Hello everybody. Can I just air a few thoughts with you?
Mum is now being referred once again to Social Services as apparently we need them to access any sort of day care. As well as this, we are looking into other sorts of support with the AS, which I shall know more about next week.
Prior to seeing Mum's GP, I felt confident that asking for a little more support was OK. Mum is very good as she will sit tight at home and await further instructions, and would happily sit there for months probably, not being aware of time passing. Her well-being is my worry only -she isn't concerned about anything very much, so far as I can tell. I now feel guilty again for having even thought of sending her to a day centre, even though we have reached the stage, I believe, that to give her any more than I am already providing, would mean giving up my life totally. It's a huge mental tousle for me -shouldn't I be doing just that?
She doesn't need much physical care other than going up to ensure she gets in her shower, changes her clothes etc. I provide all her food, and I supplement my meals with frozen ones which, until yesterday, I thought she was managing. I discovered she was letting them defrost prior to cooking -and they're supposed to be cooked from frozen. Yet by the time I have done these things, plus all the million and one other things (mail, finances, tablet,appointments etc etc etc), my days fast disappear. Some days I no longer know where to begin, there is so much to see to, and I end up doing nothing.
I don't wish the SS, the AS or anyone else to think that I really have nothing very much to complain about, that it's too early to think of Day Centres etc. I don't want people to think I'm unable to cope when others do at this stage.
Am I right to be doing this? It isn't that I can't cope with looking after her, just that I no longer have any energy to deal with any sort of life here. Plus I want her to have something pleasant to do.
You can tell me what you think -please be frank.
The Aricept was discontinued for 2 weeks to see if this was causing the headaches etc, but symptoms continued and the Dr has said she must start them again.
I think of everyone here, and especially Jane and Oonagh.
Mum is now being referred once again to Social Services as apparently we need them to access any sort of day care. As well as this, we are looking into other sorts of support with the AS, which I shall know more about next week.
Prior to seeing Mum's GP, I felt confident that asking for a little more support was OK. Mum is very good as she will sit tight at home and await further instructions, and would happily sit there for months probably, not being aware of time passing. Her well-being is my worry only -she isn't concerned about anything very much, so far as I can tell. I now feel guilty again for having even thought of sending her to a day centre, even though we have reached the stage, I believe, that to give her any more than I am already providing, would mean giving up my life totally. It's a huge mental tousle for me -shouldn't I be doing just that?
She doesn't need much physical care other than going up to ensure she gets in her shower, changes her clothes etc. I provide all her food, and I supplement my meals with frozen ones which, until yesterday, I thought she was managing. I discovered she was letting them defrost prior to cooking -and they're supposed to be cooked from frozen. Yet by the time I have done these things, plus all the million and one other things (mail, finances, tablet,appointments etc etc etc), my days fast disappear. Some days I no longer know where to begin, there is so much to see to, and I end up doing nothing.
I don't wish the SS, the AS or anyone else to think that I really have nothing very much to complain about, that it's too early to think of Day Centres etc. I don't want people to think I'm unable to cope when others do at this stage.
Am I right to be doing this? It isn't that I can't cope with looking after her, just that I no longer have any energy to deal with any sort of life here. Plus I want her to have something pleasant to do.
You can tell me what you think -please be frank.
The Aricept was discontinued for 2 weeks to see if this was causing the headaches etc, but symptoms continued and the Dr has said she must start them again.
I think of everyone here, and especially Jane and Oonagh.