When i started caring for Jean, I looked on this site and was horrified to see what other people were having to put with.
So much so that I did not register or look on th site again. I was quite sure that Jeans AD would not get to the latter stages for many years and also quite sure that I was going to cope, no matter what.
Gradually , as her language and communication skills faded, her behaviour changed radically, the disturbed nights, weeping and wailing and constant attention seeking progressed, I made my way on to the site for help, reassurance, guidance, the chance to interact with other people in the same situation and, through the tea room, have a chance to unwind.
Unfortunatley, one of the side effects of reading posts about more advanced cases, is that I seem to have become hardened to Jeans condition and now take things whatever comes as if it is to be expected, normal and natural.
Please do not get me wrong. When i say hardened to the condition I do not mean hardened towards Jean. How could anyone possibly be hard on someone whose mind, through no fault of her own, has virtually gone and who is struggling to make sense of a world that only she knows.
I think the other point i need to make is that i have not become hardened towards other sufferers of the disease or the people that care for them that post in these forums. Everyone on here has my deepest respect and admiration.
It's just the disease I have become hardened to but i still think I would come away from the field with my own troubles.
So much so that I did not register or look on th site again. I was quite sure that Jeans AD would not get to the latter stages for many years and also quite sure that I was going to cope, no matter what.
Gradually , as her language and communication skills faded, her behaviour changed radically, the disturbed nights, weeping and wailing and constant attention seeking progressed, I made my way on to the site for help, reassurance, guidance, the chance to interact with other people in the same situation and, through the tea room, have a chance to unwind.
Unfortunatley, one of the side effects of reading posts about more advanced cases, is that I seem to have become hardened to Jeans condition and now take things whatever comes as if it is to be expected, normal and natural.
Please do not get me wrong. When i say hardened to the condition I do not mean hardened towards Jean. How could anyone possibly be hard on someone whose mind, through no fault of her own, has virtually gone and who is struggling to make sense of a world that only she knows.
I think the other point i need to make is that i have not become hardened towards other sufferers of the disease or the people that care for them that post in these forums. Everyone on here has my deepest respect and admiration.
It's just the disease I have become hardened to but i still think I would come away from the field with my own troubles.