’How are things at home?/ how is pwd?’ Said at the start of every conversation I‘ve had this week. I get that people are being nice, possibly even concerned, but just for once I’d like to talk about something (anything!) else.
‘I admire how well you are coping’. Said by someone who has no idea how I’m coping, but it makes them feel better about not offering any help.
‘He’s still the same person’ said by people who didn’t know him before and don’t understand how unreasonable and controlling this illness is. Also particularly unhelpful said to our children, who feel rather differently.
‘Living well with dementia’. Well he might be, but the children and me are not ‘living well’, we are surviving.
Anyone else?
‘I admire how well you are coping’. Said by someone who has no idea how I’m coping, but it makes them feel better about not offering any help.
‘He’s still the same person’ said by people who didn’t know him before and don’t understand how unreasonable and controlling this illness is. Also particularly unhelpful said to our children, who feel rather differently.
‘Living well with dementia’. Well he might be, but the children and me are not ‘living well’, we are surviving.
Anyone else?
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