Time to visit

Wozzie

Registered User
Jul 12, 2016
536
0
Cheshire
On Monday we had to find emergency respite for mum.
We didn't visit yesterday to give her time to settle in, so today I'm going to visit
I feel sick thinking about it, I really want to see her but I feel so very guilty for taking her out of her own home
My plan is to go in with a smile on my face and to be as upbeat as I possibly can....... in theory !
Anyone have any advice for this 1st visit ?
Mum thinks she's there while we get some emergency work done on her home ..... hate lying to her
Anne
 

HillyBilly

Registered User
Dec 21, 2015
1,946
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Ireland
I remember the trauma of the "first visit".
Yes, try and be as upbeat as possible, have your stock story (lie) ready plus some distraction techniques up your sleeve. Take chocolate? Don't stay overlong, time your exit for just before a meal time.
I hope it goes ok Anne x
 

Wozzie

Registered User
Jul 12, 2016
536
0
Cheshire
I remember the trauma of the "first visit".
Yes, try and be as upbeat as possible, have your stock story (lie) ready plus some distraction techniques up your sleeve. Take chocolate? Don't stay overlong, time your exit for just before a meal time.
I hope it goes ok Anne x

HillyBilly
Thanks, my stomach is doing somersaults just thinking about it - how ridiculous!
 

JPZ

Registered User
Feb 12, 2017
5
0
HillyBilly
Thanks, my stomach is doing somersaults just thinking about it - how ridiculous!

Yep I'm the same and No you're not ridiculous; be kind to yourself as this is one if the most difficult situations to deal with emotionally. I'm off to visit my Mum today, it's week 3 in CH and I've got a migraine come on and I've got tablets from my GP for anxiety!

My Mum appreciates presents - chocs (but not too many as she eats them all instead of meals!), colouring books, soft toys ....

I empathise and listen to her when she is upset etc but we will say 'it's just a break until your house is sorted etc etc.' But I do then try to move the conversation on to another topic and distract her.

I think you just have to tell yourself that you had to make a decision as the PWD cannot. I am having to learn that other people can also care and support my Mum and that I cannot make this better. But you are doing the best you can.

One visit at a time and one day at a time.
 

istherelight?

Registered User
Feb 15, 2017
128
0
Such a tough time. Mum's been in her CH for 7 weeks and I still sometimes get that slight sick feeling. And I still arrange to leave at meal times so she's distracted.

I remain resolutely upbeat (what an act!) and positivity has become my middle name. I know that there was no alternative and that she is safe, but that doesn't seem to get to my heart.

Good luck for Day 1 and for the days that follow.





Sent from my iPad using Talking Point
 

Beate

Registered User
May 21, 2014
12,179
0
London
Is this temporary respite? Then this time is yours to use as you see fit, and if you don't want to visit, you don't visit. The only thing forcing you is the guilt monster. Even if she was going into care permanently, there is often the advice not to visit for the first week to give them time to settle in.
 

LadyA

Registered User
Oct 19, 2009
13,730
0
Ireland
When my husband was in a nursing home (although it was full time, not respite), one thing I did was never bring my coat or bag in with me! That way, he didn't have any unspoken clues when I was actually leaving! He came to believe that I was always there, somewhere around the building - busy doing other things! Of course, the nursing home was near enough that I was there every other day, and sometimes every day. And I was always leaving as he was going for a meal. You could get a staff member to distract your mum while you leave, or go to the loo, and tell her "I'm going to the loo. See you in a bit."
 

Princess t

Registered User
Mar 15, 2016
184
0
I know the feeling well.....my mom went to ch on 7/2 just for a look, she's there still!! First week rest then now perminent. I feel so very sick before I go not knowing what I will find, but most times its positive. She loves it most times. I stay from half hr to two hrs depending what's going on, she does have other visitors. Yesturday when I went she was in big lounge having a sing song, and loving it. She wasn't bothered we were there, which I take as a good sign as she was adamant she would never go in a home. I feel guilty if I don't visit but the carers say she's fine and seems happy.
 

