if this means he has no colon at all he has an ileostomy (stoma on right hand side) in which case much of the above does not apply, the output will however be more acidic and therefore more aggressive on the adhesive.he no longer has a colon
Thank you so much ! a virtual hug is always welcome !(((((Hugs))))) maryjoan. You have a lot on your plate, so this is just to help you feel better!
maryjoan, I can't imagine what you are having to deal with and am unable to give you any advice.I just wanted to send another hug.
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So very true and one of many reasons why TP is so precious. I hope you find comfort being able to write here and know that others do understand.
Thoughts and love
Loo xxx
Yes, I am trying to find something like that... thanks a lot - I have also had a phone call this afternoon - a journalist wanting to interview me regarding respite care or lack thereof - phoning again tomorrow pm to do interviewDoes Colostomy UK have a forum like TP?
Even if their leaflets arnt helpful, if there is a forum you might get some people who have already coped with this and more helpful advice
I just googled 'colostomy forum' and a Macmillan one came up, but I don't know how to put a link on here.Yes, I am trying to find something like that... thanks a lot - I have also had a phone call this afternoon - a journalist wanting to interview me regarding respite care or lack thereof - phoning again tomorrow pm to do interview
Thank you, I'm not very good with computers.I think this is the forum you were hoping to post https://community.macmillan.org.uk/...nd_colostomy_discussions/discussions?pi5462=1
(To post a link, just click the 'chain' image from the menu which sits at the top of the reply box. It's the 7th icon in from the left)
Hi everyone. Look, am I being selfish? We’ve spent this afternoon looking at a film and then my wife sees nothing on the tv that she likes so wants to go to bed ...at 17.00. She wants me to do the same. I say no and I’m accused of being selfish never thinking of what she wants.{not true) . She Goes upstairs in a sulk. Trouble is that she doesn’t really understand anything grown up on the tv passed 18.00. I want an easy life but going to bed 17.00 is pushing it too far....or am I being self centred? How would you guys handle it?Most posts write their selves. They says friends are only a thought away. Good night everyone!
Thanks everyone. Thing is , I that when I got upstairs at about 20.00 she said you’re late so I got her to listen to the speaking clock to prove she was wrong. If I can get to about 20.00 then I can at least read. It’s 00.2 and she says to me in bed ...is that you. Yes I say, who do you think it is and she says I don’t mind. Really!! Funny really, well not really. Had two occasions now where she thinks I’m someone else. I believe I might be getting hardened to this. Is this what happens?. Watching something on telly now as can’t sleep.No, not selfish at all, quite unreasonable but then the illness makes this so.
Your wife is probably just asking for reassurance as much as anything. A bit like children who keep asking for water.
Canary's ideas are good. Just reassure and distract, use delaying tactics.
If she wakes up too early that is another problem, mine does when he gets anxious especially when we have an appointment so I reassure and settle him down again.
Like with children there is an instinct for rattling you, so keep calm reassure and the anxiety may lessen.
Sleep well
Thanks everyone. Thing is , I that when I got upstairs at about 20.00 she said you’re late so I got her to listen to the speaking clock to prove she was wrong. If I can get to about 20.00 then I can at least read. It’s 00.2 and she says to me in bed ...is that you. Yes I say, who do you think it is and she says I don’t mind. Really!! Funny really, well not really. Had two occasions now where she thinks I’m someone else. I believe I might be getting hardened to this. Is this what happens?. Watching something on telly now as can’t sleep.