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The deviousness of dementia (Dasha Kiper - the Guardian)

Discussion in 'I care for a person with dementia' started by Adcat, Oct 20, 2015.

  1. Adcat

    Adcat Registered User

    Jun 15, 2014
    290
    London
    http://gu.com/p/4ddmm/sbl

    Evening All,

    I haven't posted for a while. Will update you on my sibling drama soon!

    I read the attached today. It struck a chord and I found it strangely comforting With much similarities. I hope you do too. It's long so get a cup of tea! Xx
     
  2. mrs mcgonnagal

    mrs mcgonnagal Registered User

    May 9, 2015
    153
    Thanks for the link, I've read it and its so true, I am going to read it again properly tomorrow, its late now!
     
  3. hvml

    hvml Registered User

    Oct 10, 2015
    300
    North Cornwall
    What a fascinating read. Poignant and recognizable with humour. I'm going to ask my brother to read it as a personal favour to me. Gold dust!
     
  4. lizzybean

    lizzybean Registered User

    Feb 3, 2014
    1,398
    Lancashire
    What a good article, glad you posted the link.
    The line that stood out for me & I try my very best with this but this is where my compassionate communication goes out of the window....

    Even those who ought to know better-the caregivers who deal with dementia on a daily basis-often fail to remember that their patients forget.
     
  5. SitsThere

    SitsThere Registered User

    Jan 7, 2013
    68
    This is brilliant. I am, in fact, Sam in this story. Still engaging with my mother in those fights, still feeling hurt because she forgets she's seen me, still wasting our precious time together on my perception of a relationship which is actually not there any more. Thanks for posting this; it has helped me this morning when things were not looking supportable.
     
  6. mrs mcgonnagal

    mrs mcgonnagal Registered User

    May 9, 2015
    153
    Have read it now a couple of times, it really describes the feelings of hope on a good day, I get so disappointed when the inevitable sundowning returns and I feel robbed really. What a strange and upsetting disease for all involved.
     
  7. gringo

    gringo Registered User

    Feb 1, 2012
    1,189
    UK.
    An exceptionally good article. Thank-you for posting the link. But how sad it is that hope can be described as the enemy.
     
  8. Julia B

    Julia B Registered User

    Apr 13, 2015
    80
    Thank you, brilliantly put, hope versus reality, how sad and sweet
     
  9. Jill-88

    Jill-88 Registered User

    Oct 21, 2015
    4
    This was a very eye-opening article. Thank you.
     
  10. Adcat

    Adcat Registered User

    Jun 15, 2014
    290
    London
    I'm Sam too x
     
  11. Mark_W

    Mark_W Volunteer Moderator

    Sep 28, 2015
    4,036
    London
    Thanks for posting, that was a good thoughtful read.
     
  12. stanleypj

    stanleypj Registered User

    Dec 8, 2011
    10,659
    North West
    I thought it was a powerful and well-written article.

    I don't really agree with her about the hope. I need it in my life even though it is regularly dashed.
     
  13. SitsThere

    SitsThere Registered User

    Jan 7, 2013
    68
    x
     
  14. Chuggalug

    Chuggalug Registered User

    Mar 24, 2014
    8,007
    Norfolk
    I've just shared this on my G+ page.
     
  15. 1mindy

    1mindy Registered User

    Jul 21, 2015
    539
    Female
    Shropshire
    Thank-you for posting this. It clarified a few things for me. Yes in a way very comforting.
     
  16. Jesskle66

    Jesskle66 Registered User

    Jul 5, 2014
    99
    An excellent article. The most shocking, true sentence for me was 'Hope is the enemy'.
     
  17. Canadian Joanne

    Canadian Joanne Volunteer Moderator

    Apr 8, 2005
    16,111
    Toronto, Canada
    For me also.
     

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