I put this on another thread late last night but feel it needs a new thread of its own. Talking Point is the one place where we can express our anger, sadness and dismay when things go wrong in the care of our loved ones. However what is so frustrating for me, as Ellie has so eloquently and passionately said, is that we need more than just a place to express ourselves. We need to somehow to get together and be able to take action in bringing such experiences to the powers who can change things. In order to do this we must start to collate these experiences and categorise them. Try to see if any sort of pattern emerges which can be used to constructively change things.
Perhaps we could have some headings on our new Talking Point Website so that our experiences can be recorded and, if useful and with permission from the poster, be used to try to bring such things to the attention of people who may be able to change things for the better. This is not to take the place of individual action but to enhance it. Our collective voice is always stronger than our individual voice. We seem to have recurrent problems in certain areas which could become headings on TP. Eg., headings such as EMI Hospital Wards - EMI Nursing Homes - Social Worker experiences - Medication Problems etc etc. and make these 'sticky' threads somewhere. Individual experiences are at the same time unique but also have elements common to us all at some point in our journey. The TP Factsheets are very helpful but I feel we need in addition a 'campaigning' purpose where our collective voices can be used. I have some free time and have limited skills on the computer which I willingly offer.
Does anyone think this a good idea??? xxTinaT
Perhaps we could have some headings on our new Talking Point Website so that our experiences can be recorded and, if useful and with permission from the poster, be used to try to bring such things to the attention of people who may be able to change things for the better. This is not to take the place of individual action but to enhance it. Our collective voice is always stronger than our individual voice. We seem to have recurrent problems in certain areas which could become headings on TP. Eg., headings such as EMI Hospital Wards - EMI Nursing Homes - Social Worker experiences - Medication Problems etc etc. and make these 'sticky' threads somewhere. Individual experiences are at the same time unique but also have elements common to us all at some point in our journey. The TP Factsheets are very helpful but I feel we need in addition a 'campaigning' purpose where our collective voices can be used. I have some free time and have limited skills on the computer which I willingly offer.
Does anyone think this a good idea??? xxTinaT
Last edited: