts, it really helps!
    Love, Debbie
     

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