Wozzie

Registered User
Jul 12, 2016
536
0
Cheshire
Thank you all for your replies x
Visit went ok although she said a couple of times she wants to come home.
I distracted her and she was ok.
Staff tell me she ate 2 breakfasts this morning - she hasn't eaten properly for months, she slept ok and as I was leaving she was off to get her hair done !

This is permanent, not respite, mum thinks we're having work done on the house.

I'm now feeling a lot more settled and a bit less guilty x

Thanks for listening, you're an amazing lot
 

Amy in the US

Registered User
Feb 28, 2015
4,616
0
USA
Sorry I didn't post in time to reach you before you visited, but I'm glad it went reasonably well.

Please try to remember that YOU didn't "take her out of her own home," dementia did. The disease is the enemy, not you. You are not bad, or a bad person, or a bad daughter, although you probably feel that way sometimes (I know I do).

As far as feeling badly about lying, rather than thinking about whether you're telling the truth, the whole truth, and nothing but the truth, think about what you are saying, how you are saying it, and the impact it will have on your mum. Then think about what the kindest choice for her is. Sometimes I do tell the truth to my mother, when I can, but mostly I lie, prevaricate, change the subject, leave things out, distract her, you name it, anything and everything to avoid the truth about some issues. I do this because the truth would upset her, she can't comprehend things well anymore, her memory is shot, but that emotional reaction stays with her, and I will do anything to spare her anxiety and upset. (She had crippling and heartrendingly distressing anxiety before going into her care home.)

I personally think that while we have to do the best things possible for our PWDs in terms of physical and financial well being (getting them medical care, making sure they are safe, paying bills, managing finances, and all the other things my PWD can no longer do for herself), we also have to do the best thing possible in terms of emotional well being, at least as much as we can. (Sometimes there isn't anything we can do.) In my case, that includes lying like a rug, being cheerful and upbeat, and avoiding distressing her as much as possible.

Sorry, that was a bit wordy.

Try not to be too hard on yourself. Easy to say, difficult to do. Somebody here needs to hand you the pointy stick that you use for poking the Guilt Monster in the eye, when it gets too close to you.

Also, something that helped me a lot when my mother first went into the care home, was to call and have a chat with the staff. My mother's version of what she did in the care home (sitting alone in her room with no meds and no people for days on end) and what she was actually doing (eating 3 decent meals a day in the dining room, talking to people, going to all the activities, making a friend, having her hair done) were very different! It also allowed me a way to start to get to know the staff, as I wasn't visiting at that time. (My presence upset her so much, I didn't visit her for a month or more after she moved in.)

It's a big adjustment, but it does get better with time. The relief of knowing my mother was safe, properly fed, and getting the proper medications, was huge (as none of those things were happening at home), but it took a long time and a lot of help to get comfortable with the idea.

I always take something with me when I visit--chocolate, biscuits, a book, even boring items like toiletries are always well received, so it never hurts to be bearing a gift!

Again, try to be kind to yourself, and remember that TP is always open! Very best wishes to you and your mum.
 

Wozzie

Registered User
Jul 12, 2016
536
0
Cheshire
Thanks again everyone, just heard from the ch, not only did she have 2 breakfasts, she ate lunch and dinner too !!
This is someone who isn't hungry .....
 

Scouts girl

Registered User
Jan 18, 2017
306
0
Hello Wozzie
I can understand the difficult time you are going through and I just reiterate everything Amy in the USA has said. I, too had to make the awful decision last Christmas to get an emergency placement for my mum as she deteriorated so quickly both physically and mentally that I could not cope looking after her any more and was near breaking point. I told her at the time that we were just going to have a chat with someone to help her feel better and when the care manager said just leave and mum will be fine I fell apart but somehow had the energy to walk out of the door and get back home. It is one of the worst decisions I have had to make or will ever have to make in my life but I knew she needed 24 hour specialist dementia care and that was something I was unable to give her. I did visit her the next day, against the advice of the CH, but was so distressed and after a sleepless night felt I had to go and see how she was but was dreading the visit. Needless to say she was not at all happy and her anxiety levels were such that she was very distressed and just pleaded with me to take her home. Three months on and mum is now permanently resident in the CH. I am trying still to come to terms with the guilt that I feel, but know deep down, that I made the right decision at the time, both for mum's safety and my health and well being. It has certainly been a very stressful few months but she is starting to settle and although still gets distressed some days when I visit I resign myself to know that she is getting excellent care and is SAFE,

My advice is get to know the staff and manager well, be friendly and tell them how much you appreciate the care they are giving to your loved one. We all know we respond well to people being kind and friendly. Chat to the other residents and their families and I include mum in our conversations so that she too can get to know the other residents well and make friends to talk to.

