Things not going well....

Discussion in 'ARCHIVE FORUM: Support discussions' started by DaisyG, Mar 23, 2007.

  1. DaisyG

    DaisyG Registered User

    Feb 20, 2006
    North West England
    I've been busy this last week or so, so have not really been able to read much / or post much on here.

    My husband is in ICU and has pneumonia.
    It's serious, and things look VERY BAD.
    He has been on a ventilator for over a week now, and is not responding to any treatment.

    I've had 'the end' chat with the Senior Consulatant.
    We both cried.

    Unless some miracle happens I beleive it is just a matter of time now.

    It's so very difficult watching someone drift away from you.

    VaD has been controlling our lives for so long now, it's cruel for the end to be this way.

    I thought I'd share what I've been up to, as I know people on here are kind and concerned for one another.

    I'll be in touch.

    Take Care

  2. DeborahBlythe

    DeborahBlythe Registered User

    Dec 1, 2006
    Thinking of you both

    Hello Daisy, really sorry to hear your worrying news. Thinking of you both and hoping that things improve for you both. Love
  3. mel

    mel Registered User

    Apr 30, 2006
    Hi Daisy
    I'm sorry to hear this.
    I understand what you are going through and just want to send you my love
    Love Wendy xx
  4. angela.robinson

    angela.robinson Registered User

    Dec 27, 2004
    hi Daisy. i have been thinking of you recently , and worried how you were coping ,i am sorry things have taken this rapid change,as often happens, i know you dont have much family support , but people on TP do care about you , take care. ANGELA.XX
  5. BeckyJan

    BeckyJan Registered User

    Nov 28, 2005
    So sad to hear your news - thinking about you. Beckyjan
  6. Skye

    Skye Registered User

    Aug 29, 2006
    SW Scotland
    Daisy, so sorry to hear your news. That situation is so hard to bear, knowing there is nothing you can do to help.

    Look after yourself,

  7. Sunlight

    Sunlight Registered User

    Feb 12, 2007
    Thinking of you at this difficult time.
  8. Tender Face

    Tender Face Account Closed

    Mar 14, 2006
    NW England
    Well done posting Daisy. You know you have many friends here who are thinking of you - especially at this time.

    Love, Karen, x
  9. Gill W

    Gill W Registered User

    Jan 31, 2007
    Co. Durham
    Another one here, words can't help very much, but my thoughts are with you.

    Another prayer added to my list this evening.

    Take care of yourself. Lots of love and hugs.

  10. Amy

    Amy Registered User

    Jan 4, 2006
    Thinking of you both Daisy
    Love Helen
  11. daughter

    daughter Registered User

    Mar 16, 2005
    I was also wondering how you were getting on Daisy, I'm sorry to hear your news, thinking of you.

    Love Hazel.
  12. Margarita

    Margarita Registered User

    Feb 17, 2006
    I also was wondering about you for a while , but I know you know that we are always hear for you when your ready to post , I am sorry to read what is happening to your husband , my thoughts and love are always with you , especially at this time xx
  13. Grandaughter 1

    Grandaughter 1 Registered User

    Jan 17, 2006
    Dear Daisy,

    I am so sorry to hear your news. I will be thinking of you.

    Take care.

    Love Louise x
  14. Nell

    Nell Registered User

    Aug 9, 2005
    Another person sending you {{{{HUGS}}}} and thoughts for you. Nell
  15. connie

    connie Registered User

    Mar 7, 2004
    Dear daisy, my prayers are with you andyour husband. Stay strong, love,
  16. jan.

    jan. Registered User

    Apr 19, 2006
    Cheshire, UK.

    So dreadfully sorry to read your post. Sending you love and BIG hugs,and thinking of you at this sad/anxious time.

    Jan. Xxx
  17. alfjess

    alfjess Registered User

    Jul 10, 2006
    south lanarkshire
    Hi Daisy

    Thinking of you and sending you lots of hugs.

  18. DaisyG

    DaisyG Registered User

    Feb 20, 2006
    North West England
    No change....

    Dear TP family,

    Still no change with my husband.
    Not even a slight improvement.

    Family (in-laws) FINALLY supportive, but really it's too late to make it count.
    They should have been here to support me over these last few years.

    I've been meeting such nice families in the hospital in similar 'situations-ish'.
    We kind-of have our own TP family in the relatives room.
    We've all laughed and cried together, and still the days drag on for us all.

    Take care everyone, and again A BIG THANK YOU for yout thoughts and kind words.

    I'll be back in a day or so.

    Take Care,

  19. DaisyG

    DaisyG Registered User

    Feb 20, 2006
    North West England
    Bit of an update.. still not going well though...

    Hi All,

    I'm back with news on husband.

    He's still in ICU and currently being weaned from the main ventilator.
    He 's not as sedated as he was, as they need to wean him off the sedation as well.

    The moving ahead plan is to hopefully get him to the High Dependency Unit in the next week or so, but his breathing needs to be a LOT better before this happens.

    He does not really know 'who i am' and i'm not sure if this is because he is still under the influence of the sedative drugs... or he does not know who I am in general.

    The 'supportive in-laws' :rolleyes: , are still in a sort-of support mode... but this can vary.
    I still do not trust them.

    His brother is CONVINCED that he had a conversation with him, and has told the rest of the family this.
    The thing is... he can sometimes 'respond a little', to any questions asked to him, by nodding a little.... or shaking his head 'no'.
    BUT if you were to say that 'the sky is red... for instance...'.... he would nod 'yes'....
    He has a 'trachy', and can't talk... right now.
    He brother told the others that he was mouthing a conversation to him... and that he understood EVERY word he was trying to say.

    I've been told my my moaning MIL (sorry), that I HAVE TO agree with what the others have been told by their brother ... as it is TOO UPSETTING for them to face the truth.

    BUT what about me?

    Thought I'd give you all a quick update.
    Sorry it's not better news.

    Take Care,

  20. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    Dear Daisy,

    I`ve only just caught up with your latest news as I`ve been away.

    I`m sorry your husband has been so poorly, and wish you both, all the best.

    His family sound so much like outsiders, who want to show they are insiders, by the special conversations, only they seem to have.

    I`m glad you have another TP family at the hospital, it`s wonderful how quickly these relationships develop, when you meet as strangers but share a common bond.

    Thank you for keeping us posted. There are so many here who really care.

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