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The truth abojut de,memtia

Norrms

Registered User
Feb 19, 2009
5,521
0
Torquay Devon
THE TRUTH About Dementia

I have dementia, it’s a terminal disease, I am slowly dying and disappearing right in front of my families eyes, bit by bit each and every day. They say a cure could be 10 to 20 years away from now, too late for me. I have dementia but I am not daft!! I lost my Father and wonderful grandmother to this awful disease so I know what my future holds. I wake each and every night, screaming and shouting, fighting enemies who are completely invisible to anybody else.


I hear my mum shout my name, I see and feel my dog slide up to me on the settee, Both have been dead for years!! I’ve seen myself walk out of a lift whilst sitting facing in a cafe, and I have felt myself dying in bed trying to call my “Angel” Elaine’s name to tell her I love her before I do. I look into my children’s eyes and wonder who they are about to become, how they will manage, and who will stand guard over them all as I have done for so many years.


Even after all these years I still come across so called “Friends” who cross the road from me now rather than say hello because they think it might be contagious !! I have to be held by the hand at all times as I have lost all my road sense and would walk straight in front of a car in an instant!!


Most days I disappear into a world of my own. I used to say nothing bad ever happened in my world, now sometimes, it seems totally opposite. I want to scream and shout sometimes, but I know if I do, that people will look at me and think AWWWWW, must be his Dementia!!! The slightest thing that goes wrong and it’s the end of the world as far as I am concerned. Things I used to take in my stride are now totally devastating, and yet???


I smile, we smile, we all smile, through thick and thin we smile. We go out, into the big bad world, every day and try to make people understand why I, and others feel like this and why this disease makes you feel as if you are the loneliest person in the world, even though you are surrounded by love. Why do we smile and go out there every day? Because we are born to fight!! We are genetically made up to fend off all that is thrown at us and make the best of what we have!! Where we get the strength from? Nobody knows, but somehow, we get up in the mornings day after day and face head on whatever is thrown at us!!


WHY DO WE ALL DO THIS DAY AFTER DAY?


Because we have hope!! Because we hope one day all will be well or at least be a little better tomorrow than today and that is enough for us to hold onto. That little bit of hope is enough to feed our soul, help us breath, speak our words and have our voices heard, just that little bit of hope can do so much. So please my friends, whatever situation you are in, whatever your health may be like, please hold on tight to that little bit of hope, because, even something so small, that can’t be seen, touched, tasted, heard or smelt, can bring a little happiness to each and every heart in the world!!





Norrms
 

Jaded'n'faded

Registered User
Jan 23, 2019
3,208
0
High Peak
Wow. @Norrms thank you for your post. You give us something we rarely get on TP - true insight into how a person with dementia actually feels and how life is for them. It's amazing that you continue to have such insight into your situation. Your immense courage and love for your family shines through.

Take care Norrms x
 

CAL Y

Registered User
Jul 17, 2021
305
0
Hello @Norrms . What an eloquent post.
I have goosebumps and tears in my eyes.
You are so brave.xx Much love to you.
 

Norrms

Registered User
Feb 19, 2009
5,521
0
Torquay Devon
Wow. @Norrms thank you for your post. You give us something we rarely get on TP - true insight into how a person with dementia actually feels and how life is for them. It's amazing that you continue to have such insight into your situation. Your immense courage and love for your family shines through.

Take care Norrms x
Thank you
 

Eogz

Registered User
Sep 9, 2021
56
0
Thanks Norrms,

Much appreciated.
I'm reading Wendy Mitchell's book now, its scary but also very inspiring.
I'm going through the diagnosis process at the moment, I still think I am likely to be Mild Cognitive Impairment, but I also need to realistically face the potential future.
People like you, Wendy and the others out there, really help in explaining what life is like. I draw some comparisons too but it also helps me cope with them too.

So yes, thanks very much.
 

Norrms

Registered User
Feb 19, 2009
5,521
0
Torquay Devon
Thanks Norrms,

Much appreciated.
I'm reading Wendy Mitchell's book now, its scary but also very inspiring.
I'm going through the diagnosis process at the moment, I still think I am likely to be Mild Cognitive Impairment, but I also need to realistically face the potential future.
People like you, Wendy and the others out there, really help in explaining what life is like. I draw some comparisons too but it also helps me cope with them too.

So yes, thanks very much.
Thank you
 

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