It is such a heartbreaking time when a loved one succumbs to this awful illness and the emotions we as carers have to endure. I know that I am not a hands on carer for my mum now but feel that I am still caring for her emotionally and, of course all the other things we have to worry about such as care fees, sorting out finances, selling a property etc., etc., on top of the main concern about mum.

Even after all these weeks I still have to prepare myself for visiting her and hope that today will be a better day and I may find her a little more content than yesterday. I made a memory book for her which we look at when she is not having a good day and I try and distract her with the photos and little anecdotes that I have written in there. I also have tried to make her bedroom home friendly, with nice pictures on the wall, flowers, lamps, and certain ornaments from home. Also lots of photographs of the family too which she likes me to show her and it helps her to remember who everyone is.

Be strong, and just remember, you needed not wanted to get this care. Try and take as much time for yourself now as you can. Take each day as it comes as some days will be better than others. We just have to live with this awful illness as best we can but if we can still show our loved ones how much we care and still love them, even though we are not directly caring for them any more, we can only hope that somewhere in all the fog they will understand why we did what we had to do. I do count my blessings that my mum is still here with us and perhaps one day we will get back the wonderful mother/daughter relationship we once had.
 

Mummies Girl

Registered User
Nov 29, 2016
18
0
6 months in a CH and my mum has just settled. I still get the coming home comments sometimes and I'm not going to lie it's not been easy. I get anxious every visit not knowing what to expect but now every visit (twice a week) I can't wait to see mum. I hoping she's going to be happy and positive and generally she is. It's a hard journey but you will get there. Stay strong and positive x
 

Rosnpton

Registered User
Mar 19, 2017
394
0
Northants
Hi
Glad your visit wasn't as bad as you thought it could be
Our mum has been in ch for just over a year. She still thinks it's temporary we tell 'love lies' she went in as dad broke his leg and was assessed in hospital as not being fit to care for her-even with support.
Now if she goes off about going home,we blame the faceless social worker,and agree when they assess dad as OK to care for her again,she may go home. We know that's never happening, but she accepts that -most times.
Even now,a year down the line and countless visits, my stomach churns and my head aches as I go in the ch. never know what the mood will be if in a good place in herself or ready to explode. We were told to ask mum,at the end of a visit what little treat she wanted taking next visit.
She has an a5 diary that events ,visits,problems etc are written in by her / us/ staff, she writes- often illegibly- what she wants and we make a point of putting it in our note books/ I phone etc depending on who is visiting. We then make sure whoever is visiting next has bought the treat requested. Mum likes to 'inspect' the offering in the bag we use for her and recently made a show of crossing through the item in her list- I wonder if this is her remembering previous jobs in offices before computers when she had a 'to do list'?
We only take a couple of things each visit,that way she always has something to look forward to. Small cakes,sweets, weirdly blue biros asked for recently.
She also likes to 'play' with the photo stream on my I pad so we always have that to hand as a distraction.
The staff are very good at letting us know what is happening,and never mind a quick phone call to check up on her if she has been unsettled or in a low mood.
I do hope your mum comes to accept the ch and that you are able to enjoy your visits with her without having to be her carer.be her daughter/ friend/ visitor and remember you cared for her as long as you were able,and now someone else is helping you in that role
Thinking of you

Ros

Thank you all for your replies x
Visit went ok although she said a couple of times she wants to come home.
I distracted her and she was ok.
Staff tell me she ate 2 breakfasts this morning - she hasn't eaten properly for months, she slept ok and as I was leaving she was off to get her hair done !

This is permanent, not respite, mum thinks we're having work done on the house.

I'm now feeling a lot more settled and a bit less guilty x

Thanks for listening, you're an amazing lot