1. Sandy

    Sandy Registered User

    Mar 23, 2005
    6,847
    That's the title of this article on early onset dementia that appeared in Saturday's Times:

    http://women.timesonline.co.uk/tol/life_and_style/women/families/article2715310.ece

    So many aspects of this gentleman's story have appeared in the posts on Talking Point. Having all the threads gathered together and woven into a sensitive article in a major newspaper was an "pleasant" (in the sense of raising awareness) surprise.

    Take care,

    Sandy
     
  2. jenniferpa

    jenniferpa Volunteer Moderator

    Jun 27, 2006
    39,418
    This is an excellent article - thanks for pointing it out.
     
  3. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    68,649
    Kent
    Thank you Sandy. What a `correct` article. I identified with every word.
     
  4. zebb37

    zebb37 Registered User

    Aug 12, 2007
    31
    salisbury
    looking for the crying smilie:(
     
  5. Westie

    Westie Registered User

    That could have been written about us. How I identify with Sarah.

    Thank you Sandy for locating it.
     
  6. janetruth

    janetruth Registered User

    Mar 20, 2007
    563
    nuneaton
    If anything, I have learned since Mum, who has AZ, came to live with us, is this.

    When talking to other people, about this TERRIBLE ILLNESS, they show some interest but soon want to change the 'subject'.

    I found myself WANTING to read this article, because I NOW realise that AZ is claiming younger people and it's not something that just, 'old people' get.

    It is like most things in life, unless it affects us or our loved ones, we try to empathise but have no true understanding.

    It is difficult to raise awareness about ANYTHING unless the people you are trying to educate, are willing to listen.

    Maybe there are more younger victims due to, diet and pollution, something in the water or genetic, who knows.

    Education starts at School, perhaps that is where we should be targeting the awareness.
    Thanks for 'giving ' us the article Sandy.
    Janetruth x
     
  7. Brucie

    Brucie Registered User

    Jan 31, 2004
    12,413
    near London
    When the new Talking Point forum format is launched in November, one feature will be a "Poll of the month".

    I plan to make the first poll one that members can use to indicate the age at the appearance of first symptoms of the one they care for, or they know who has dementia.

    I have run a few polls before and they are available in http://www.alzheimers.org.uk/talkingpoint/discuss/forumdisplay.php?f=17

    There is already one there on the age of the person with dementia. I got the age ranges a bit wrong on that one because young onset is defined as before 65 years of age, and that breakpoint was not well defined.

    The membership of TP is an ever changing one and polls will be repeated over time to reflect that.

    Any suggestions for subsequent poll questions are happily received.
     
  8. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    68,649
    Kent
    Yes Bruce.

    I would find it interesting to know the length of time between first signs and diagnosis.

    I first approached the GP re Dhiren in May 2004, he was diagnosed in September 2005, but the first signs, with hindsight, were 1999.

    So this condition may have been developing for 5 years before any action was taken.

    In the future, when research produces more effective treatment or control of the condition, the time factor may prove very important in extending quality of life.
     
  9. jackie1

    jackie1 Registered User

    Jun 6, 2007
    238
    Cheshire
    I'm sending a copy to John's family as hopefully it will enable them to understand what we are facing a bit better.
    Jackie
     
  10. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    68,649
    Kent
    #10 Grannie G, Oct 28, 2007
    Last edited: Sep 16, 2010

    Will this do? View attachment 1958
     
  11. unclekev

    unclekev Registered User

    May 16, 2007
    8
    Old Basing, Hampshire
    #11 unclekev, Oct 24, 2008
    Last edited: Apr 6, 2010
    The article was about my Brother Andrew

    The Sunday Times article published on 27th October 2007 was about my brother Andrew. As others have stated it was good to see Early Onset Dementia brought in to the mainstream of public attention. Sadly, we were interviewed and the photos taken in early spring 6 months prior to the article. Three weeks after the article was published (in November 2007) Andrew moved to be resident in a care home specialising in Dementia (Moderator note: care home name removed). Since then his deterioration has been quite rapid and sadly he is no longer able to walk or verbally communicate. Sarah, Andrew's wife is coping admirably, having moved jobs to be closer to Andrew. The person I feel most upset for after Andrew himself is our mother who, having watched her husband suffer for over 10 years with Parkinson's Disease, is now going through a similar hell with her son.

    I have not posted here for over a year due to changes in my own life, noteably getting married. Sadly, the happiest day of my life was not as complete as we had wished as due to his deteriating condition Andrew could not attend as my Best Man.

    Thanks to all users for their communal support.
     
  12. Margarita

    Margarita Registered User

    Feb 17, 2006
    10,824
    london
    Thank you for sharing on TP unclekev
     

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