Sorry to be hypothetical but a story I have heard today has driven me to posting this ........ and ask for anyone who can offer any advice to help ......
This 65 year old woman is in an NHS hospital .... not a specialist dementia care ward - with no definitive diagnosis other than she has 'some form' of dementia - perhaps caused by lack of oxygen to the brain following a major heart attack? ... perhaps something else? Perhaps a combination of 'something elses'?
This woman is frightened by other 'residents' on the ward ... some of whom clearly have 'mental health' issues and exhibit symptoms which would be distressing to anyone, let alone a 65 year old woman who herself is confused and frightened .... This woman is subject to being 'toileted' once every 4 hours when staffing allows ...... this woman is most often toileted by a male nurse against her wishes ........
This woman has family who are concerned for her ...... a family who has been given one prognosis that this much loved woman might have no more than 12 months to live .... more than 18 months ago ....... a family who now has no prognosis ..... and diagnosis rescinded ....... this woman has a family left bewildered ....
This woman has enjoyed being allowed to 'go home' - to her partner and her family ....... for a few days, or a few hours .....
This woman is now being denied this ... on the basis of a consultant suggesting it is difficult to settle her on her return to the hospital ...... (takes his poor staff at least an hour - oh, how my heart bleeds for them!) ....... Seems this woman has a consultant who can decide what is in 'her best interests' ....... but cannot diagnose what exactly is causing her problems?????? How could someone be so definite about one thing without the other???????
This woman does not fit any stereotype of an Alz sufferer (if any such thing exists) ...... this woman's symptoms are said to be unique (alternative medical speak for 'we haven't got a clue!'?) ....
This woman - and her family - surely still have rights to dignity, to choice ...... and not to be dictated to .....
This woman could be our mother, our wife, our partner, our parent, our uncle, our nan (for 'woman' substitute man throughout) ... most of all ... any thoughts to help those who love and care for 'this woman' gratefully received ......
Thank you.
Karen (TF), x
This 65 year old woman is in an NHS hospital .... not a specialist dementia care ward - with no definitive diagnosis other than she has 'some form' of dementia - perhaps caused by lack of oxygen to the brain following a major heart attack? ... perhaps something else? Perhaps a combination of 'something elses'?
This woman is frightened by other 'residents' on the ward ... some of whom clearly have 'mental health' issues and exhibit symptoms which would be distressing to anyone, let alone a 65 year old woman who herself is confused and frightened .... This woman is subject to being 'toileted' once every 4 hours when staffing allows ...... this woman is most often toileted by a male nurse against her wishes ........
This woman has family who are concerned for her ...... a family who has been given one prognosis that this much loved woman might have no more than 12 months to live .... more than 18 months ago ....... a family who now has no prognosis ..... and diagnosis rescinded ....... this woman has a family left bewildered ....
This woman has enjoyed being allowed to 'go home' - to her partner and her family ....... for a few days, or a few hours .....
This woman is now being denied this ... on the basis of a consultant suggesting it is difficult to settle her on her return to the hospital ...... (takes his poor staff at least an hour - oh, how my heart bleeds for them!) ....... Seems this woman has a consultant who can decide what is in 'her best interests' ....... but cannot diagnose what exactly is causing her problems?????? How could someone be so definite about one thing without the other???????
This woman does not fit any stereotype of an Alz sufferer (if any such thing exists) ...... this woman's symptoms are said to be unique (alternative medical speak for 'we haven't got a clue!'?) ....
This woman - and her family - surely still have rights to dignity, to choice ...... and not to be dictated to .....
This woman could be our mother, our wife, our partner, our parent, our uncle, our nan (for 'woman' substitute man throughout) ... most of all ... any thoughts to help those who love and care for 'this woman' gratefully received ......
Thank you.
Karen (TF), x